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Thread: Testosterone after Prostate cancer

  1. #11
    Quote Originally Posted by fly888 View Post
    I am 57 and had a radical prostatectomy in March 2008 I am back to about 90% of where I was pre operation.

    Question. Given my age and medical history what is the best method to increase my testosterone level?

    I lift 3 days per week and I'm fighting for every little gain.

    And can be low testosterone can cause erectile dysfunction?

    Radical prostatectomy doesn't affect testosterone levels. Testosterone is produced in the testicles, not the prostate. Getting older, however, does reduce T levels and there is not a whole lot you can do about that.

    Speak to your personal physician about this. There are negativities associated with artificially increasing your hormone levels.

    Low Testosterone does affect libido, but doesn't necessarily cause ED. The castrati of previous centuries were considered to be great lovers.
    Nov 2013 PSA 4.2 Biopsy Jan 2014- 1 core positive, 20% Gleason 6, doctor highly reco'ed robotic RP - 2nd opinion at UPMC April 2014, put on active surveillance. 2nd biopsy Feb 2015, results negative. PSA test Feb 2016, 3.5. 3rd Biopsy Feb 2016. 3 positive cores less than 5%, Gleason 6. Octotype DX done April 2016, GPS Score of 24--rated "Low risk". PSA test 8/2016, 3.2. PSA test 1/2018 2.2 (after 7 months of proscar) PSA test 7/2018 2.3, PSA test 7/2019 2.0


    DOB 1956, in Pittsburgh, USA

  2. #12
    This is an interesting conversation to me personally.

    My doctor is in favor--post RP and baseline proof of a near zero PSA--of me going back on testosterone.

    Since stopping the testosterone and/ or clomid I have fallen to my low testosterone baseline levels. Complete ED that started 100% when I stopped supplementation and now my brain is mush. I'm a CPA and I have absolutely no concentration, drive or memory. Testosterone is used in the male body for a lot more than sex. I've also lost a tremendous amount of muscle and have zero stamina.

    So what do I do? Congrats you're now cancer free and while the nerves were spared and you can have an erection (physically) but you don't have enough testosterone to get it done or mow the grass without taking 10 breaks and have clarity of thought and drive.

    Basically my options are to live life with the stamina, mental energy and sexual ability of an 85 year old.....at 48 years old.....or I get my testosterone to a middle range level that a man with a normal testosterone function would otherwise already have.

    I understand the concern but if it is so dangerous to get me to the 500 range to alleviate the symptoms why aren't all post-OP patients given permanent hormone therapy? Seems kind of a double standard here.

    This isn't an exercise in anti-aging, it's about not living like an 85 year old man at 48.
    Last edited by IceStationZebra; 10-18-2019 at 03:01 PM.

  3. #13
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    Quote Originally Posted by IceStationZebra View Post
    This is an interesting conversation to me personally.

    My doctor is in favor--post RP and baseline proof of a near zero PSA--of me going back on testosterone.

    Since stopping the testosterone and/ or clomid I have fallen to my low testosterone baseline levels. Complete ED that started 100% when I stopped supplementation and now my brain is mush. I'm a CPA and I have absolutely no concentration, drive or memory. Testosterone is used in the male body for a lot more than sex. I've also lost a tremendous amount of muscle and have zero stamina.

    So what do I do? Congrats you're now cancer free and while the nerves were spared and you can have an erection (physically) but you don't have enough testosterone to get it done or mow the grass without taking 10 breaks and have clarity of thought and drive.

    Basically my options are to live life with the stamina, mental energy and sexual ability of an 85 year old.....at 48 years old.....or I get my testosterone to a middle range level that a man with a normal testosterone function would otherwise already have.

    I understand the concern but if it is so dangerous to get me to the 500 range to alleviate the symptoms why aren't all post-OP patients given permanent hormone therapy? Seems kind of a double standard here.

    This isn't an exercise in anti-aging, it's about not living like an 85 year old man at 48.
    If you have a medical reason work with an endocrinologist in conjunction with you urologist, but understand the risks and make a choice for what is important to you. Then if it works great, and if it doesn't you will have power and peace in knowing the choice you made. Even in failure there is power in being responsible. Self diagnosis and treating based on limited knowledge and support because it is easily available leaves room for blame if it doesn't work which leaves you with a loss of power.

