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Thread: 55 Ovarian Cancer stage 4 since 2013

  1. #1

    55 Ovarian Cancer stage 4 since 2013

    1. Are there a lot of survivors out there?

    I'm going on 5 years now and currently in remission. I had a 7inch tumor taken out, not to long after my first round of chemo.
    I am still on Avastin every 2 to 3 weeks.

    2. What are your side affects?

    I have severe joint pain, back and shooting pain up the shins through out the bones. I cramp up at night and have been awaken with leg pain.
    Walking upstairs is painful (upper thigh area and hips) And tiring.. I am still struggling with constant fatigue.

  2. #2
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    First off congrats. While I am not a survivor myself, there are member on here who are. I will let them respond but I just wanted to take the time to congratulate you.

    I do know many survivors do speak of neuropathy (nerve damage)as a problem. Have you talked to your dr about gabapentin or lyrica (nerve pain medication - they are not narcotic medications)? They may help.
    All the best and thank you for sharing your story.
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto
    Aug 2018 - 4 yrs NED - no evidence of disease
    Aug 2019 - 5 yrs NED and discharged from cancer clinic!!!!!

  3. #3
    Congrats on making it five years! How inspirational that is to hear! I currently am a one year survivor and looking to hear about the different treatments that you have had. I just ended my last treatment with Doxil. I feel tired and nauseous. I actually felt better on carbo/taxol...if you can believe that.

    Also looking for those who have passed the five year benchmark?


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