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Thread: Texas Doctor Experience Recommendations?

  1. #1
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    Texas Doctor Experience Recommendations?

    Please give me any suggestions that if you have any experience with the following oncologist:
    At Baylor College of Medicine in Houston:
    Dr. Yvonne Hsiano Fan Sada
    Benjamin Musher, MD
    Brandon Smaglo, MD.

    At MD Anderson in Houston:
    David Fogelman, MD
    Linus Ho, MD
    Milind Javle, MD
    Michael J Oveman, MD.
    Shubham Pant
    Gauri R Varadhachary
    Robert wolff
    James C Yao
    The current oncologist suggested the olabarib, PARP inhibitor for my husband who has recurrence stage iv that already spreading to his abdominal, but he said it takes a lot of paper work to deal with insurance and may take a month for the approval. My question is, if the olaparib used for pancreatic cancer and its still in phase 3 clinical trial, then hows it work, do we need to go to specific hospital to get the benefit for the clinical trial?
    Thanks a lot
    Yen
    Last edited by ddessert; 04-15-2019 at 12:23 AM.

  2. #2
    Super Moderator Top User ddessert's Avatar
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    I’ve moved your post to its own thread for better visibility.

    My oncologist at MDAnderson was Dr. Varadhachary and she is outstanding in her knowledge and okay with her bedside manner (in 2011). Her knowledge of PARP inihibitors and the current best treatments is far above average.

    However, I don’t think that stage 4 patients are very well treated (bedside manner) at MDA, unless they’re in a clinical trial.
    BRCA2 3398del5
    Dec 2010 - back/abd pain
    May 2011 - Unresectable stage III, 2.5cm tumor
    Jun-Aug 2011 - Gem/Cis, 9 rounds
    Oct-Nov 2011 - IMRT+Xeloda
    Oct 2011-Sep 2012 - shrinking tumor
    Feb 2012 - National Familial Pancreatic Study
    Aug 2012 - Downgraded to stage IIA, PGP
    Sep 2012 - Whipple, T3N0M0, 0.5cm tumor, 0/16 lymph nodes
    Dec 2012 - Quebec PanCan Study
    Sep 2012-May 2019 - NED
    Mar 2013-present - NCT01088789
    Jun 2019- NCT03805919
    @pancanology

  3. #3
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    Thanks for your information.

  4. #4
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    Yen, I'm curious how that would work with insurance or clinical trial with Olaparib. Could you share it you find out?
    Mar. '18 - Diagnosed Stage IV with liver mets CA-19 124,000
    Apr. '18 - Started chemo - Gem, Abrx, Cis
    July and Sept '18 - Ct scan - all tumors shrinking
    Oct. '18 - CA-19 - 1,495
    Oct. '18 - Started Gem, Abrx 1/2 dose

  5. #5
    I have to echo David's sentiments regarding Dr.Varadhachary, she is undoubtedly extremely skilled at her job, but her bedside manner and advice for patients with Stage 4 cancer, I found extremely wanting. If I may be so blunt, it seemed like she just expected Stage 4 patients to die, so really didn't spend a lot of time with them, and didn't understand their desire to prolong their life by continuing to pursue aggressive treatment protocols.

    We were very pleased with Dr. Douglas Nelson, who was probably the most compassionate and understanding doctor we had met, also at MD Anderson.
    4/2016 - 55 yo father diagnosed with Borderline Resectable Pancreatic Cancer, CA 19-9 102
    5/2016-11/2016 - father does 12 rounds of folfirinox, 70% tumor shrinkage, undergoes SBRT scheduled for resection 1/2017
    1/2017- Preoperative laparoscopic investigation shows mets to peritoneum, whipple canceled.
    2/2017 - Maintenance Xeloda for 3 months
    6/2017 - Pet scan shows no active cancer, chemo holiday
    8/2017 - Dad enrolls at Clinical Trial at Johns Hopkins starting in January.
    1/2018- Dad begins 8 weeks of transfusions at Johns Hopkins immunotherapy clinical trial
    3/2018- Dad scan shows stable disease w/o change
    5/2018- Dad scan shows stable disease w/o change
    8/2018- Dad scan shows stable disease without change but elevated liver numbers

  6. #6
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    Im enrolling the clinical trial at Md anderson now. They are waiting for my medical records from Texas Oncology then they can tell me that my husband can be accepted or not and hows it work. I will let you know and share with you all.

  7. #7
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    Here is the link for the olaparib clinical trial:
    https://www.cancer.gov/about-cancer/...2016-00351&r=1

 

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