    We know very little about our hormone systems. The current commercial view that testosterone is easily supplemented will not be sustainable, imo.

    I lost my libido around the mid to late fiftys. It now takes work and inention to be intimate. The double whammy, in my experience, is women's libido increases with age.

    Try CBD oil for focus and energy. It is a relatively harmless experiment. We all have endocanabinoid systems and a large percentage, not all, repsond in one way or another. I hit the trifecta. In very small doses (15mg a day) it has helped me with arthiritis pain (neck), low grade chronic depression, and ADD which translates to focus and energy.

    You have a intensified situation because of your weight loss program. It can be a huge distraction to all your activities. At least it was/is for me.
    Last edited by Another; 10-18-2019 at 03:41 PM.
    Born 1953
    family w/PCa; grandfather, 3 brothers
    07-12-04 PSA 1.90
    07-10-06 PSA 2.02
    08-30-07 PSA 3.20
    12-01-11 PSA 5.69 Internist recommends urologist, I say no
    05-16-12 PSA 4.76 manipulate w/diet & supplements
    12-11-12 PSA 5.20, Health system changes to 3 years on testing
    03-07-16 PSA 7.20 Internist adamant on urologist
    DRE smooth, enlarged
    03-14-16 TRUS biopsy-prostatic adenocarcinoma 1%-60% across 8 of 12 samples, Gleason 3+3=6
    03-31-16 MRI pelvis w/o dye
    05-04-16 DaVinci prostatectomy, nerve sparing, Dr. Kent Adkins - recommend
    Final Path; weight 65g, lymph nodes, seminal vesicles, capsule, margin all negative, Gleason 3+4=7, Tumor volume 35%, +pT2c
    Catheter out - 16 days
    Incontinence at 6mos is minimal – no pad
    Cialis 3x/wk & Viagra on occasion
    Begin self-injection needle therapy for erections, stop after 6 due to onset of Peyronie’s
    Erections 100% - 14 months
    5-21-19 PSA <0.02, Zero Club 3.5 years

  4. #14
    Quote Originally Posted by Another View Post
    If you have a medical reason work with an endocrinologist in conjunction with you urologist, but understand the risks and make a choice for what is important to you. Then if it works great, and if it doesn't you will have power and peace in knowing the choice you made. Even in failure there is power in being responsible. Self diagnosis and treating based on limited knowledge and support because it is easily available leaves room for blame if it doesn't work which leaves you with a loss of power.

    I loss my libido around the mid to late fiftys. It now take work and inention to be intimate. The double whammy, in my experience, is women's libido increases with age.
    My libido is gone and I'm doing all I can to help make sure my wife's needs are taken care of. But I'm usually passed out asleep by 8-9 pm.

    It is definitely going to be a tough call. I have a long row to hoe before I have to make that call. Who knows maybe with the loss of the prostate and bph, the ED goes away. Perhaps in some ironic world, the bph started causing ed at the same time we stopped the testosterone and my ed is caused more by the bph. One can hope.

    I will definitely want an endo if that's the route I go.

  5. #15
    Moderator Top User HighlanderCFH's Avatar
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    Quote Originally Posted by Another View Post
    I ask the moderator to review these posts. There are links to commercial testosterone sales within the OP's initial link.

    I did not notice anything overtly commercial or trying to lead the reader to a conclusion associated with a purchase request, etc, so I allowed it to stay. Thanks for being vigilant, though, Another. Much appreciated!
    July 2011 local PSA lab reading 6.41 (from 4.1 in 2009). Mayo Clinic PSA 9/ 2011 = 5.7.
    Local uro DRE revealed significant BPH, no lumps.
    PCa Dx Aug. 2011 age of 61.
    Biopsy DXd adenocarcinoma in 3/20 cores (one 5%, two 20%). T2C.
    Gleason 3+3=6. CT abdomen, bone scan negative.
    DaVinci prostatectomy 11/1/11 at Mayo Clinic (Rochester, MN), nerve sparing, age 62.
    Surgeon was Dr. Matthew Tollefson, who I highly recommend.
    Final pathology shows tumor confined to prostate.
    5 lymph nodes, seminal vesicules, extraprostatic soft tissue all negative.
    1.0 x 0.6 x 0.6 cm mass involving right posterior inferior, right posterior apex & left
    mid posterior prostate. Right posterior apex margin involved by tumor over 0.2 cm length,
    doctor says this is insignificant.
    Prostate 98 grams, tumor 2 grams.
    Catheter out in 7 days. No incontinence, minor dripping for a few weeks.
    Eight annual post-op exams 2012 through 2019: PSA <0.1
    Semi-firm erections without "training wheels," usable erections with 100mg Sildenafil.
    NOTE: ED caused by BPH, not the surgery.

