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Thread: I've been a lurker for a while now...

  1. #21
    Newbie Regular User
    Join Date
    Oct 2018
    Posts
    11
    Hi Everyone,
    Just an update on my surgery. It went very well.. The doctor removed the tumor, my rectum, 2 lymph nodes and my ovaries. Said he didn't see signs anywhere else and that he's confident that he got it all.
    Recovery has taken me longer than I thought it would. I consider myself a strong person, but it's taken some time. Best advice I can give someone is listen to your body. It knows when it's ready.

    Got the staples out of my abdomen 2 days ago, and boy does that feel much better. I can actually sit up for longer than 5 minutes. Still have the staples and stitches in my bottom, and it looks like I had an infection brewing. My doc put me on some antibiotics and most of the pain in my bottom has gone away, so sitting is much easier now.

    I don't remember most of my hospital stay as they gave me really good drugs. I got morphine and percocets. The morphine made my dreams really wild. I saw my dead ex husband, my husband, and my mom. Then whenever I closed my eyes, my room turned in to an old school bike shop. Bikes every where, including the ceiling. Right above my bed was a green Huffy motorcross bike. LOL My brain knew it wasn't real... I'd open my eyes and it was a hospital room, closed em, bike shop.

    The dreaded bag isn't so bad. Changing it is gross, but I'm sure I'll get used to it. Had a minor freak out the first week I was home. I went to the bathroom to empty the bag. As soon as I unclipped it, it slipped out of my hands and I had poop all over the floor. I couldn't bend down to clean it up, so I had to call my daughter to come do it. I'm freaking out because that is NOT a job she should have to do, I was embarrassed and started to cry. She assured me everything was ok, she cleaned up my mess and made it all better. I love that girl, she has been my rock durning my recovery time.

    On July 12 I go see the oncologist for my post-op check. I'm sure he's going to order a CT scan and a MRI... I can't wait for the results from that.

  2. #22
    Moderator Top User Doug K's Avatar
    Join Date
    Dec 2014
    Posts
    602
    Anne, thanks for providing the update. Good to know you've come through the surgery so well. Sounds like your daughter is a super supporter! You are so fortunate to have her. Hang in there, it does get better, of course not as quickly as we would like. Too, there are those setbacks that cause delays. You have a positive attitude and keep working with the 10yesr old granddaughter, it has been my experience that they see the world clearly!

    keepin on.... doug
    MyJourney:
    August 2004 Colonoscopy Clear
    June-July 2013 Abdominal Discomfort Upper Abdomen X-ray, UltraSound, CTScan all clear
    8.23.13 Diagnosed 5cm tumor on rectum wall: adenocarcinoma @age 66
    Aug-Sept2013 Met with Surgeon,Hematologist and Radiation oncologist
    Oct.-Nov.: Xeloda concurrent with radiation: 25 doses
    November CTScan, MRI and surgeon scoped: Tumor gone, scar tissue
    1.6.14 Surgery LAR: Rectum removed, sphincter remains: Pathology: no lymph node,
    Tumor downgraded from Possible T3 to T2
    Feb. - April Chemo:5 FU and Oxilaplatin:6 infusions over 14 weeks
    9.4.14 ColonoscopyClear,CT Clear
    Dec.14 Follow up BlWk +,CEA .9
    Mar.15Follow up BlWk +,CEA .6
    June.15 Follow up BlWk +,CEA .7
    Sept2015Followup BlWk + CEA .7 CTScanClear NED
    Dec2015SurgicalHerniaRepair
    Sept2016Followup BlWk + CEA .7 CTScanClear NED
    Sept-Oct2017Followup All clear NED
    Sept-Oct2018CTScan+Clear Bldwk+
    Mar2019Bldwk+NED
    Continue ColoRectal Support Group monthly

  3. #23
    Moderator Top User Fourlegsgood's Avatar
    Join Date
    Aug 2011
    Posts
    987
    Hi Ann,

    Well done so far, hopefully the worst is behind you now (sorry about the unintentional pun). They gave me morphine tablets to take home and I must admit that I tried very hard not to take them because of the side effects. What an amazing daughter you have.

    I hope your check up goes well.

    Nick
    Age 1/2 way to 120 plus 1. Symptom of blood in stools May 2011. Colonoscopy June 2011 confirmed rectal cancer. CT scan June 2011 showed no spread to other organs. Anterior resection July 2011 plus 50% bowel removed due to thickening observed during operation. Biopsy confirmed stage 2 in rectum only. Completed 8 cycles of precautionary capecitabine (4600mg Xeloda). Returned to horse riding 6 weeks post op, jumping 2weeks later and first competition 2 weeks after that. July 2012 - CT scan clear. June 2014 - CT scan clear. December 2014 - Colonoscopy clear. July 2017 - 6 year CT scan clear.

  4. #24
    Newbie Regular User
    Join Date
    Oct 2018
    Posts
    11
    The visit to the oncologist went VERY well!

    He told me that they tested my margins and they came back negative. He also said they test the 13 (more than I thought) lymph nodes the surgeon removed and they ALL came back negative!

    I asked him, "does this mean that I don't have cancer at this time" and he said YES...

    I don't have to go back until October for the first scans.

  5. #25
    Moderator Top User Fourlegsgood's Avatar
    Join Date
    Aug 2011
    Posts
    987
    Now that is good news. I bet you will sleep well tonight.

