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Thread: Is this Cancer or what is it? Terrified.

  1. #1
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    Is this Cancer or what is it? Terrified.

    Hi guys. 36 Y Male here. In full-on panic mode. Last 2 months or so i started having excessive flatulence which eventually started to feel like irritation of the rectum and now I have a constant discomfort in the rectum behind the tailbone. Feels like a ball of gas. After i pass gas, the feeling relaxes then starts up again as if new gas there. Now all day I have this odd feeling in my rectum. Everything i read about excessive flatulence, gas pressure and discomfort in rectum leads to rectal or colon cancer articles. I am a hypochondriac by nature but the symptoms are there and i can't ignore them. Evey unpleasant to sit in a chair since it creates even more pressure there.

    I have had gastrointestinal problems most of my life. Usual GERD, Acid Reflux, mind IBS. But this problem is sticking around which makes me wonder if something bad is growing in there. I mostly have loose stool but no bleeding. Im guessing there is no bleeding because the stool is not hard enough to grind against the cancer if one is there.

    I had a endoscopy/colonoscopy done 7 months ago, and things seemed to be fine no rectal or colon issue other than hital hernia an d small internal hammiroids. I wish i was one of those positive people who dont flip out no matter what but i cant. I have always had health issues with one thing or another.

    Can anyone comment on this? Please help.

  2. #2
    Super Moderator Top User Baz10's Avatar
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    May 2011
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    Where to start my response.
    Given as you state you have previous history of Gerd, acid reflux and IBS as well as flatulence Coupled with hypochondria provides the ideal motivation to research every symptom.
    Frankly, Not a good pathway, as you have just fuelled your anxiety to another level. Unfortunately as I often state any internet research you do with the symptoms you state you have will lead to a self cancer diagnosis.

    Ask yourself one question, why do we have doctors who use their expertise supported by a array of diagnostic methods to diagnose illness
    When a diagnosis is as simple as inputting one or two perceived symptoms to come up with a self diagnosis, further joining a cancer support forum and asking a bunch of unqualified strangers
    “Is this cancer or what is it ?”.

    You may be terrified as you say, Why May I ask when any one of your or a combination of your previous I assume medically diagnosed ? GI illnesses can and do provide the current symptoms you experience.
    No one here can make or even suggest a diagnosis, why ?, we are neither qualified or capable.

    I would suggest you make a appointment with a doctor to get a qualified opinion.
    Good luck
    Barry
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    12/09 Colonoscopy clear but picked up hospital infection.
    Aorta & femoral arteries occluded.
    Clot buster drugs put me in ICU with internal bleeding. 9 blood units later they got it under control.
    Aortobifemoral surgery 5th May. yughh.
    PET scan indicates clear
    DEXA bone scan clear
    13/5 CT showed "unknown" but no concern from docs.
    Inguinal lymph nodes and severe groin pain.
    Ultrasound and MRI show no nasties. Pheww
    Groin pain and enlarged lymph nodes still there.
    October -still the same pains but under semi control.
    Additional chest CT scan ordered for 11th November prior to surgery.
    Sinus surgery done and dusted.
    July 2014 PSA at 5.10. 2months of antibiotics in case of UTI, jan 2015 PSA at 7.20, 23/08 now 8.2, current 8.1
    Prostate Cancer confirmed Gleason 3+Marginal 4.
    Active surveillance continues.
    PET CT Aug 2017 indicated lung nodule changes
    CT Guided biopsy 7/09
    November 1 Vats Wedge section pathology Glomulated previous infection
    no Cancer.

    Not all's rosy in the garden, but see following.
    Stop grumbling Baz, your still alive and kicking so far.
    Age and illness doesn't define who we are, but more what we are able to do.
    Motto
    Do what I love doing, when I can until I can't.
    and dodging bullets in the meanwhile, too many bullets at moment.

  3. #3
    Super Moderator Top User po18guy's Avatar
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    Anxiety. It can cause over 100 of the 150 symptoms that our bodies can produce.
    Consider: 20%, 1 in 5, 64 million Americans, suffer from the epidemic of our age: anxiety.

    Anxiety can indeed be the reason behind all of your health issues, unless an organic cause has been found. Cancer that is producing such clear and obvious symptoms cannot hide! It was diligently searched for and zip, zero, nada was noted.

    If a physiological cause cannot be found, a psychological cause cannot be ruled out - in fact is more likely. If you are in full panic mode without cancer*, what will happen if you are ever diagnosed with it?

    Talk to doctor about your apparently debilitating anxiety. Drug-free Cognitive Behavioral Therapy is the gold standard in anxiety treatment.



    * You do not have cancer until a pathology report says you have cancer.
    05/08-07/08 Tumor appears behind left ear. Followed by serial medical incompetence on the parts of PCP, veteran oncologist and pathologist (misdiagnosis via non-diagnosis). Providential guidance to proper care at an NCI designated comprehensive cancer center.
    07/08 Age 56 DX 1) Peripheral T-Cell Lymphoma-Not Otherwise Specified. Stage IV-B, >50 ("innumerable") tumors, bone marrow involvement.
    08/08-12/08 Four cycles CHOEP14 + four cycles GND (Cyclofosfamide, Doxorubicin, Vincristine, Etoposide, Prednisone & Gemcitabine, Navelbine, Doxil)
    02/09 2) Relapse.
    03/09-06/13 Clinical trial of Romidepsin > long-term study. NED for 64 twenty-eight day cycles, dose tapered.
    07/13 3) Relapse, 4) Suspected Mutation.
    08/13-02/14 Romidepsin increased, stopped for lack of response. Watch & Wait.
    09/14 Relapse/Progression. Visible cervical nodes appear within 4 days of being checked clear.
    10/06/14 One cycle Belinostat. Discontinued to enter second clinical trial.
    10/25/14 Clinical trial of Alisertib/Failed - Progression.
    01/12/15 Belinostat resumed/Failed - Progression. 02/23/15
    02/24/15 Pralatrexate/Failed - Progression. 04/17/15
    04/15 Genomic profiling reveals mutation into PTCL-NOS + AngioImmunoblastic T-Cell Lymphoma. Stage IV-B a second time. Two dozen tumors + small intestine (Ileum) involvement.
    04/22/15 TEC (Bendamustine, Etoposide, Carboplatin). Full response in two cycles. PET/CT both clear. Third cycle followed.
    06/15-07/15 Transplant preparation (X-rays, spinal taps, BMB, blood test, MUGA scan, lung function, CMV screening, C-Diff testing etc. etc. etc.) Intrathecal Methotrexate during spinal tap.
    BMB reveals 5) 26% blast cells of 20q Deletion Myelodysplastic Syndrome MDS), a bone marrow cancer and precursor to Acute Myeloid Leukemia.
    07/11-12/15 Cyclofosfamide + Fludarabine conditioning regimen.
    07/16/15 Total Body Irradiation.
    07/17/15 Moderate intensity Haploidentical Allogeneic Stem Cell Transplant receiving my son's peripheral blood stem cells.
    07/21-22/15 Triple dose Cyclofosfamide + Mesna, followed by immunosuppressants Tacrolimus and Mycophenolate Mofetil.
    07/23-08/03/15 Marrow producing zero blood cells. Fever. Hospitalized two weeks.
    08/04/15 Engraftment occurs, and blood cells are measurable - released from hospital.
    08/13/15 Day 26 - Marrow is 100% donor cells. Platelets climbing steadily, red cells follow.
    09/21/15 Acute skin Graft versus Host Disease arrives.
    DEXA scan reveals Osteoporosis.
    09/26/-11/03/15 Prednisone to control skin GvHD.
    11/2015 Acute GvHD re-classified to Chronic Graft versus Host Disease.
    05/2016 Tacrolimus stopped. Prednisone from 30-90mg daily tried. Sirolimus begun. Narrow-band UV-B therapy started, but discontinued for lack of response. One treatment of P-UVAreceived, but halted due to medication reaction.
    09/16/16 Three skin punch biopsies.
    11/04/16 GvHD clinical trial of Ofatumumab (Arzerra) + Prednisone + Methylprednisolone begun.
    12/16 Type II Diabetes, Hypertension - both treatment-related.
    05/17 Extracorporeal Photopheresis (ECP) begun in attempt to control chronic Graft-versus-Host-Disease (cGvHD. 8 year old Power Port removed and replaced with Vortex (Smart) Port for ECP.
    05/2017 Chronic anemia (low hematocrit). Chronic kidney disease. Cataracts from radiation and steroids.
    06/17 Trying various antibiotics in a search for tolerable prophylaxis.
    08/17 Bone marrow biopsy reveals the presence of 2% cells with 20q Deletion Myelodysplastic Syndrome, considered to be Minimum Residual Disease.
    12/17 Bone marrow biopsy reveals no abnormalities in the marrow - MDS eradicated. The steroid taper continues.
    01/18 Consented for Kadmon clinical trial.
    03/18 Began 400mg daily of KD025, a rho-Associated Coiled-coil Kinase 2 Inhibitor (ROCK2).
    09/18 Due to refractory GvHD, Extracorporeal Photopheresis halted after 15 months ue to lack of additional benefit.
    10/18 I was withdrawn from the Kadmon KD025 clinical trial due to increasing fatigue/lack of benefit.
    11/18 Began therapy with Ruxolitinib (Jakafi), a JAK 1&2 inhibitor class drug. Started at half-dose due to concerns with drug interactions.

    To date: 1 cancer, relapse, second relapse/mutation into 2 cancers, then 3 cancers simultaneously, 20 chemotherapy/GVHD drugs in 11 regimens (4 of them at least twice), 5 salvage regimens, 4 clinical trials, 5 post-transplant immuno-suppressant/modulatory drugs, the equivalent of 1,000 years of background radiation from 40+ CT series scans and about 24 PET scans.
    Both lymphoid and myeloid malignancies lend a certain symmetry to the hematological journey.

    Believing in the redemptive value of suffering makes all the difference.

 

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