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Thread: Lobectomy

  1. #1
    Newbie New User
    Join Date
    Nov 2018


    I am 22 days post op. I had a robotic Lobectomy, upper right lobe. I am looking for others that have had this surgery to compare my progression of healing. I am 70 years old, so I am sure that is a factor. But, I have recently, like today is the 3rd day, stopped the pain medications. They are causing havoc with my digestive tract. I find myself taking them, then taking other medication for the side effects of the pain killers and they all hurt my stomach!

    I have heard on some message boards of people who stopped them way before this. I am a large breasted woman and am having problems finding anything to use to like a bra, also. My incisions are right along my bra line.

    I am just wondering how long people have pain. Other than my post op doctors appointment, I haven't been out of this house. I pretty much have slept since stopping the pain meds also. I just get exhausted after doing anything. A shower tires me enough to go back and nap.

    I am wondering about others experiences?

    My doctor told me to be patient that it takes a while to get back to normal. But on other message boards I have read about people going back to work after 2 weeks?! I am at 3 weeks, and I certainly couldn't even consider going back to work.

    Any information or experiences anyone can offer would help.

    Thank you

  2. #2
    Super Moderator Top User po18guy's Avatar
    Join Date
    Feb 2012
    Sorry to hear of this. Being male, I cannot identify exactly with your case, but after my second back surgery, it took a much longer time to recover than the first. I was a little bummed out over it. I got the same advice from the surgeon to be pateint and he was correct. Looking at some of the professional sports players, I see them getting back in the game amazingly soon after surgery - I have no idea how they do that. But, I suppose if I was losing half a million for each missed game, I'd heal up a little more quickly, too. Your body's metabolism rate and other factors determine how quickly you'll heal up. Is there frustration for that in-between time? Yes, but it will pass.

    A little closer to home, a lady at church who is about 75 just had a lobectomy. About three weeks later she was pretty much back in the game, but since we are each so entirely different, just allow yourself the luxury of a few naps. After a decade of treatment, they are mandatory in my case.
    05/08-07/08 Tumor appears behind left ear. Followed by serial medical incompetence on the parts of PCP, veteran oncologist and pathologist (misdiagnosis via non-diagnosis). Providential guidance to proper care at an NCI designated comprehensive cancer center.
    07/08 Age 56 DX 1) Peripheral T-Cell Lymphoma-Not Otherwise Specified. Stage IV-B, >50 ("innumerable") tumors, bone marrow involvement.
    08/08-12/08 Four cycles CHOEP14 + four cycles GND (Cyclofosfamide, Doxorubicin, Vincristine, Etoposide, Prednisone & Gemcitabine, Navelbine, Doxil)
    02/09 2) Relapse.
    03/09-06/13 Clinical trial of Romidepsin > long-term study. NED for 64 twenty-eight day cycles, dose tapered.
    07/13 3) Relapse, 4) Suspected Mutation.
    08/13-02/14 Romidepsin increased, stopped for lack of response. Watch & Wait.
    09/14 Relapse/Progression. Visible cervical nodes appear within 4 days of being checked clear.
    10/06/14 One cycle Belinostat. Discontinued to enter second clinical trial.
    10/25/14 Clinical trial of Alisertib/Failed - Progression.
    01/12/15 Belinostat resumed/Failed - Progression. 02/23/15
    02/24/15 Pralatrexate/Failed - Progression. 04/17/15
    04/15 Genomic profiling reveals mutation into PTCL-NOS + AngioImmunoblastic T-Cell Lymphoma. Stage IV-B a second time. Two dozen tumors + small intestine (Ileum) involvement.
    04/22/15 TEC (Bendamustine, Etoposide, Carboplatin). Full response in two cycles. PET/CT both clear. Third cycle followed.
    06/15-07/15 Transplant preparation (X-rays, spinal taps, BMB, blood test, MUGA scan, lung function, CMV screening, C-Diff testing etc. etc. etc.) Intrathecal Methotrexate during spinal tap.
    BMB reveals 5) 26% blast cells of 20q Deletion Myelodysplastic Syndrome MDS), a bone marrow cancer and precursor to Acute Myeloid Leukemia.
    07/11-12/15 Cyclofosfamide + Fludarabine conditioning regimen.
    07/16/15 Total Body Irradiation.
    07/17/15 Moderate intensity Haploidentical Allogeneic Stem Cell Transplant receiving my son's peripheral blood stem cells.
    07/21-22/15 Triple dose Cyclofosfamide + Mesna, followed by immunosuppressants Tacrolimus and Mycophenolate Mofetil.
    07/23-08/03/15 Marrow producing zero blood cells. Fever. Hospitalized two weeks.
    08/04/15 Engraftment occurs, and blood cells are measurable - released from hospital.
    08/13/15 Day 26 - Marrow is 100% donor cells. Platelets climbing steadily, red cells follow.
    09/21/15 Acute skin Graft versus Host Disease arrives.
    DEXA scan reveals Osteoporosis.
    09/26/-11/03/15 Prednisone to control skin GvHD.
    11/2015 Acute GvHD re-classified to Chronic Graft versus Host Disease.
    05/2016 Tacrolimus stopped. Prednisone from 30-90mg daily tried. Sirolimus begun. Narrow-band UV-B therapy started, but discontinued for lack of response. One treatment of P-UVAreceived, but halted due to medication reaction.
    09/16/16 Three skin punch biopsies.
    11/04/16 GvHD clinical trial of Ofatumumab (Arzerra) + Prednisone + Methylprednisolone begun.
    12/16 Type II Diabetes, Hypertension - both treatment-related.
    05/17 Extracorporeal Photopheresis (ECP) begun in attempt to control chronic Graft-versus-Host-Disease (cGvHD. 8 year old Power Port removed and replaced with Vortex (Smart) Port for ECP.
    05/2017 Chronic anemia (low hematocrit). Chronic kidney disease. Cataracts from radiation and steroids.
    06/17 Trying various antibiotics in a search for tolerable prophylaxis.
    08/17 Bone marrow biopsy reveals the presence of 2% cells with 20q Deletion Myelodysplastic Syndrome, considered to be Minimum Residual Disease.
    12/17 Bone marrow biopsy reveals no abnormalities in the marrow - MDS eradicated. The steroid taper continues.
    01/18 Consented for Kadmon clinical trial.
    03/18 Began 400mg daily of KD025, a rho-Associated Coiled-coil Kinase 2 Inhibitor (ROCK2).
    09/18 Due to refractory GvHD, Extracorporeal Photopheresis halted after 15 months ue to lack of additional benefit.
    10/18 I was withdrawn from the Kadmon KD025 clinical trial due to increasing fatigue/lack of benefit.
    11/18 Began therapy with Ruxolitinib (Jakafi), a JAK 1&2 inhibitor class drug. Started at half-dose due to concerns with drug interactions.

