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Thread: New positives

  1. #1

    New positives

    Hello all,
    Iíve had a pretty good summer and just wanted to stop in and say hi.
    My last MRI was in June and the doc said my regrowth has still stopped. So good news on that front! I still have seizures but I now have a really good seizure specialist. She felt I was having I lot more seizures than I thought so she put me on a new medication called Vimpat and also I have Clonopin to take when I feel one coming on. That combo seems to be helping.
    Also I am now a Grandma! Our oldest son and his wife had a baby boy, Leopold on July 14. It is literally the best thing thatís ever happened in my life and has made me so grateful to still be here to be a part of his life.
    grand mal seizure leading to MRI discovery of a suspicious brain mass in left temporal lobe May 24, 2013
    99% resection of a WHO Grade II diffuse fibrillary astrocytoma July 11, 2013
    1st postoperative MRI October 11, 2013 - clear for any regrowth
    occasional complex partial and absence seizures
    Clear MRI September 2016
    Regrowth on MRI March 2017
    200 mg of Topamax daily

  2. #2
    Senior User
    Join Date
    Apr 2013
    Hello Grandma, good hear good news for you.

  3. #3
    Super Moderator Top User
    Join Date
    Dec 2011
    Congratulations! Welcome, Leopold!

    Glad to hear that the seizures are more under control than they were, and that the regrowth has stopped.

    It's been quiet around here lately and I always like to think that's because people are doing well and living their lives... thank you for confirming.

  4. #4
    It has been nice to just live and enjoy. I didnít even lurk! But I did feel bad for not checking in. I hope everyone is doing well.

  5. #5
    Super Moderator Top User
    Join Date
    Dec 2011
    I always like to assume that if we don't hear from them, they are.

  6. #6
    Congrats on the grandchild

  7. #7
    Super Moderator Top User
    Join Date
    May 2011
    Congratulations, and Vimpat is good stuff - finally got my seizures under control with it.

    Glioblastoma IV, frontal lobe - Dx March 2011. Treated with standard Stupp protocol
    Recurrence August 2016 (at 5 years PFS). Surgery August 2016, rechallenge with TMZ with immunotheraphy (nivolumab)

  8. #8
    So glad you gave an update, I have been wondering about you! Glad things are going great and congrats on the grand baby!

  9. #9
    congratulations and happy for you, grandma. Glad things are under control and the good news!
    Hubby with inoperable brainstem glioma. Dx- 8/30/2016. Finished radiation- 10/28/2016. started temodar 5/20/2017- didn't tolerate it. started avastin 6/24/17. Tumor growth (Glioblastoma) avastin stopped 9/22/2017. Hospice started 9/28/2017. Went to heaven- 3/4/2018


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