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Thread: Bowel cancer with peritoneal mets

  1. #1
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    Bowel cancer with peritoneal mets

    Hi all im new to this. my mum had an annual scope aug 2018 after polyps were removed a year prior. She had a bowel resection due to cancer. She has since been on oral chemo capcitabine which stopped about a month ago but for a month or so started getying pains. Had a PET scan which showed csncer around the resection site and seeding on peritoneal cavity . She just started on oral capcitabine and iv oxiplatin. Has anyone got a similar story? Im wondering the likely outcome for this? Xx

  2. #2
    Super Moderator Top User Baz10's Avatar
    Join Date
    May 2011
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    5,441
    Mandy,
    Sorry to read of your moms situation.
    Our members no doubt will chip in as they are far more experienced with chemo treatments than myself.

    One thing to keep in mind I’d suggest is there is no such thing as a “Likely” outcome given the progression in treatment regimes unless her doctors have already intimated such.

    Any other information you may wish to share such as ;
    Moms age
    General health including other medical conditions.
    Barry
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    12/09 Colonoscopy clear but picked up hospital infection.
    Aorta & femoral arteries occluded.
    Clot buster drugs put me in ICU with internal bleeding. 9 blood units later they got it under control.
    Aortobifemoral surgery 5th May. yughh.
    PET scan indicates clear
    DEXA bone scan clear
    13/5 CT showed "unknown" but no concern from docs.
    Inguinal lymph nodes and severe groin pain.
    Ultrasound and MRI show no nasties. Pheww
    Groin pain and enlarged lymph nodes still there.
    October -still the same pains but under semi control.
    Additional chest CT scan ordered for 11th November prior to surgery.
    Sinus surgery done and dusted.
    July 2014 PSA at 5.10. 2months of antibiotics in case of UTI, jan 2015 PSA at 7.20, 23/08 now 8.2, current 8.1
    Prostate Cancer confirmed Gleason 3+Marginal 4.
    Active surveillance continues.
    PET CT Aug 2017 indicated lung nodule changes
    CT Guided biopsy 7/09
    November 1 Vats Wedge section pathology Glomulated previous infection
    no Cancer.

    Not all's rosy in the garden, but see following.
    Stop grumbling Baz, your still alive and kicking so far.
    Age and illness doesn't define who we are, but more what we are able to do.
    Motto
    Do what I love doing, when I can until I can't.
    and dodging bullets in the meanwhile, too many bullets at moment.

  3. #3
    Newbie New User
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    Quote Originally Posted by Baz10 View Post
    Mandy,
    Sorry to read of your moms situation.
    Our members no doubt will chip in as they are far more experienced with chemo treatments than myself.

    One thing to keep in mind I’d suggest is there is no such thing as a “Likely” outcome given the progression in treatment regimes unless her doctors have already intimated such.

    Any other information you may wish to share such as ;
    Moms age
    General health including other medical conditions.
    Barry
    Thanks for reply baz, you are very right its all so unknown. Chemo may work, it may not. Trying to stay positive its early days still. Im just one who needs to know everything the ins and outs what to expect etc lol. Mum is 65, only real health issues are high bp, but if reflux, that's it . You have been through quire alot baz!!

  4. #4
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    Excuse my typos lol

  5. #5
    Moderator Top User Doug K's Avatar
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    Dec 2014
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    620
    Quote Originally Posted by Mandy510 View Post
    Thanks for reply baz, you are very right its all so unknown. Chemo may work, it may not. Trying to stay positive its early days still. Im just one who needs to know everything the ins and outs what to expect etc lol. Mum is 65, only real health issues are high bp, but if reflux, that's it . You have been through quire alot baz!!
    Mandy,

    I am sorry that you find yourself here for your mom. The whole process of colorectal cancer is a difficult one, but can be managed successfully when the cancer is caught early enough.

    I was diagnosed at 65 and treatment included chemo, 5FU and others with radiation. That eliminated the tumor, but there was scar tissue and the surgeon wanted to be sure the cancer was gone and hopefully not through the rectal wall and into the lymph system.

    So, surgery was in January. I had a Low Anterior Resection of the rectum (LAR). All that occurred from August 2013- January 2014. Then I had six post surgery chemos, over three months. This was all experienced with a very angry bowel for many months.

    Now, five years later, I am pretty much able to control my movements, often not very 'solid' stool, but rather like that of a year old baby. I belong to a support group of colorectal cancer survivors/experienced folks who tell me that is my "new normal." Annoying, but tolerable and I am alive and able to do most things.

    What to know? Well, being in good health or as good as possible helps. I wasn't very sick with chemo, but tired, very tired. So, for most of the three months, I was on the couch. I forced myself to walk as much as possible to try to stay as fit as possible. (Not that I was 'fit' when I started.) I have neuropathy in my feet and some in my hands. The feet are the worst and I have found that to be a lingering side effect of the chemo.

    That you have docs providing her with treatment, they should have a 'sense' of how the cancer has moved from the initial surgery? I am sure there are others who might want to chime in here about similar treatments. Keep the faith and support your mom. Let us know what you discover.

    doug
    Last edited by Doug K; 04-10-2019 at 08:27 PM.
    MyJourney:
    August 2004 Colonoscopy Clear
    June-July 2013 Abdominal Discomfort Upper Abdomen X-ray, UltraSound, CTScan all clear
    8.23.13 Diagnosed 5cm tumor on rectum wall: adenocarcinoma @age 66
    Aug-Sept2013 Met with Surgeon,Hematologist and Radiation oncologist
    Oct.-Nov.: Xeloda concurrent with radiation: 25 doses
    November CTScan, MRI and surgeon scoped: Tumor gone, scar tissue
    1.6.14 Surgery LAR: Rectum removed, sphincter remains: Pathology: no lymph node,
    Tumor downgraded from Possible T3 to T2
    Feb. - April Chemo:5 FU and Oxilaplatin:6 infusions over 14 weeks
    9.4.14 ColonoscopyClear,CT Clear
    Dec.14 Follow up BlWk +,CEA .9
    Mar.15Follow up BlWk +,CEA .6
    June.15 Follow up BlWk +,CEA .7
    Sept2015Followup BlWk + CEA .7 CTScanClear NED
    Dec2015SurgicalHerniaRepair
    Sept2016Followup BlWk + CEA .7 CTScanClear NED
    Sept-Oct2017Followup All clear NED
    Sept-Oct2018CTScan+Clear Bldwk+
    Mar2019Bldwk+NED
    Continue ColoRectal Support Group monthly

  6. #6
    Super Moderator Top User Baz10's Avatar
    Join Date
    May 2011
    Posts
    5,441
    Mandy,
    Quite a lot” for sure just like many of us here but still alive and kicking.
    So
    life is still enjoyable as long as we do not dwell on the negatives.

    Unfortunately even with modern medicines diagnostic techniques not even the doctors know everything, substantially more than we mere laypeople do for sure, so at times we have to realise and accept that not every I can be dotted nor T crossed upfront.
    Informed guidance by our medical people is the best path, as they know their patient and have all the relevant information.
    Old saying
    If in doubt ask.
    Barry
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    12/09 Colonoscopy clear but picked up hospital infection.
    Aorta & femoral arteries occluded.
    Clot buster drugs put me in ICU with internal bleeding. 9 blood units later they got it under control.
    Aortobifemoral surgery 5th May. yughh.
    PET scan indicates clear
    DEXA bone scan clear
    13/5 CT showed "unknown" but no concern from docs.
    Inguinal lymph nodes and severe groin pain.
    Ultrasound and MRI show no nasties. Pheww
    Groin pain and enlarged lymph nodes still there.
    October -still the same pains but under semi control.
    Additional chest CT scan ordered for 11th November prior to surgery.
    Sinus surgery done and dusted.
    July 2014 PSA at 5.10. 2months of antibiotics in case of UTI, jan 2015 PSA at 7.20, 23/08 now 8.2, current 8.1
    Prostate Cancer confirmed Gleason 3+Marginal 4.
    Active surveillance continues.
    PET CT Aug 2017 indicated lung nodule changes
    CT Guided biopsy 7/09
    November 1 Vats Wedge section pathology Glomulated previous infection
    no Cancer.

    Not all's rosy in the garden, but see following.
    Stop grumbling Baz, your still alive and kicking so far.
    Age and illness doesn't define who we are, but more what we are able to do.
    Motto
    Do what I love doing, when I can until I can't.
    and dodging bullets in the meanwhile, too many bullets at moment.

 

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