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Thread: ALL Leukemia B Cell Phila positive

  1. #11
    Regular User
    Join Date
    May 2017
    Posts
    16
    Abeucher, have the exact kind of Leukemia as you also Phil +, I am now almost at 12 months since my stem cell transplant Feb 22, 2017. I am 68 years young hope things work out ok sure is scary reading about this as I am being told the same no signs of anything.
    I started with Sprycell had it for around say five months then my kidneys failed and I have been taking Nilotinib now for around five or six months now.
    Hope they can give you a new treatment just crazy how this stuff can be gone with no signs then bang hit back scares the heck out of me. One just does not know what to do carry on with life or get everything in order.

    God Bless

  2. #12
    Newbie New User
    Join Date
    Dec 2017
    Posts
    6
    Hello Brucecav! It is my husband that has leukemia, like you. There is one difference that I noticed between you, my husband was not prescribed Sprycel until he relapsed. I remember his BMT doctor inquired with the hematologist post transplant, but he didn't prescribe it right away. I think its good that you were on it as a preventative. I am sorry you experienced kidney failure, but I'm glad you have had success with the second therapy. My husband is on the same chemo that you are on now. I am wondering if you would be interested in sharing any information regarding your treatment plan prior to your transplant and if your donor is related? Also, what type of work you were in. I am always looking for information to try to understand how someone gets leukemia. We were told my husbands leukemia is caused from long term exposure to either gasses, chemical or pesticides. We cant think of anything he did long term that he would've been exposed to. He spent 32 years working in the grocery business. That was his only job.

    He was admitted to Moffitt Cancer and Research Hosp in June 2014. His treatment plan was HYPER-CVAD. He did not reach remission after the first two cycles. He then received 4 more cycles before his transplant in December 2014. His older brother was his donor and I thank him all the time. He saved his life. We are thankful. It has been a long road with many bumps but we're very fortunate to receive the care he's receiving.

    If there is anything I can help you with, please ask. We are always willing to share information if it will help someone.

 

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