A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.
Page 2 of 9 FirstFirst 1234 ... LastLast
Results 11 to 20 of 90

Thread: New member, no dx yet, psa 29

  1. #11
    1000, I have read posts from men with PSA tests of over 50, who then had multiple biopsies with no cancer found. So, yes, it is possible that you don't have prostate cancer, but there is a likelihood that you do.

    I would suggest that you ask the urologist about having a PHI, 4K Score, or SelectMDX blood test. Those include psa and free psa, but are more accurate.

    As Another suggested, having an MRI and then a fusion biopsy will give a precise assessment than a TRUS (or blind) biopsy.

    And, try not to jump ahead into researching possible treatments. Somebody on another forum has listed 29 possible prostate cancer treatments!!! Save that confusion for after you have a diagnosis.
    DOB: May 1944
    In Active Surveillance program at Johns Hopkins
    Strict protocol of tests, including PHI, DRE, MRI, and biopsy.
    Six biopsies from 2009 to 2019. Numbers 1, 2, and 5 were negative. Numbers 3,4, and 6 were positive with 5% Gleason(3+3) found. Last one was Precision Point transperineal.
    PSA has varied up and down from 3 to 10 over the years. Is 4.0 as of September 2019.
    Hopefully, I can remain untreated. So far, so good.

  2. #12
    There is a Mass General hospital Cancer center at my local hospital which is about 20 minutes from my house. I don't know much about it but I do know they have the DaVinci contraption there.

  3. #13
    Quote Originally Posted by 1000Strings View Post
    ...
    I have decent health insurance through work, so what I can do for testing and how I have to go about it is probably largely dictated by what they will pay for. I have little or no resources of my own to pay for anything else.
    ...
    The workup for men with prostate issues is fairly standardized and usually covered by insurance. One issue that I mentioned above is that the majority of insurers won't cover the cost of an MRI unless there has first been a negative biopsy. This is unfortunately, because the paradigm for diagnosis of PCa is shifting to doing an MRI first, followed by a biopsy that includes sampling any areas identified as suspicious on the MRI (and, if cancer is suspected, is done even if the MRI is negative). But you doc's office should be able to let you know what's what re your insurance coverage.

    Unfortunately, current testing and imaging can only estimate the likelihood of cancer being present, sometimes with a hint of the seriousness. A biopsy, where your prostate tissue is directly examined, is the only way to definitively make a cancer diagnosis. It's the nature of the beast that we all have to deal with. At a certain point your uro may have enough info to decide that it's time for a biopsy and that further testing won't change the picture.
    Last edited by DjinTonic; 03-21-2019 at 02:39 PM.
    69 yr at Dx, BPH x 20 yr, 9 (!) neg. Bx, PCA3-
    7-05-13 TURP for BPH (90→30 g) path neg., then 6-mo. checks
    6-06-17 Nodule on R + PSA rise on finasteride: 3.6→4.3
    6-28-17 Bx #10: 2/14 cores: G10 (5+5) 50% RB, G9 (4+5) 3% RLM
    Bone scan, CTs, X-rays: neg.
    8-7-17 Open RP, neg. frozen sections, Duke Regional
    SM EPE BNI LVI SVI LNI(16): negative, PNI+, nerves spared
    pT2c pN0 pMX acinar adenocarcinoma G9 (4+5) 5% of prostate (4.5x5x4 cm, 64 g)
    11-10-17 Decipher 0.37 Low Risk: 5-yr met risk 2.4%, 10-yr PCa-specific mortality 3.3%
    Dry; ED OK with sildenafil
    9-16-17 (5 wk) PSA <0.1
    LabCorp uPSA, Roche ECLIA:
    11-28-17 (3 m ) 0.010
    02-26-18 (6 m ) 0.009
    05-30-18 (9 m ) 0.007
    08-27-18 (1 yr.) 0.018 (?)
    09-26-18 (13 m) 0.013 (30-day check)
    11-26-18 (15 m) 0.012
    02-25-19 (18 m) 0.015
    05-22-19 (21 m) 0.015
    08-28-19 (2 yr. ) 0.016
    Avg. = 0.013

  4. #14
    my way of dealing with anything that I don't understand or which is uncertain is to try and gather up as much information as possible, so unfortunately I've already read a mind-numbing quantity of information and managed to just feel overwhelmed. I have always felt like I was pretty good at realizing that stressing over things isn't going to change the outcome and that I simply have to deal with things one step at a time, but this all seems rather monstrous and life changing.

    I must say though that hearing from real people who are actually dealing with the situation is helping clear the fog. So thank you again to all of you.

  5. #15
    Quote Originally Posted by 1000Strings View Post
    my way of dealing with anything that I don't understand or which is uncertain is to try and gather up as much information as possible, so unfortunately I've already read a mind-numbing quantity of information and managed to just feel overwhelmed. I have always felt like I was pretty good at realizing that stressing over things isn't going to change the outcome and that I simply have to deal with things one step at a time, but this all seems rather monstrous and life changing.

    I must say though that hearing from real people who are actually dealing with the situation is helping clear the fog. So thank you again to all of you.
    Bryan Cranston as Walter White said it best...like they tailored a script just for me.

    https://youtu.be/7lDHarf14ec

    When I was going through all the testing I was a basket case. Worried about every single possibility and—after reading posts here—worried about a negative result. After getting my diagnosis it was like the weight shifted from obsessive worry to planning how to deal with it. Come what may, I will win and beat this.

    Like Walter White, I now sleep just fine. You will too, definitely try to relax. Nothing good can come of you sitting around and fretting.

    Get out there and do the things you love. Enjoy life. As I say there could be a city bus with my name on it that might make all this worry over cancer irrelevant.

  6. #16
    Hi 1000! Welcome to The Forum! At this moment, no one here or any MD anywhere can say that you are harboring prostate cancer (PCa). However, this must be closely investigated and explained by a URO MD. The MD will most likely want to either rule out (hopefully) or rule in PCa. If biopsy is on the near horizon, ask the URO MD if you are a candidate for an MP 3T MRI that can be fused with a TRUS Biopsy.

    Re "This is what prompted the DRE and PSA test." Did the PSA blood draw occur before or after the DRE? DRE can elevate a PSA result - although not likely elevate a normal PSA (<3.0ng/ml) all the way to 29.

    The fact that you have an appointment with a URO MD is the single best action step! Let the URO MD get this mystery figured out and provide guidance and advice for you to follow moving forward.

    Having your wife attend your meetings and consultations to take notes is perfect. We men tend to have selective hearing! Be sure she has a list of questions and be sure that you fully understand each answer before moving to the next issue.

    Take it 1 step at a time! Keep us updated and keep in mind that The Forum is here every step of your adventure!

    Meanwhile, try to stay calm and let the URO MD get things sorted out. As others have suggested, adopting healthy lifestyles and losing unnecessary weight will provide overall benefit whether or not PCa is on the menu.

    MF
    PSA: Oct '09 = 1.91, Oct '11 = 2.79, Dec '11 = 2.98 (PSA, Free = 0.39ng/ml, % PSA Free = 13%)
    Referred to URO MD
    Jan '12: DRE = Positive: "Left induration"
    Jan '12: Biopsy = 6 of 12 Cores were Positive: 1 = G7 (3+4) and 5 = Gleason 6
    Referred to URO Surgeon
    March '12: Robotic RP: Left: PM + EPE. MD waited in surgery for preliminary Path Report then excised substantial left adjacent tissue(s) down to negative margins and placed 2 Ti clips for SR guidance, if needed in future.
    Pathology: Gleason (3+4) pT3a pNO pMX pRO c tertiary pattern 5 / Prostate Size = 32 grams / Tumor = Bilateral: 20% / PNI: present
    3 month Post Op standard PSA = <0.1 ng/ml
    1st uPSA at 7 months Post Op = 0.018 ng/ml
    uPSA remains "stable" at 91 Months Post Op: Mean = 0.022 (22x uPSAs: Range 0.017 - 0.032) LabCorp: Ultrasensitive PSA: Roche ECLIA
    Continence = Very Good (≥ 99%)
    ED = present

  7. #17
    Senior User
    Join Date
    May 2017
    Posts
    185
    Hi 1000Strings! Watch this 7 min youtube video created by the Prostate Cancer Research Institute. It should be required for people starting their PC journey.

    https://www.youtube.com/watch?v=6QgcfVBzFNs&t=14s
    DOB 1961
    2010-05 2.42
    2015-07 7.0
    2015-08 5.4
    2016-02 6.2
    2016-09 7.86
    2017-02 7.2
    2017-05 5.65
    2017-06 biopsy 7 of 13 cores G6
    2017-10 7.11
    2018-04 7.47
    2018-11 11.80

    2019-01 Da Vinci RALP
    Pathology report:
    Final stage pT2C
    Histologic type: Acinar adenocarcinoma with focal mucinous features
    Grade: 3+4=7 35% pattern 4
    23% of prostate involved
    EPE-
    BNI-
    SVI-
    PNI+
    LVI+
    Margins focally positive [1-3 mm] 4 locations
    Cribriform pattern noted

    Roche ECLIA uPSA
    2019-03 0.133
    2019-04 0.116
    2019-05 0.143
    2019-06 0.140
    2019-07 0.183
    2019-08 0.197
    2019-08 Start Lupron/Casodex
    2019-10 0.007

    2019-09 Decipher score .49

  8. #18
    Hi!

    Yes, my PSA test was done about 20 minutes after the DRE. It was also about 4 hours after I had an orgasm, two weeks after I ended up in the emergency room with cellulitis in my face, originating in two abcessed teeth, resulting in 10 days of an antibiotic that my body (and brain) definitely did not appreciate - and a couple days after a 3 day bender. All wrapped in grinding my perineum into a hard car seat 8 hours a day for decades.

    I'm just hoping all these assorted insults can add up to making my enlarged prostate put out all that PSA for a non-cancerous reason. I guess I'll find out eventually!

    Thanks

  9. #19
    Great intro video. I will bookmark and link it in future threads on other forums.

    Thanks, Busby

  10. #20
    Quote Originally Posted by 1000Strings View Post
    Hi!

    Yes, my PSA test was done about 20 minutes after the DRE. It was also about 4 hours after I had an orgasm
    Depending on where you’re from that’s considered a full and complete day!😀

    I doubt that the DRE would raise it that much.

 

Similar Threads

  1. Very high PSA, but no cancer found yet. What's going on ?
    By LenM in forum Prostate Cancer Forum
    Replies: 9
    Last Post: 11-14-2014, 06:44 PM
  2. Replies: 17
    Last Post: 03-25-2013, 10:13 PM
  3. Does this seem right, no PSA test yet and Cialis samples
    By FredS in forum Prostate Cancer Forum
    Replies: 5
    Last Post: 12-16-2012, 06:17 AM
  4. Hello all, new here, and as of yet undiagnosed
    By Bellavee in forum Lymphoma - Hodgkin's and Non-Hodgkin's Lymphoma Forum
    Replies: 3
    Last Post: 08-03-2011, 07:27 AM
  5. New here with no diagnosis yet. Help?
    By meeves1925 in forum Pancreatic Cancer Forum
    Replies: 4
    Last Post: 11-08-2008, 07:28 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •