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Thread: 33 year old father just diagnosed yesterday

  1. #21
    Super Moderator Top User Baz10's Avatar
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    “Staples” rings an all to familiar tone to me, but mine were not permanent just the every day run of the mill, in 4 months they will dissolve type.
    Titanium, now that’s a new one, maybe a permanent fixture. ?.

    what do I know, better ask the surgeon.
    Note,
    My eminent surgeon also left “open surgery” as a option on a Just in case it is needed basis.
    As it transpired on both surgeries open was not done, Lapro for the 1st and Da Vinci for the second.
    Good luck
    Barry
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    12/09 Colonoscopy clear but picked up hospital infection.
    Aorta & femoral arteries occluded.
    Clot buster drugs put me in ICU with internal bleeding. 9 blood units later they got it under control.
    Aortobifemoral surgery 5th May. yughh.
    PET scan indicates clear
    DEXA bone scan clear
    13/5 CT showed "unknown" but no concern from docs.
    Inguinal lymph nodes and severe groin pain.
    Ultrasound and MRI show no nasties. Pheww
    Groin pain and enlarged lymph nodes still there.
    October -still the same pains but under semi control.
    Additional chest CT scan ordered for 11th November prior to surgery.
    Sinus surgery done and dusted.
    July 2014 PSA at 5.10. 2months of antibiotics in case of UTI, jan 2015 PSA at 7.20, 23/08 now 8.2, current 8.1
    Prostate Cancer confirmed Gleason 3+Marginal 4.
    Active surveillance continues.
    PET CT Aug 2017 indicated lung nodule changes
    CT Guided biopsy 7/09
    November 1 Vats Wedge section pathology Glomulated previous infection
    no Cancer.

    Not all's rosy in the garden, but see following.
    Stop grumbling Baz, your still alive and kicking so far.
    Age and illness doesn't define who we are, but more what we are able to do.
    Motto
    Do what I love doing, when I can until I can't.
    and dodging bullets in the meanwhile, too many bullets at moment.

  2. #22
    Moderator Top User Fourlegsgood's Avatar
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    Quote Originally Posted by Slambert View Post
    Hey Nick,
    When you say "join me straight up with no temporary stoma" what does that mean?

    The Dr. told me he would remove a foot, and that he would have to get into the rectum a bit, but then I would be joined back together with two rings of Titanium staples. Sound familiar?

    Well, my surgeon also said he would remove about a foot but when he got in there he found a thickening of part of the colon that he didnt like the look of and so took out that half of the colon 'just to make sure'.

    I don't know if you have been told whether or not you will have a temporary stoma or not. Many surgeons like to join the colon where it is cut out but then to give that time to heal they give you a temporary stoma (ie bag) which is later reversed. However I did not have that temporary bag.

    As far as I remember, I have titanium staples which are still in the at the join.

    Nick
    Age 1/2 way to 120 plus 1. Symptom of blood in stools May 2011. Colonoscopy June 2011 confirmed rectal cancer. CT scan June 2011 showed no spread to other organs. Anterior resection July 2011 plus 50% bowel removed due to thickening observed during operation. Biopsy confirmed stage 2 in rectum only. Completed 8 cycles of precautionary capecitabine (4600mg Xeloda). Returned to horse riding 6 weeks post op, jumping 2weeks later and first competition 2 weeks after that. July 2012 - CT scan clear. June 2014 - CT scan clear. December 2014 - Colonoscopy clear. July 2017 - 6 year CT scan clear.

  3. #23
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    Nick,
    Thank you for clarifying. The doctor told me the plan was to hook me right back up. I asked about a bag, and his response was if there was a leak or infection where they had to open me back up, that's when they would have to do one. But the plan for now is to hook me right back up.

  4. #24
    Moderator Top User Fourlegsgood's Avatar
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    Excellent. That sounds good.

    They measured me up for a bag 'just in case' and we had long conversations about where it might go because I would want to wear my riding breeches with it so I could still ride my horses.

    Nick
    Age 1/2 way to 120 plus 1. Symptom of blood in stools May 2011. Colonoscopy June 2011 confirmed rectal cancer. CT scan June 2011 showed no spread to other organs. Anterior resection July 2011 plus 50% bowel removed due to thickening observed during operation. Biopsy confirmed stage 2 in rectum only. Completed 8 cycles of precautionary capecitabine (4600mg Xeloda). Returned to horse riding 6 weeks post op, jumping 2weeks later and first competition 2 weeks after that. July 2012 - CT scan clear. June 2014 - CT scan clear. December 2014 - Colonoscopy clear. July 2017 - 6 year CT scan clear.

