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Thread: Recently diagnosed - symptoms??

  1. #1
    Newbie New User
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    May 2018
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    Recently diagnosed - symptoms??

    Hello all - I was diagnosed with CC on Tueaday of this current week and things are moving pleasant and rapidly towards a treatment design, which is consoling, Ive got another gathering with doc next Tuesday evening to talk about what arrange its at and how they intend to treat it, anyway meanwhile Im truly worrying msyelf, overthinking everything, persuading myself I can feel torment that has clearly just gone ahead since tuesday! I truly trust its beginning time however my spread had dependably been clear so the news has come as a gigantic stun!! The thing that stresses me more than anything else is I had a post coital drain once the previous summer, my hubby and I had as of late prematurely delivered so we put it down to that, everything settled down and it hasnt occurred since! We had another unnatural birth cycle late october, after which my periods have been sporadic and extremely substantial!
    Im now super stressed that its likely been in there for a considerable length of time and years and will be progressed and precarious to treat! I have a 3 year old young man I should be here for some more years yet, so simply thinking about whether any other person was diagnosed after symptoms begun to appear? What's more, if so what kind of stage? Have you had treatment and has it worked? Honestly mournful and alarmed today!! Much obliged women xx



    2008-2013 customary spreads all reasonable

    Feb 2017 Anomalous spread

    Feb 2017 Colposcopy and Lletz biopsy

    Walk 2017 CC diagnosed, X-ray done. CC arranged at 1b1, radical hysterectomy and lymph hub evacuation Dissertation Help reserved for end of April.

    May 2017 - recuperating from radical hysterectomy (inc. Ovaries evacuated) and lymph hub expulsion. Anticipating pathology comes about end of May.

    May 2017 - All unmistakable, check up in 3 months!!

    July 2017 - first post finding 3 month check up and all unmistakable! Examination again in 3 months.

    November 2017 - all reasonable, moved onto 4 month to month check ups.

  2. #2
    Super Moderator Top User po18guy's Avatar
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    Feb 2012
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    9,454
    Sorry to hear of this. Cervical cancer?
    07/08 Age 56 DX 1) Peripheral T-Cell Lymphoma-Not Otherwise Specified. Stage IV-B, >50 ("innumerable") tumors, bone marrow involvement.
    08/08-12/08 Four cycles CHOEP14 + four cycles GND (Cyclofosfamide, Doxorubicin, Vincristine, Etoposide, Prednisone & Gemcitabine, Navelbine, Doxil)
    02/09 2) Relapse.
    03/09-06/13 Clinical trial of Romidepsin > long-term study. NED for 64 twenty-eight day cycles, dose tapered.
    07/13 3) Relapse, 4) Suspected Mutation.
    08/13-02/14 Romidepsin increased, stopped for lack of response. Watch & Wait.
    09/14 Relapse/Progression. Visible cervical nodes appear within 4 days of being checked clear.
    10/06/14 One cycle Belinostat. Discontinued to enter second clinical trial.
    10/25/14 Clinical trial of Alisertib/Failed - Progression.
    01/12/15 Belinostat resumed/Failed - Progression. 02/23/15
    02/24/15 Pralatrexate/Failed - Progression. 04/17/15
    04/15 Genomic profiling reveals mutation into PTCL-NOS + AngioImmunoblastic T-Cell Lymphoma. Stage IV-B a second time. Two dozen tumors + small intestine (Ileum) involvement.
    04/22/15 TREC (Bendamustine, Etoposide, Carboplatin). Full response in two cycles. PET/CT both clear. Third cycle followed.
    06/15-07/15 Transplant preparation (X-rays, spinal taps, BMB, blood test, MUGA scan, lung function, CMV screening, C-Diff testing etc. etc. etc.) Intrathecal Methotrexate during spinal tap.
    BMB reveals 5) 26% blast cells of 20q Deletion Myelodysplastic Syndrome MDS), a bone marrow cancer.
    07/11-12/15 Cyclofosfamide + Fludarabine conditioning regimen.
    07/16/15 Total Body Irradiation.
    07/17/15 Moderate intensity Haploidentical Allogeneic Stem Cell Transplant receiving my son's peripheral blood stem cells.
    07/21-22/15 Triple dose Cyclofosfamide + Mesna, followed by immunosuppressants Tacrolimus and Mycophenolate Mofetil.
    07/23-08/03/15 Marrow producing zero blood cells. Fever. Hospitalized two weeks.
    08/04/15 Engraftment occurs, and blood cells are measureable - released from hospital.
    08/13/15 Day 26 - Marrow is 100% donor cells. Platelets climbing steadily, red cells follow.
    09/21/15 Acute skin Graft versus Host Disease arrives.
    DEXA scan reveals Osteoporosis.
    09/26/-11/03/15 Prednisone to control skin GvHD.
    11/2015 Acute GvHD re-classified to Chronic Graft versus Host Disease.
    05/2016 Tacrolimus stopped. Prednisone from 30-90mg daily tried. Sirolimus begun.
    09/16/16 Three skin punch biopsies.
    11/04/16 GvHD clinical trial of Ofatumumab (Arzerra) + Prednisone + Methylprednisolone begun.
    12/16 Type II Diabetes, Hypertension - both treatment-related.
    05/17 Extracorporeal Photopheresis (ECP) begun in attempt to control chronic Graft-versus-Host-Disease (cGvHD.
    05/2017 Chronic anemia (low hematocrit). Chronic kidney disease.
    06/17 Trying various antibiotics in a search for tolerable prophylaxis.
    08/17 Bone marrow biopsy reveals the presence of 2% cells with 20q Deletion Myelodysplastic Syndrome, considered to be Minimum Residual Disease.
    12/17 Bone marrow biopsy reveals no abnormalities in the marrow - MDS eradicated. The steroid taper continues.
    01/18 Consented for Kadmon clinical trial of drug KD025, a ROCK2 inhibitor that is believed to help with chronic GvHD.
    03/18 Began 400mg daily of KD025, a rho-Associated Coiled-coil Kinase 2 Inhibitor (ROCK2).
    To date: 18 chemotherapeutic drugs in 9 regimens (4 of them at least twice), 5 salvage regimens, 4 clinical trials, 4 post-transplant immuno-suppressant drugs, the equivalent of 1,000 years of background radiation from scanning from 45+ CT series scans and about 24 PET scans. Having had both lymphoid and myeloid malignancies lend a certain symmetry to the journey.

    Believing in the redemptive value of suffering makes all the difference.

 

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