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Thread: Car t

  1. #101
    Experienced User
    Join Date
    Dec 2017
    I would say that the biggest differences are neurotoxicity did not happen when my husband has his transplant in 2014. Also, my husband's WBC was 0 during transplant and with CAR T , his counts didn't drop that low. He had severe mucositis with his transplant and did not have that at all with CAR T. I am sure there are many differences but honestly, I cant think of anything more than what I mentioned already.

    For me, as his wife, the CAR T was scarier. Even though the neurotoxicity was expected, that was scary to see. My husband also had very high fevers and the seizure activity and the stroke. All of which he fully recovered but that was scary.

    Not sure if you knew my husband had a bone marrow transplant in December of 2014. His older brother was a perfect match.

  2. #102
    Moderator Top User
    Join Date
    Mar 2010
    From watching a programme in the UK following 2 patients through treatment I would say the neurotoxicity is the massive difference and some of the issues that develop as part of that,
    NHL DLBC aggressive stage 4B advanced
    diagnosed april 09
    after 8 rchop and a couple of delays, in remission
    some long term side effects to manage post treatment
    some blips and investigations on the journey but now
    22nd oct 2014 discharged no more hospital visits

    we are all on a roller coaster ride, riding blind never knowing where the highs and lows are.


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