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Thread: Car t

  1. #1
    Regular User
    Join Date
    Dec 2017

    Car t

    I'm interested to know if anyone here has had CAR T therapy? My husband has been through the first stages (consenting and vital organ testing) of a trial for B cell ALL Philadelphia positive. He is patient 20 out of 100. Although scary, I am excited and completely in awe of the process of the collection and programming of the cells. To me, it is unbelievable what they can now do with cellular immunotherapy. I would love to hear from anyone that has had CAR T and what his/her experience has been.

  2. #2
    Super Moderator Top User po18guy's Avatar
    Join Date
    Feb 2012
    Pretty new, pretty fresh stuff! Exciting, if somewhat nerve-wracking to begin something so completely new. Sometimes, new therapies feel like parachuting into the jungle - no map and only a machete. After a deep breath and a sigh, we begin whacking at the underbrush, hoping that we are not going in circles. Do let us know how it goes.

  3. #3
    Moderator Top User
    Join Date
    Mar 2010
    Hi, I know a couple on other sites, think both were Canadians and the may have been an American who had one two, all seemed to be doing ok and no one reported any major issues. Its a couple of months since any have been on the other forum so that's as much as I know.

    It does seem to be successful but not without risk.
    NHL DLBC aggressive stage 4B advanced
    diagnosed april 09
    after 8 rchop and a couple of delays, in remission
    some long term side effects to manage post treatment
    some blips and investigations on the journey but now
    22nd oct 2014 discharged no more hospital visits

    we are all on a roller coaster ride, riding blind never knowing where the highs and lows are.


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