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Thread: CHOP Experience, to an auto SCT for AITL / PTCL

  1. #41
    Regular User
    Join Date
    Apr 2019
    Posts
    29
    Yes, thanks! Necrotizing granuloma is the technical reference.

  2. #42
    Senior User
    Join Date
    Jan 2015
    Posts
    261
    I'm glad they took it out - I bet you are too! Hope this week goes by fast so you can get some definitive answers and move forward!

  3. #43
    Regular User
    Join Date
    Apr 2019
    Posts
    29

    Path Forward Still Complicated

    Good news is that the removed nodule was not cancerous. Bad news is that it was an egg sized nodule of dead or dying cells associated with the PJP pneumonia I encountered during CHOP Cycle 2, which triggered my first post on this forum. Pathology could not determine if the PJP was active.

    Spent a good deal of time with Infectious Disease specialists. Evidently it is rare, or they just have not seen, that PJP pneumonia form a nodule of that size. PJP cannot be cured only suppressed. They had no explanation as to why the nodule continued to grow. Closing comment was "we have seen many people come out of transplant with PJP pneumonia but have not had anyone go into a transplant after having had PJP". They are looking for case examples and are hesitant to clear the transplant at this point.

    It appears that the risks of transplant have increased due to the seriousness and unusual characteristics of the PJP.

    Lung surgery is healing nicely. Off all pain meds. Learning how to breathe deep again! Need to reach a decision about advisability of going forward with a transplant between now and when recovery is complete enough to move forward. Obviously, the optimal time for starting a transplant has already passed.

 

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