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Thread: Stomach Pains

  1. #1
    Experienced User
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    Sep 2012
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    Stomach Pains

    Son was Dx'd back in 2012 with T-Cell ALL ... went into remission quickly and has been there since... With in the last few months, he gets random stomach pains ( they also make it were he cant poop) they come and go- but as of late, he's been getting them 2-3 times a week. I have him making an appointment with a GI specialist on Monday, but was curios if anyone else experienced such a thing? He has had great health since leaving treatment, so obviously this sparked those hidden fears... Our mantra- Let's not worry too much until there is something to worry about" only goes so far.
    The pain seems internal , as you can't press on the abdomen and create it. Nothing seems to trigger it ( food, drink, etc) and when it leaves, its gone...No lingering.... Thanks Guys ! ~ Tom
    Son Jacob - 20 years old
    Diagnosed Acute T-Cell ALL July 15th 2012
    Induction Phase from 7/17/12 to 8/15 ( Day 29) Hit Remission couple days prior
    He's on a "Clinic Trial" and qualified for Nelarabine in his Consolidation Phase/Maintenance Phase
    Started Consolidation 8/19/12 - Ended on 11/7/12
    Started Interim Maintenance on 11-28-12 - Ended on 1/23/13
    Started Delayed Intensification on 1/23/13
    Started Maintenance Arm B on 4/10/13 ( It will last 180 days
    Last Round of Nelarabine on 10/25 /13 - Port Removed on 10/30/13
    Started Maintenance Arm B ( No Nelarabine) on 12/16/13
    Continued maintenance ( 90 day lumbar with IT Chemo - 30 Day Vincristine push)
    Will have last Lumbar with Chemo in September 2015
    Off treatment in December of 2015

  2. #2
    Super Moderator Top User po18guy's Avatar
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    Feb 2012
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    9,347
    My small intestine pains are in the ileum, where scar tissue is. but, they come and go over the last 3 years. Blood work OK? Anything stressful changed in his life? School, job, relationship, food allergies? The mucosa is a rather fickle tissue.

  3. #3
    Experienced User
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    Sep 2012
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    Labs looked good couple months back … We have GI appt this morning. A friend of mine ( he's a CRNA) - mentioned that chemo's can wipe out the good bacteria in some cases. Says its very treatable... Hoping its something of that sort .. he had one the other - intense pain, briefly , then gone. Diet does nothing to effect onset - or such. A few on a Facebook ALL page have mentioned they live with it as well...
    Son Jacob - 20 years old
    Diagnosed Acute T-Cell ALL July 15th 2012
    Induction Phase from 7/17/12 to 8/15 ( Day 29) Hit Remission couple days prior
    He's on a "Clinic Trial" and qualified for Nelarabine in his Consolidation Phase/Maintenance Phase
    Started Consolidation 8/19/12 - Ended on 11/7/12
    Started Interim Maintenance on 11-28-12 - Ended on 1/23/13
    Started Delayed Intensification on 1/23/13
    Started Maintenance Arm B on 4/10/13 ( It will last 180 days
    Last Round of Nelarabine on 10/25 /13 - Port Removed on 10/30/13
    Started Maintenance Arm B ( No Nelarabine) on 12/16/13
    Continued maintenance ( 90 day lumbar with IT Chemo - 30 Day Vincristine push)
    Will have last Lumbar with Chemo in September 2015
    Off treatment in December of 2015

  4. #4
    Super Moderator Top User po18guy's Avatar
    Join Date
    Feb 2012
    Posts
    9,347
    My hematologist recommended probiotics. Easy enough to try.

  5. #5
    Experienced User
    Join Date
    Sep 2012
    Posts
    81
    Just got back from GI dr... He wants a CT / Labs ( Stool sample possibly) .. We will see
    Son Jacob - 20 years old
    Diagnosed Acute T-Cell ALL July 15th 2012
    Induction Phase from 7/17/12 to 8/15 ( Day 29) Hit Remission couple days prior
    He's on a "Clinic Trial" and qualified for Nelarabine in his Consolidation Phase/Maintenance Phase
    Started Consolidation 8/19/12 - Ended on 11/7/12
    Started Interim Maintenance on 11-28-12 - Ended on 1/23/13
    Started Delayed Intensification on 1/23/13
    Started Maintenance Arm B on 4/10/13 ( It will last 180 days
    Last Round of Nelarabine on 10/25 /13 - Port Removed on 10/30/13
    Started Maintenance Arm B ( No Nelarabine) on 12/16/13
    Continued maintenance ( 90 day lumbar with IT Chemo - 30 Day Vincristine push)
    Will have last Lumbar with Chemo in September 2015
    Off treatment in December of 2015

 

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