  5. #25
    Moderator Top User Doug K's Avatar
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    Quote Originally Posted by Slambert View Post
    Nick,
    Thank you for clarifying. The doctor told me the plan was to hook me right back up. I asked about a bag, and his response was if there was a leak or infection where they had to open me back up, that's when they would have to do one. But the plan for now is to hook me right back up.
    Slambert,

    I did get through the surgery and hooked back up. I was pleased that was the outcome. I was prepared for a temporary stoma or permanent, if it was called for. He couldn't tell from all the exams, so for me it worked out well!

    Sounds to me like your surgeon is on top of it and has a good plan. Good luck, when is the surgery?

    doug
    MyJourney:
    August 2004 Colonoscopy Clear
    June-July 2013 Abdominal Discomfort Upper Abdomen X-ray, UltraSound, CTScan all clear
    8.23.13 Diagnosed 5cm tumor on rectum wall: adenocarcinoma @age 66
    Aug-Sept2013 Met with Surgeon,Hematologist and Radiation oncologist
    Oct.-Nov.: Xeloda concurrent with radiation: 25 doses
    November CTScan, MRI and surgeon scoped: Tumor gone, scar tissue
    1.6.14 Surgery LAR: Rectum removed, sphincter remains: Pathology: no lymph node,
    Tumor downgraded from Possible T3 to T2
    Feb. - April Chemo:5 FU and Oxilaplatin:6 infusions over 14 weeks
    9.4.14 ColonoscopyClear,CT Clear
    Dec.14 Follow up BlWk +,CEA .9
    Mar.15Follow up BlWk +,CEA .6
    June.15 Follow up BlWk +,CEA .7
    Sept2015Followup BlWk + CEA .7 CTScanClear NED
    Dec2015SurgicalHerniaRepair
    Sept2016Followup BlWk + CEA .7 CTScanClear NED
    Sept-Oct2017Followup All clear NED
    Sept-Oct2018CTScan+Clear Bldwk+
    Mar2019Bldwk+NED
    Continue ColoRectal Support Group monthly

  6. #26
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    Doug K,
    The surgery is scheduled for Friday the 11th, so 9 days to go. I don't know what to expect, the only time I have ever been put under was for the colonoscopy.

  7. #27
    Moderator Top User Doug K's Avatar
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    Quote Originally Posted by Slambert View Post
    Doug K,
    The surgery is scheduled for Friday the 11th, so 9 days to go. I don't know what to expect, the only time I have ever been put under was for the colonoscopy.
    Slambert,

    Thanks for the info. This will all be behind you soon enough (pardon the pun). Do continue to exercise an be as fit as possible.

    The drugs used with surgery are likely different from the colonoscopy. Take your time, they will be looking for your bowel to come back to life, so be patient. Best wishes to you.

    doug
    MyJourney:
    August 2004 Colonoscopy Clear
    June-July 2013 Abdominal Discomfort Upper Abdomen X-ray, UltraSound, CTScan all clear
    8.23.13 Diagnosed 5cm tumor on rectum wall: adenocarcinoma @age 66
    Aug-Sept2013 Met with Surgeon,Hematologist and Radiation oncologist
    Oct.-Nov.: Xeloda concurrent with radiation: 25 doses
    November CTScan, MRI and surgeon scoped: Tumor gone, scar tissue
    1.6.14 Surgery LAR: Rectum removed, sphincter remains: Pathology: no lymph node,
    Tumor downgraded from Possible T3 to T2
    Feb. - April Chemo:5 FU and Oxilaplatin:6 infusions over 14 weeks
    9.4.14 ColonoscopyClear,CT Clear
    Dec.14 Follow up BlWk +,CEA .9
    Mar.15Follow up BlWk +,CEA .6
    June.15 Follow up BlWk +,CEA .7
    Sept2015Followup BlWk + CEA .7 CTScanClear NED
    Dec2015SurgicalHerniaRepair
    Sept2016Followup BlWk + CEA .7 CTScanClear NED
    Sept-Oct2017Followup All clear NED
    Sept-Oct2018CTScan+Clear Bldwk+
    Mar2019Bldwk+NED
    Continue ColoRectal Support Group monthly

  8. #28
    Regular User
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    Well, I had the colon resection last Friday and boy was it rough. They had to abandon the Lap and do a full open. I also ended up with a temporary stoma, which I was not prepared for. The surgeon couldnít find the tumor, the GEís tattoo didnít take. So they had to halt everything and do another scope to find it. The tumor was lower than the surgeon anticipated, he said once he removed it he only had 2 cm to hook me back up. He did in fact make the connection, but gave me a loop illeostomy so nothing would flow through the colon, allowing time to heal. He said a leak that low would be devastating, and if infected, he would have to remove everything and I would be looking at a permenant colostomy. I appreciate his decision, however inconvenient it may be. Iím still here, and will be able to reverse it once treatment is over. I am grateful for him. Pathology took a full week to come back, but got the word yesterday. All margins were clean and normal, and all 25 lymph nodes he biopsied came back negative. I see the oncologist this week to go over a treatment plan. Even though everything was clean, I think they still want to do some rounds of chemo, which Iím good with. Iím glad I can write you all of this, Iím so grateful for the time I have and have had here. Cancer has a way of changing the way a person views the world, it has mine. I thank each and every one if you for the words of wisdom and encouragement. I canít say how much it truly means to me. I am sitting at the best possible outcome I could, and I will update as I know more. Again, thank you everyone, and God bless

