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Thread: Port Removal

  1. #1
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    Port Removal

    I am entering year 5 since my cancer diagnosis. I got 2 years of good scans so the Oncologist said I can have my port removed. Anyone have this done before? The person I made the appointment with said no anesthesia was needed for removal. I know I had anesthesia when it went it. I was awake but sort of in a catatonic state.
    Last edited by mike49; 11-07-2018 at 08:11 PM. Reason: spelling

  2. #2
    Super Moderator Top User po18guy's Avatar
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    You and I are both waiting. A lady on another forum said that a local was used and then the small incision was made and doctor slowly tugged on it until out it came. She said the site was tender for a couple of days, then pretty much back to normal. Doctor has to keep pressure on your carotid for several minutes to give the blood platelets time to seal the hole.

    I have had two Hickman lines removed. One easy and the other hurt like heck - but they are quite different since half of them is external and there is a dacron cuff which seals the tubing at the skin level to prevent infection. It either comes out with the tubing (ouch!) or remains in. No sedation or even a local was used.

  3. #3
    Top User mojo's Avatar
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    When they took my husbands out they gave him conscious sedation and a local. He did really well with it no problems at all and it healed up well. He had a High pain tolerance so he never even took any medication. He just couldn’t drive for 24 hours afterwords because of the countcious sedation. And he can answer the questions while they were doing it it just made him feel kind of woozy. I hope yours goes well.

  4. #4
    Moderator Senior User IndyLou's Avatar
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    I can't speak to the port removal, Mike, but congratulations on your oncology milestone! The idea that you're actually able to consider this and ask the question is a great accomplishment.
    Age 52 Male
    early Feb, 2013 - Noticed almond-sized lump in shaving area, right side of neck. No other "classic" cancer symptoms
    late Feb, 2013 - Visited PCP for check-up, PCP advised as lymphoma. Did blood work, orders for CT-scan, referred to ENT
    3/7/13 - CT-scan inconclusive, endoscopy negative
    3/9/13 - FNA of neck mass
    3/14/13 - Received dx of squamous-cell carcinoma, unknown primary
    3/25/13 - CT-PET scan reveals no other active tumors
    3/26/13 - work/up for IMRT
    4/1/13 - W1, D1 of weekly cetuximab
    4/8/13 - W1, D1 of IMRT
    5/20/13 - complete 8 week regimen of weekly cetuximab
    5/24/13 - Complete 35-day regimen of daily IMRT
    mid-July 2013 - CT-PET scan reveals no active tumors, but shows necrotic tissue at site of original tumor
    early Sept 2013 - partial neck dissection to remove necrotic tissue. Assay shows no cancer present.
    Spring 2014 - No signs of cancer
    Spring 2015 - NED
    Spring 2016 - NED
    Spring 2017 - NED
    Spring 2018 - NED
    Spring 2019 - NED

  5. #5
    Moderator Top User Doug K's Avatar
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    Mike, Good news on the 5 year mark. I only had mine in for six months or so. I was out for the removal, and glad I was. Seemed a simple procedure. "out" seemed lots like wisdom tooth extraction.. or maybe more like colonoscopies... dreamlike state, and it is over.

    Good luck to you!

    doug
    MyJourney:
    August 2004 Colonoscopy Clear
    June-July 2013 Abdominal Discomfort Upper Abdomen X-ray, UltraSound, CTScan all clear
    8.23.13 Diagnosed 5cm tumor on rectum wall: adenocarcinoma @age 66
    Aug-Sept2013 Met with Surgeon,Hematologist and Radiation oncologist
    Oct.-Nov.: Xeloda concurrent with radiation: 25 doses
    November CTScan, MRI and surgeon scoped: Tumor gone, scar tissue
    1.6.14 Surgery LAR: Rectum removed, sphincter remains: Pathology: no lymph node,
    Tumor downgraded from Possible T3 to T2
    Feb. - April Chemo:5 FU and Oxilaplatin:6 infusions over 14 weeks
    9.4.14 ColonoscopyClear,CT Clear
    Dec.14 Follow up BlWk +,CEA .9
    Mar.15Follow up BlWk +,CEA .6
    June.15 Follow up BlWk +,CEA .7
    Sept2015Followup BlWk + CEA .7 CTScanClear NED
    Dec2015SurgicalHerniaRepair
    Sept2016Followup BlWk + CEA .7 CTScanClear NED
    Sept-Oct2017Followup All clear NED
    Sept-Oct2018CTScan+Clear Bldwk+
    Mar2019Bldwk+NED
    Continue ColoRectal Support Group monthly

  6. #6
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    Quote Originally Posted by IndyLou View Post
    I can't speak to the port removal, Mike, but congratulations on your oncology milestone! The idea that you're actually able to consider this and ask the question is a great accomplishment.
    <<<<<<

    thanks I had it done this morning. Was at Univ. of Penn. Local anesthesia. It wasn't too bad. Same doctor who did my SIRT procedure almost 4 years ago. So nearly two years of clear scans. prior to this, 30 rounds of chemo. 31 rounds of radiation. Colostomy, Ileostomy, and reversal surgery plus around 20 cm removed of my intestines removed. If anyone needs any advice or words of hope based on my experience, let me know.

  7. #7
    Super Moderator Top User po18guy's Avatar
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    Mike, you are tougher than you originally thought. Compare your thoughts now to those contained in your first few posts. Congratulations on emerging successfully on the far side of things!

 

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