  6. #16
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    Here is just one of the links within his link among others directly to Amazon. It's the first highlighted link in the "article" link.

    "Learn about the best testosterone boosters in 2018" = https://mr-hard.com/best-testosterone-booster-2018/
    Last edited by Another; 10-19-2019 at 01:36 PM.

  7. #17
    If you're going to consider testosterone supplementation, you or your wife may eventually need to add Beta Force to your regimen.

  8. #18
    Quote Originally Posted by Another View Post
    Here is just one of the links within his link among others directly to Amazon. It's the first highlighted link in the "article" link.

    "Learn about the best testosterone boosters in 2018" = https://mr-hard.com/best-testosterone-booster-2018/
    When I've recommended Dr. Walsh's book, I've sometimes included a link to it on Amazon. Either forum rules allow such links or they don't. But I can't see how we can defend a policy that these product links are OK and these aren't. I think Chuck was referring to blatant advertising. Here, too, the line between enthusiasm and self-promotion/advertising may not always be obvious.

    Djin
    Last edited by DjinTonic; 10-19-2019 at 05:42 PM.

  9. #19
    Maybe for G6, but with G7 or greater, no way.
    YOB 1957

    DX 12/18, GS 8, 4+4 6/12 cores, LL Apex 100%, LM Apex 60%, LL Mid 50%, LMM 40%, LL Base 5%, LM <5%, Right side negative.

    3/6/19. Pathology - Grade Group 4 with Intraductal Carcinoma
    T3aNO, 1 mm EPE, GS8, 21 mm uni-focal tumor involved 10% of prostate.

    7 Nodes, SV, SM, PNI, and BNI were negative.

    LVI and Cribriform pattern present.

    Decipher .86 High Risk.

    Post Surgery PSA
    3/25/19 .03. (28 days)
    4/25/19 <.03. (58 days)
    5/25/19 <.02. (88 days)
    9/10/2019. <.02. (198 days)

    3 Part Modality Treatment

    2/25/19 Robotic Laparoendoscopic Single Site Surgery outpatient Cleveland Clinic,

    ADT - started 6/19, end date 6/21.

    ART - Completed 9/26/19. (78 Gy, yes, I glow in the dark)

  10. #20
    Top User garyi's Avatar
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    No harm, no foul....let the customer beware No surprise, Chruck and Djin are right on.
    72...LUTS for the past 7 years
    TURP 2/16,
    G3+4 discovered
    3T MRI 5/16
    MRI fusion guided biopsy 6/16
    14 cores; four G 3+3, one G3+4,
    CIPRO antibiotic = C. Diff infection 7/16
    Cured with Vanco for 14 days
    Second 3T MRI 1/17
    Worsened bulging of posterior capsule
    Oncotype DX GPS 3/17, LFP risk 63%, Likelihood of Low
    Grade Disease 81%, Likelihood of Organ Confined 80%
    RALP 7/13/17 Dr. Gonzaglo @ Univ of Miami
    G3+4 Confirmed, Organ confined
    pT2 pNO pMn/a Grade Group 2
    PSA 0.32 to .54 over 3 months
    DCFPyl PET & ercMRI Scans - 11/17
    A one inch tumor still in prostate bed = failed surgery
    All met scans clear
    SRT, 2ADT, IMGT 70.2 Gys @1.8 per, completed 5/18
    Radiation Procitis, and Ulcerative Colitis flaired after 20 years
    PSA <.006 9/18, .054 11/18, .070 12/18, .067 2/19, .078 5/19, .074 7/19, .081 9/19, .116 11/19
    We'll see....what is not known dwarfs what is thought to be fact

 

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