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Thread: Recurrent or Second Primary Amelanotic Melanoma???

  1. #1
    Newbie New User
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    Mar 2018
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    Unhappy Recurrent or Second Primary Amelanotic Melanoma???

    I was diagnosed with an amelanotic Clark’s level II malignant melanoma on my right forearm in 2001. I had a WLE with sentinel node biopsy. All was and has continued to be clear... This weekend I found an identical mole on my right shoulder; amelanotic, scaly, two dark spots . There is a satellite lesion, also amelanotic approximately 1 inch from it. I will be making an appointment first thing tomorrow, but wanted to see if anyone had experience with recurrent or second primary amelanotic melanomas?

  2. #2
    Senior User
    Join Date
    Jan 2014
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    Angbux,

    I don't have experience with that same type of melanoma, but it sounds like you are moving quickly to have it looked at, which would be my first thought. I also highly recommend seeking out a major cancer center for treatment when dealing with melanoma that is recurrent or more advanced. If you aren't already being seen by one, for help in finding such a center, a web site to try: https://www.melanoma.org/understand-melanoma/melanoma-treatment/treatment-center-finder

    Wishing you all the best!

    Cheri
    Vulvar mucosal melanoma, superficial spreading type, stage I-II, depth 1 mm with regression
    Radical right-sided hemivulvectomy, clitorectomy and bilateral sentinel lymph node biopsies, May 2013, lymph nodes clear
    PET CT, NED, July 2013
    Partial left hemivulvectomy/reconstructive surgery Oct 2013, found melanoma in situ on pathology, out to margins
    November/January - Underwent 9 vulvar biopsies to try to locate the MIS for surgical excision, unsuccessful
    May 2014 - Third vulvectomy/second left hemivulvectomy for wide local excision of MIS, MIS not identified on pathology
    PET CT, still NED, June 2015
    PET CT, NED, June 2016

  3. #3
    Newbie New User
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    Mar 2018
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    Thank you, Cheri! I had it biopsied Thursday. I should hear back soon!!

 

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