A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.
Results 1 to 2 of 2

Thread: Lymph node enlargement for 3 months

  1. #1
    Newbie New User
    Join Date
    May 2018
    Posts
    1

    Lymph node enlargement for 3 months

    I am really worried about my lymph node enlargement recently for almost 2-3 months. At the beginning, only 1 at the right neck, then 2 at right neck, then another 1 at left neck, then 5-6 appears at the groin region. I have visited doctors for many times. Doctor tested the CBC, which is normal. Doctor said that the size is not very large, and let me keep observe. I have observe almost 3 months, and the situations do not change. Right now, I have ca. 10 lymph nodes enlargement in my neck and groin, and suffer from fatigue. Doctor still ask me to observe. The oncology said that oncology doctor only see people who are already diagnosed with cancer, and the ENT said that the size is not so large and detecting me right now is a waste of money. I really do not know what I can do. Who can help me? What I should do? I am so worried.

  2. #2
    Super Moderator Top User po18guy's Avatar
    Join Date
    Feb 2012
    Posts
    10,211
    What you have right now is worry - not cancer. You may very well have a low-grade infection. You have been searching Google, have you? This is a bad idea, as it has planted the idea that you are dying of cancer. No such thing! Your lymph nodes must enlarge or you would die of common infection in just 2-3 weeks! Those nodes have been reacting and expanding throughout your entire life - without you knowing why. They are simply fighting infection which is present in our air, water and food.v Do you remember doctor checking your jaw and underarms when you were a child?

    Doctor was looking for signs of infection - not cancer!

    You may also have a rare auto-immune condition. Those mimic cancer almost exactly in many cases. You have been to doctor(s) numerous times and they are not worried. You are. Do you not trust the doctor, preferring your ability to Google things? Cancer is rare at a young age, and it cannot hide. If you have it, you have it - it is that simple. It will make itself known and then you treat it! Look at my history. Look at the history of others here. I have been worried just once - at first relapse, but that went away once we treated it the second time. or freaked out and I have stared death in the face at least three times. Four, counting my transplant. And I am no hero - just a common cancer patient.