    To date: 1 cancer, relapse, second relapse/mutation into 2 cancers, then 3 cancers simultaneously, 20 chemotherapy/GVHD drugs in 11 regimens (4 of them at least twice), 5 salvage regimens, 4 clinical trials, 5 post-transplant immuno-suppressant/modulatory drugs, the equivalent of 1,000 years of background radiation from 40+ CT series scans and about 24 PET scans.
    Both lymphoid and myeloid malignancies lend a certain symmetry to the hematological journey.

    Believing in the redemptive value of suffering makes all the difference.

  3. #3
    Hi Pip,

    Welcome to our forum. Everyone is different so you'll have to find your own road to recovery. However, I have a couple ideas for you.

    Have you considered a sports bra? The ladies seem to like those as a substitute for a regular bra from recovering from lobectomy.

    You should be going on daily walks. Maybe some professional physical therapy might help rebuild your endurance.

    I'm guessing opioids were messing with your stomach. Some people find relief using meds for nerve pain like gabapentin.

    Hope these ideas are helpful to you.
    At the time - 46 yo male, non-smoker
    Sept 2012 - DX - One tumor NSCLC Squamous Cell Right Upper Lung
    Oct 2012 - TX - Treatment similar to Pancoast Tumor - Pre-operation radiation and chemo (5.5 weeks of IGRT and 3 cycles of Cisplatin and Etoposide)
    Dec 2012 - Surgery - Remove RUL, Surgical Pathology Report Adenocarcinoma T2N0M0
    Now - Wait, watch, & pray

  4. #4
    Newbie New User
    Join Date
    Jun 2019
    I had a Lobectomy in Feb 2019 and experience what you also have experienced. I am 74 year old female and stopped taking the painkillers shortly after coming home since I didn't like the way they made me feel, constipation etc. I started taking Tylenol when needed and to this day I still take it whenever I feel sore around surgery area which is very often.
    It does get better but wearing a bra is a real problem. I only wear one if I have to be in a social setting. I am retired but certainly would not have been able to return to work that soon.

  5. #5
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    Hello Poogan. Welcome to the forum.
    This is an old thread. Can you start your own so we can all get to know you? It is easier and less confusing that way and you have a thread all of your very own. Don't want you getting lost/hidden on this one. I am going to close this one down ok?
    Looking forward to reading more about you. If you need any help just send me a message.
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto
    Aug 2018 - 4 yrs NED - no evidence of disease
    Aug 2019 - 5 yrs NED and discharged from cancer clinic!!!!!


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