    Nick
    Age 1/2 way to 120 plus 1. Symptom of blood in stools May 2011. Colonoscopy June 2011 confirmed rectal cancer. CT scan June 2011 showed no spread to other organs. Anterior resection July 2011 plus 50% bowel removed due to thickening observed during operation. Biopsy confirmed stage 2 in rectum only. Completed 8 cycles of precautionary capecitabine (4600mg Xeloda). Returned to horse riding 6 weeks post op, jumping 2weeks later and first competition 2 weeks after that. July 2012 - CT scan clear. June 2014 - CT scan clear. December 2014 - Colonoscopy clear. July 2017 - 6 year CT scan clear.

  6. #26
    Super Moderator Top User Baz10's Avatar
    Join Date
    May 2011
    Posts
    5,426
    Great news Anne.
    i echo what Doug and Nick said.
    Barry
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    12/09 Colonoscopy clear but picked up hospital infection.
    Aorta & femoral arteries occluded.
    Clot buster drugs put me in ICU with internal bleeding. 9 blood units later they got it under control.
    Aortobifemoral surgery 5th May. yughh.
    PET scan indicates clear
    DEXA bone scan clear
    13/5 CT showed "unknown" but no concern from docs.
    Inguinal lymph nodes and severe groin pain.
    Ultrasound and MRI show no nasties. Pheww
    Groin pain and enlarged lymph nodes still there.
    October -still the same pains but under semi control.
    Additional chest CT scan ordered for 11th November prior to surgery.
    Sinus surgery done and dusted.
    July 2014 PSA at 5.10. 2months of antibiotics in case of UTI, jan 2015 PSA at 7.20, 23/08 now 8.2, current 8.1
    Prostate Cancer confirmed Gleason 3+Marginal 4.
    Active surveillance continues.
    PET CT Aug 2017 indicated lung nodule changes
    CT Guided biopsy 7/09
    November 1 Vats Wedge section pathology Glomulated previous infection
    no Cancer.

    Not all's rosy in the garden, but see following.
    Stop grumbling Baz, your still alive and kicking so far.
    Age and illness doesn't define who we are, but more what we are able to do.
    Motto
    Do what I love doing, when I can until I can't.
    and dodging bullets in the meanwhile, too many bullets at moment.

  7. #27
    Top User mojo's Avatar
    Join Date
    Apr 2010
    Posts
    2,375
    Wonderful news!

  8. #28
    Moderator Top User Doug K's Avatar
    Join Date
    Dec 2014
    Posts
    602
    Quote Originally Posted by Anne1965 View Post
    The visit to the oncologist went VERY well!

    He told me that they tested my margins and they came back negative. He also said they test the 13 (more than I thought) lymph nodes the surgeon removed and they ALL came back negative!

    I asked him, "does this mean that I don't have cancer at this time" and he said YES...

    I don't have to go back until October for the first scans.


    Great news, Anne. Thanks for keeping us informed. I am sure your posts offer strength to others. Get out there and get on with your living your life!!

    doug
    MyJourney:
    August 2004 Colonoscopy Clear
    June-July 2013 Abdominal Discomfort Upper Abdomen X-ray, UltraSound, CTScan all clear
    8.23.13 Diagnosed 5cm tumor on rectum wall: adenocarcinoma @age 66
    Aug-Sept2013 Met with Surgeon,Hematologist and Radiation oncologist
    Oct.-Nov.: Xeloda concurrent with radiation: 25 doses
    November CTScan, MRI and surgeon scoped: Tumor gone, scar tissue
    1.6.14 Surgery LAR: Rectum removed, sphincter remains: Pathology: no lymph node,
    Tumor downgraded from Possible T3 to T2
    Feb. - April Chemo:5 FU and Oxilaplatin:6 infusions over 14 weeks
    9.4.14 ColonoscopyClear,CT Clear
    Dec.14 Follow up BlWk +,CEA .9
    Mar.15Follow up BlWk +,CEA .6
    June.15 Follow up BlWk +,CEA .7
    Sept2015Followup BlWk + CEA .7 CTScanClear NED
    Dec2015SurgicalHerniaRepair
    Sept2016Followup BlWk + CEA .7 CTScanClear NED
    Sept-Oct2017Followup All clear NED
    Sept-Oct2018CTScan+Clear Bldwk+
    Mar2019Bldwk+NED
    Continue ColoRectal Support Group monthly

  9. #29
    YAY Anne!!!!!
    Deb f53
    Diag at 49 RCa 5-4-12
    28 rounds Xeloda+radiation 5-12 to 7-12
    Lovely month of normalcy in August
    LAR + temp ileo 9-5-12
    Stage IIIa T2, N1
    FOLFOX 10-16-12 x 12 rounds for 6 months
    Round 12 completed 4-4-13--YAY!
    NED 4-12-13 CT Scan
    Ileo reversal 4-19-13; contracted c-diff--went into toxic shock; 2nd surgery 4-22-13;
    Hospital release 4-30-13
    7-13 to 9-13 Joined LIVESTRONG program at YMCA
    NED 8-13 Breast and cervical biopsies (due to abnormalities)
    NED 9-20-13 Colonoscopy
    American Cancer Society 9-21-13 Relay for Life Event
    NED 4-10-14 CT scan
    NED 1-13-15 CT scan
    NED Dec 2015 Colonoscopy
    NED Feb 2016 CT scan

  10. #30
    Newbie Regular User
    Join Date
    Oct 2018
    Posts
    11
    Just wanted to pop in and say HI!!!! Been moving around a lot more now that I have my staples out and I love it. Still have a little bit that isn't healed yet, but I'm waiting patiently! Hope everyone has a great day!

 

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