    If you suffer from generalized anxiety, or health anxiety (and it seems that you do), please ask doctor about that, as it is ruining your life.
    05/08-07/08 Tumor appears behind left ear. Followed by serial medical incompetence on the parts of PCP, veteran oncologist and pathologist (misdiagnosis via non-diagnosis). Providential guidance to proper care at an NCI designated comprehensive cancer center.
    07/08 Age 56 DX 1) Peripheral T-Cell Lymphoma-Not Otherwise Specified. Stage IV-B, >50 ("innumerable") tumors, bone marrow involvement.
    08/08-12/08 Four cycles CHOEP14 + four cycles GND (Cyclofosfamide, Doxorubicin, Vincristine, Etoposide, Prednisone & Gemcitabine, Navelbine, Doxil)
    02/09 2) Relapse.
    03/09-06/13 Clinical trial of Romidepsin > long-term study. NED for 64 twenty-eight day cycles, dose tapered.
    07/13 3) Relapse, 4) Suspected Mutation.
    08/13-02/14 Romidepsin increased, stopped for lack of response. Watch & Wait.
    09/14 Relapse/Progression. Visible cervical nodes appear within 4 days of being checked clear.
    10/06/14 One cycle Belinostat. Discontinued to enter second clinical trial.
    10/25/14 Clinical trial of Alisertib/Failed - Progression.
    01/12/15 Belinostat resumed/Failed - Progression. 02/23/15
    02/24/15 Pralatrexate/Failed - Progression. 04/17/15
    04/15 Genomic profiling reveals mutation into PTCL-NOS + AngioImmunoblastic T-Cell Lymphoma. Stage IV-B a second time. Two dozen tumors + small intestine (Ileum) involvement.
    04/22/15 TEC (Bendamustine, Etoposide, Carboplatin). Full response in two cycles. PET/CT both clear. Third cycle followed.
    06/15-07/15 Transplant preparation (X-rays, spinal taps, BMB, blood test, MUGA scan, lung function, CMV screening, C-Diff testing etc. etc. etc.) Intrathecal Methotrexate during spinal tap.
    BMB reveals 5) 26% blast cells of 20q Deletion Myelodysplastic Syndrome MDS), a bone marrow cancer and precursor to Acute Myeloid Leukemia.
    07/11-12/15 Cyclofosfamide + Fludarabine conditioning regimen.
    07/16/15 Total Body Irradiation.
    07/17/15 Moderate intensity Haploidentical Allogeneic Stem Cell Transplant receiving my son's peripheral blood stem cells.
    07/21-22/15 Triple dose Cyclofosfamide + Mesna, followed by immunosuppressants Tacrolimus and Mycophenolate Mofetil.
    07/23-08/03/15 Marrow producing zero blood cells. Fever. Hospitalized two weeks.
    08/04/15 Engraftment occurs, and blood cells are measurable - released from hospital.
    08/13/15 Day 26 - Marrow is 100% donor cells. Platelets climbing steadily, red cells follow.
    09/21/15 Acute skin Graft versus Host Disease arrives.
    DEXA scan reveals Osteoporosis.
    09/26/-11/03/15 Prednisone to control skin GvHD.
    11/2015 Acute GvHD re-classified to Chronic Graft versus Host Disease.
    05/2016 Tacrolimus stopped. Prednisone from 30-90mg daily tried. Sirolimus begun. Narrow-band UV-B therapy started, but discontinued for lack of response. One treatment of P-UVAreceived, but halted due to medication reaction.
    09/16/16 Three skin punch biopsies.
    11/04/16 GvHD clinical trial of Ofatumumab (Arzerra) + Prednisone + Methylprednisolone begun.
    12/16 Type II Diabetes, Hypertension - both treatment-related.
    05/17 Extracorporeal Photopheresis (ECP) begun in attempt to control chronic Graft-versus-Host-Disease (cGvHD. 8 year old Power Port removed and replaced with Vortex (Smart) Port for ECP.
    05/2017 Chronic anemia (low hematocrit). Chronic kidney disease. Cataracts from radiation and steroids.
    06/17 Trying various antibiotics in a search for tolerable prophylaxis.
    08/17 Bone marrow biopsy reveals the presence of 2% cells with 20q Deletion Myelodysplastic Syndrome, considered to be Minimum Residual Disease.
    12/17 Bone marrow biopsy reveals no abnormalities in the marrow - MDS eradicated. The steroid taper continues.
    01/18 Consented for Kadmon clinical trial.
    03/18 Began 400mg daily of KD025, a rho-Associated Coiled-coil Kinase 2 Inhibitor (ROCK2).
    09/18 Due to refractory GvHD, Extracorporeal Photopheresis halted after 15 months ue to lack of additional benefit.
    10/18 I was withdrawn from the Kadmon KD025 clinical trial due to increasing fatigue/lack of benefit.
    11/18 Began therapy with Ruxolitinib (Jakafi), a JAK 1&2 inhibitor class drug. Started at half-dose due to concerns with drug interactions.

    To date: 1 cancer, relapse, second relapse/mutation into 2 cancers, then 3 cancers simultaneously, 20 chemotherapy/GVHD drugs in 11 regimens (4 of them at least twice), 5 salvage regimens, 4 clinical trials, 5 post-transplant immuno-suppressant/modulatory drugs, the equivalent of 1,000 years of background radiation from 40+ CT series scans and about 24 PET scans.
    Both lymphoid and myeloid malignancies lend a certain symmetry to the hematological journey.

    Believing in the redemptive value of suffering makes all the difference.

 

Similar Threads

  1. Cost of lymph node biopsy? (Excisional lymph node biopsy) Van Nuys, Ca
    By mikarose in forum Worried About Possible Cancer
    Replies: 16
    Last Post: 01-05-2014, 07:16 AM
  2. lymph node biopsy (lymph node removed)
    By cquemard in forum Lymphoma - Hodgkin's and Non-Hodgkin's Lymphoma Forum
    Replies: 1
    Last Post: 11-01-2009, 07:18 PM
  3. Leukemia - Reason of liver enlargement?
    By cage23 in forum Leukemia/Myelodysplastic Syndrome Forum
    Replies: 0
    Last Post: 02-15-2007, 01:56 PM
  4. Submandibular lymph node enlargement?
    By Lindsey123 in forum Lymphoma - Hodgkin's and Non-Hodgkin's Lymphoma Forum
    Replies: 1
    Last Post: 11-04-2006, 03:20 AM
  5. On prograf 9 months--now a swollen lymph node
    By kate3319 in forum Lymphoma - Hodgkin's and Non-Hodgkin's Lymphoma Forum
    Replies: 2
    Last Post: 06-29-2006, 12:44 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •