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Thread: Overload of info, trying to understand

  1. #11
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    Before I post in the wrong place, is there a part of this forum for women whose husbands/partners are going thru this? TIA

  2. #12
    Moderator Top User HighlanderCFH's Avatar
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    Quote Originally Posted by CMC View Post
    Hi MichiganMan. We are lucky(?) to have a specific prostrate cancer centre nearby that we're going to. What is a RO and MO?

    An RO is Radiation Oncology. An MO is Medical Oncology.
    July 2011 local PSA lab reading 6.41 (from 4.1 in 2009). Mayo Clinic PSA 9/ 2011 = 5.7.
    Local uro DRE revealed significant BPH, no lumps.
    PCa Dx Aug. 2011 age of 61.
    Biopsy DXd adenocarcinoma in 3/20 cores (one 5%, two 20%). T2C.
    Gleason 3+3=6. CT abdomen, bone scan negative.
    DaVinci prostatectomy 11/1/11 at Mayo Clinic (Rochester, MN), nerve sparing, age 62.
    Surgeon was Dr. Matthew Tollefson, who I highly recommend.
    Final pathology shows tumor confined to prostate.
    5 lymph nodes, seminal vesicules, extraprostatic soft tissue all negative.
    1.0 x 0.6 x 0.6 cm mass involving right posterior inferior, right posterior apex & left
    mid posterior prostate. Right posterior apex margin involved by tumor over 0.2 cm length,
    doctor says this is insignificant.
    Prostate 98 grams, tumor 2 grams.
    Catheter out in 7 days. No incontinence, minor dripping for a few weeks.
    Six annual post-op exams 2012 through 2017: PSA <0.1
    Semi-firm erections 5 years post-op whenever the moon turns into blue cheese.
    NOTE: ED caused by BPH, not the surgery.

  3. #13
    Moderator Top User HighlanderCFH's Avatar
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    Quote Originally Posted by CMC View Post
    Before I post in the wrong place, is there a part of this forum for women whose husbands/partners are going thru this? TIA
    Nope, we're all "equal opportunity gender" around here. LOL

    You can feel free to post anything you'd like about this. At the same time there is also another forum on this site for coping & support forum listed under General Topics. But you're better off right here where women can talk together under the same umbrella of prostate cancer.
    July 2011 local PSA lab reading 6.41 (from 4.1 in 2009). Mayo Clinic PSA 9/ 2011 = 5.7.
    Local uro DRE revealed significant BPH, no lumps.
    PCa Dx Aug. 2011 age of 61.
    Biopsy DXd adenocarcinoma in 3/20 cores (one 5%, two 20%). T2C.
    Gleason 3+3=6. CT abdomen, bone scan negative.
    DaVinci prostatectomy 11/1/11 at Mayo Clinic (Rochester, MN), nerve sparing, age 62.
    Surgeon was Dr. Matthew Tollefson, who I highly recommend.
    Final pathology shows tumor confined to prostate.
    5 lymph nodes, seminal vesicules, extraprostatic soft tissue all negative.
    1.0 x 0.6 x 0.6 cm mass involving right posterior inferior, right posterior apex & left
    mid posterior prostate. Right posterior apex margin involved by tumor over 0.2 cm length,
    doctor says this is insignificant.
    Prostate 98 grams, tumor 2 grams.
    Catheter out in 7 days. No incontinence, minor dripping for a few weeks.
    Six annual post-op exams 2012 through 2017: PSA <0.1
    Semi-firm erections 5 years post-op whenever the moon turns into blue cheese.
    NOTE: ED caused by BPH, not the surgery.

  4. #14
    Before you get the results of the biopsy and find out exactly what is going on, I would look at some medical oncologists, and write their numbers down. Of course, dont go making appointments, because you dont even know if the recent findings are even related to your prostate cancer, so until you find out, dont make appointments. And hopefully, all of that is benign and wont require action. But by writing the numbers of some MOs down, you will have a good list of physicians to contact in the event that what was found on imaging is malignant. Best wishes to you.
    Dad Dx PCa 03/19/13
    01/25/13 Blood test revealed PSA of 4.2 referred to urologist
    02/08/13 Second PSA then DRE, normal feel to gland
    03/08/13 Results of biopsy: 5/12 cores positive for PCa +PNI Gleason 3+3=6 cT1NxMx surgery scheduled
    04/23/13 RRP: no obvious disease outside of gland
    04/30/13 Path report: Tumor involved both lobes just barely into opposite side Gleason score same as biopsy +PNI Stage upgraded to pT2c
    05/06/13 Unable to remove catheter due to leaking, attempt again two weeks later
    05/08/13 Dad collapsed going to car, workup @ local hospital revealed DVT and extensive bilateral pulmonary emboli. transferred to larger facility
    05/09/13 Dad admitted to SICU
    05/11/13 Dad admitted to regular room
    05/12/13 Discharged from Hospital
    05/20/13 Catheter finally removed
    06/18/13 First post-op PSA: <<0.04

    All PSA tests until Jan 31 2017 were <<0.04
    01/31/17 Last PSA test 0.13
    Retest in 4 months + imaging studies

  5. #15
    Newbie New User
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    Thanks everyone. I'll update when we know more. Have great weekends & Happy Fathers' Day!!

 

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