  9. #29
    Moderator Top User Fourlegsgood's Avatar
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    Quote Originally Posted by Slambert View Post
    Well, I had the colon resection last Friday and boy was it rough. They had to abandon the Lap and do a full open. I also ended up with a temporary stoma, which I was not prepared for. The surgeon couldn’t find the tumor, the GE’s tattoo didn’t take. So they had to halt everything and do another scope to find it. The tumor was lower than the surgeon anticipated, he said once he removed it he only had 2 cm to hook me back up. He did in fact make the connection, but gave me a loop illeostomy so nothing would flow through the colon, allowing time to heal. He said a leak that low would be devastating, and if infected, he would have to remove everything and I would be looking at a permenant colostomy. I appreciate his decision, however inconvenient it may be. I’m still here, and will be able to reverse it once treatment is over. I am grateful for him. Pathology took a full week to come back, but got the word yesterday. All margins were clean and normal, and all 25 lymph nodes he biopsied came back negative. I see the oncologist this week to go over a treatment plan. Even though everything was clean, I think they still want to do some rounds of chemo, which I’m good with. I’m glad I can write you all of this, I’m so grateful for the time I have and have had here. Cancer has a way of changing the way a person views the world, it has mine. I thank each and every one if you for the words of wisdom and encouragement. I can’t say how much it truly means to me. I am sitting at the best possible outcome I could, and I will update as I know more. Again, thank you everyone, and God bless
    Really good to hear from you. I think your experience proves the point that we all have to trust our surgeons when they are in there to do the best for us. It certainly sounds as if your guy made all the right calls.

    Now that you have the operation behind you (where do all these puns come from?) at least you know what you are dealing with. There may be set backs but I am sure you are already feeling better as each day passes. Push yourself but not too much and not too quickly (not that I took my own advice).

    Nick
    Age 1/2 way to 120 plus 1. Symptom of blood in stools May 2011. Colonoscopy June 2011 confirmed rectal cancer. CT scan June 2011 showed no spread to other organs. Anterior resection July 2011 plus 50% bowel removed due to thickening observed during operation. Biopsy confirmed stage 2 in rectum only. Completed 8 cycles of precautionary capecitabine (4600mg Xeloda). Returned to horse riding 6 weeks post op, jumping 2weeks later and first competition 2 weeks after that. July 2012 - CT scan clear. June 2014 - CT scan clear. December 2014 - Colonoscopy clear. July 2017 - 6 year CT scan clear.

  10. #30
    Super Moderator Top User Baz10's Avatar
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    May 2011
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    5,414
    There are no better words than Nick has put.
    33 years old, no metastasis, no lymph involvement, a ileostomy, maybe chemo.
    yes, you are right cancer does alter ones perception on life.
    Yet, you have suffered and probably will for a while after the reversal, but heck you are alive and have your whole life ahead and can look forward to be there as your children grow up.
    We are unfortunate to get cancer, but fortunate to go through hell and come out the other side being able to say
    I am beating and or have beaten the beast.
    You have my wholehearted best wishes and admiration.
    Go on gives the good lady and kids a hug.
    well done
    Barry
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    12/09 Colonoscopy clear but picked up hospital infection.
    Aorta & femoral arteries occluded.
    Clot buster drugs put me in ICU with internal bleeding. 9 blood units later they got it under control.
    Aortobifemoral surgery 5th May. yughh.
    PET scan indicates clear
    DEXA bone scan clear
    13/5 CT showed "unknown" but no concern from docs.
    Inguinal lymph nodes and severe groin pain.
    Ultrasound and MRI show no nasties. Pheww
    Groin pain and enlarged lymph nodes still there.
    October -still the same pains but under semi control.
    Additional chest CT scan ordered for 11th November prior to surgery.
    Sinus surgery done and dusted.
    July 2014 PSA at 5.10. 2months of antibiotics in case of UTI, jan 2015 PSA at 7.20, 23/08 now 8.2, current 8.1
    Prostate Cancer confirmed Gleason 3+Marginal 4.
    Active surveillance continues.
    PET CT Aug 2017 indicated lung nodule changes
    CT Guided biopsy 7/09
    November 1 Vats Wedge section pathology Glomulated previous infection
    no Cancer.

    Not all's rosy in the garden, but see following.
    Stop grumbling Baz, your still alive and kicking so far.
    Age and illness doesn't define who we are, but more what we are able to do.
    Motto
    Do what I love doing, when I can until I can't.
    and dodging bullets in the meanwhile, too many bullets at moment.

 

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