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Thread: Stage IIIB (5 Years NED)

  1. #1
    Newbie New User
    Join Date
    Apr 2019

    Stage IIIB (5 Years NED)

    This August 2019 will make 5 years clear for stage IIIB for sigmoid colon. Had 6 months of chemo and usually do CT scans every 4 months. My platelets have still not recovered to normal levels, but doctors said not to work it. Would love to hear from others.

  2. #2
    Super Moderator Top User Baz10's Avatar
    Join Date
    May 2011
    i went NED for 5 years with a hot spot on the anastomoses site (docs said no concern) for 5 years and then Ohh dear me it’s back and so it was.
    The test is in my signature.
    Must admit though scans very 4 months, really !, Why if I may ask.

    Are or is there something your docs are concerned about as every 4 months seems drastic to me.

    I didn’t have any chemo, but what platelets are you referring to that have never recovered.
    Im sure others will chime in with their comments.
    All I would say is 5 years and NED.
    Keep on NEDDING.
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    12/09 Colonoscopy clear but picked up hospital infection.
    Aorta & femoral arteries occluded.
    Clot buster drugs put me in ICU with internal bleeding. 9 blood units later they got it under control.
    Aortobifemoral surgery 5th May. yughh.
    PET scan indicates clear
    DEXA bone scan clear
    13/5 CT showed "unknown" but no concern from docs.
    Inguinal lymph nodes and severe groin pain.
    Ultrasound and MRI show no nasties. Pheww
    Groin pain and enlarged lymph nodes still there.
    October -still the same pains but under semi control.
    Additional chest CT scan ordered for 11th November prior to surgery.
    Sinus surgery done and dusted.
    July 2014 PSA at 5.10. 2months of antibiotics in case of UTI, jan 2015 PSA at 7.20, 23/08 now 8.2, current 8.1
    Prostate Cancer confirmed Gleason 3+Marginal 4.
    Active surveillance continues.
    PET CT Aug 2017 indicated lung nodule changes
    CT Guided biopsy 7/09
    November 1 Vats Wedge section pathology Glomulated previous infection
    no Cancer.

    Not all's rosy in the garden, but see following.
    Stop grumbling Baz, your still alive and kicking so far.
    Age and illness doesn't define who we are, but more what we are able to do.
    Do what I love doing, when I can until I can't.
    and dodging bullets in the meanwhile, too many bullets at moment.


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