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Thread: Car t

  1. #61
    Experienced User
    Join Date
    Dec 2017
    Day 35

    The report says : No evidence of residual b lymphoblastic leukemia. Patient is in complete remission at this time. Yahoo!

    We will continue with 2x weekly labs and follow up appointments. Also, bone marrow biopsies at 60, 90, 180 days and so forth. He had a pretty extensive neurological appointment today. He continues to have some neurotoxicity so he will be monitored over the next two months with the neurologist.

    All in all, its been a great day .

    WBC 2.64
    Hgb 12.2
    Platelets 118
    ANC 1200

  2. #62
    Moderator Top User
    Join Date
    Mar 2010
    Congrats, it must be a relief to have jumped that hurdle here's hoping the remaining issues resolved with time and remission becomes all you both want.

    NHL DLBC aggressive stage 4B advanced
    diagnosed april 09
    after 8 rchop and a couple of delays, in remission
    some long term side effects to manage post treatment
    some blips and investigations on the journey but now
    22nd oct 2014 discharged no more hospital visits

    we are all on a roller coaster ride, riding blind never knowing where the highs and lows are.

  3. #63
    Moderator Senior User IndyLou's Avatar
    Join Date
    Jan 2014
    This is such amazing news. I'm very happy to hear this...I wish you both a long and durable remission, but most of all, a happy one!
    Age 52 Male
    early Feb, 2013 - Noticed almond-sized lump in shaving area, right side of neck. No other "classic" cancer symptoms
    late Feb, 2013 - Visited PCP for check-up, PCP advised as lymphoma. Did blood work, orders for CT-scan, referred to ENT
    3/7/13 - CT-scan inconclusive, endoscopy negative
    3/9/13 - FNA of neck mass
    3/14/13 - Received dx of squamous-cell carcinoma, unknown primary
    3/25/13 - CT-PET scan reveals no other active tumors
    3/26/13 - work/up for IMRT
    4/1/13 - W1, D1 of weekly cetuximab
    4/8/13 - W1, D1 of IMRT
    5/20/13 - complete 8 week regimen of weekly cetuximab
    5/24/13 - Complete 35-day regimen of daily IMRT
    mid-July 2013 - CT-PET scan reveals no active tumors, but shows necrotic tissue at site of original tumor
    early Sept 2013 - partial neck dissection to remove necrotic tissue. Assay shows no cancer present.
    Spring 2014 - No signs of cancer
    Spring 2015 - NED
    Spring 2016 - NED
    Spring 2017 - NED
    Spring 2018 - NED

  4. #64
    Super Moderator Top User po18guy's Avatar
    Join Date
    Feb 2012
    Excellent news! Upward and onward!

  5. #65
    Experienced User
    Join Date
    Dec 2017
    Day 46

    James continues to do well. He's getting stronger every day. His ANC remains low ranging from 400-700 last week. He did not receive any help from nuepogen so this is his own immune system working. His dr said that this is common and the fear is always infection, so we keep a low profile for now. No parties for us today but we are enjoying the Irish holiday. Happy St Paddys to you all. Enjoy the day.

  6. #66
    Super Moderator Top User po18guy's Avatar
    Join Date
    Feb 2012
    Good, good, good.


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