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Thread: 3 Months Post Autologous Stem Cell Transplant & WBC and Neutrophils Go Way Down?

  1. #21

    Sorry I Can't Help You on Info on CMML, But...

    [QUOTE=Astrid56;382274]Hello, I am new to this forum. Was recently diagnosed with CMML. Will start Chemo next week (decitabine), 5 days, then 4 weeks off, repeat. I am waiting for a consult with a stem cell transplant specialist in Salt Lake City. Are there any people on this forum with CMML. Amy suggestions, experience? Without the stem cell transplant (which is high risk, even for me at 63 years), I am looking at being done with life in about 2 years.

    Hi Astrid,

    I'm sorry I can't help you with information on CMML. What is CMML? I had Diffuse Large B Cell Lymphoma. It relapsed about 9 months after my stem cell transplant. I received radiation treatments and am currently still in remission and am feeling very well.

    If you start a new thread with your question, you will probably hear more from others. Check to see if there is a CMML board on here as well.

    Good luck with your chemo treatments and stem cell transplant. Will pray that you will not be done with life in 2 years, rather that you will be in remission for many, many years and/or be cured. STUPID cancer!

    Take Care and try to stay positive in this fight.

    ---Debbie
    Stage 1 Diffuse Large B-Cell Lymphoma Sept. 2015
    Treated with: R-Chop Oct. 27, 2015, Nov. 17, 2015 & Dec. 8, 2015 &
    15 Radiation Treatments Jan. 2016
    Pet Scan Jan. 2016 demonstrated Complete Response/Remission!
    2 months shy of two years later, a routine physical found my Lymphoma had come back; my Left Inguinal Lymph Nodes were swollen in July 2017. There were three affected this time; surgeon removed the two largest ones.
    Excisional Biopsy revealed Recurrent Large B-Cell Lymphoma on July 27, 2017
    Treated again with: R-Chop Aug. 15, 2017, Sept. 5, 2017, & Oct. 2, 2017 (had to wait a week for counts to rise)
    Pet Scan Oct. 20, 2017 demonstrated I was again in Complete Remission!
    High Dose Chemotherapy with BEAM Dec. 27, 2017-Jan. 1, 2018
    Autologous Stem Cell Transplant Jan. 2 & 3, 2018
    Pet Scan March 8, 2018
    demonstrated I was still in Complete Remission!

  2. #22
    Super Moderator Top User po18guy's Avatar
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    Quote Originally Posted by Astrid56 View Post
    Hello, I am new to this forum. Was recently diagnosed with CMML. Will start Chemo next week (decitabine), 5 days, then 4 weeks off, repeat. I am waiting for a consult with a stem cell transplant specialist in Salt Lake City. Are there any people on this forum with CMML. Amy suggestions, experience? Without the stem cell transplant (which is high risk, even for me at 63 years), I am looking at being done with life in about 2 years.

    Astrid
    Astrid, I have made up your own thread for you. That way, the replies will pertain specifically to your concern. It is located here:

    https://www.cancerforums.net/threads...osed-with-CMML

    As to transplant, there are two basic types: autologous (your own cells) and allogeneic (donor cells). There are advantages and disadvantages to each - which we can also discuss in the tranplant foprum. But, let's address your questions first.

 

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