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Thread: Dad passed away tonight

  1. #11
    Moderator Top User jorola's Avatar
    Join Date
    May 2014
    Posts
    1,729
    I am very sorry for the loss of your father. Hold memories close to your heart and he will continue to remain there always for you.
    Jodie
    Wife to husband with squamous lung cancer stage 3 b
    dx - April 20/14
    tx started May 20/14 - radiation and chemo
    June 23 - chemo finished
    July 4 - radiation finished
    July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
    Married July 19/14
    Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
    Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
    Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
    Dec 16/14 - pretty much nothing left but a scar
    April 7/15 - ditto scan and screw you stats
    Oct 6/15 - more scarring but still cancer still gone
    Feb 2016 -scan the same
    Aug 2016 - more of the same
    Aug 2017 - and ditto
    Aug 2018 - 4 yrs NED - no evidence of disease
    Aug 2019 - 5 yrs NED and discharged from cancer clinic!!!!!

  2. #12
    Senior User
    Join Date
    Mar 2018
    Posts
    136
    I'm so sorry for your loss. It must have been a great comfort to your father having all the family together. It's good to hear the hospice staff were awesome. God bless.
    Mar. '18 - Diagnosed Stage IV with liver mets CA-19 124,000
    Apr. '18 - Started chemo - Gem, Abrx, Cis
    July and Sept '18 - Ct scan - all tumors shrinking
    Oct. '18 - CA-19 - 1,495
    Oct. '18 - Started Gem, Abrx 1/2 dose

  3. #13
    Newbie New User
    Join Date
    Aug 2018
    Posts
    7
    Sorry for your loss David. May God give lots of strength to you and your family.
    Aug 2017- moms severe stomach pain & back pain
    Oct 2017 detected pancreas adenocarcinoma. Metastasis to lungs, lymph nodes and liver.CA 19-9: 320
    Nov 2017-started with gem+abrexene.CA 19-9 rise to 1840
    Dec 2017- mom doing well except weakness, some muscle cramp but lost a lot of weight.no nausea yet
    Feb 2018- finished with 6 cycles of gem+abrexene and no more stomach pain.
    March 2018- cancer stable and tumor reduced around 80-85%. chemo off n Erlotinib tablets for now. CA 19-9 down to 130 which raised upto 4800
    May 2018- CA 19-9 raised to 930 suddenly. New liver met found. Pancreas tumor still stable.Lungs clear
    July2018- by end of june Folfiri started. Now mom is severely sick.
    Aug 2018- after 3 cycle of Folfiri CA 19-9 is now 7000. Scheduled for another cycle on sat
    Sep 2018- Switched to oxaliplatin and gemcitabine since mom cannot tolerate Folfiri. CA 19-9 rise upto 12K
    Nov 2018- 4 cycle of GemOx and CA 19-9 is dropped to 3000 now. overall, mom much better now.

  4. #14
    Experienced User
    Join Date
    Jan 2017
    Posts
    66
    Sorry for your loss David, best wishes to you and your family through challenging times.
    December 16 - diagnosed with Acinar Cell Carcinoma w/ metastasis (7) to the liver
    January 17 - started treatment w/FOLFIRINOX
    February 17 - allergic to Neulasta, had to stop taking the shots
    March 17 - 50% reduction of tumor and metastasis after 4 treatments
    May 17 - CT scan after 8 treatments: tumor 17x22 mm and well defined
    May 17 - Stoped FOLFIRINOX after 9 cycles to prepare for surgery
    June 17 - Surgery 22 June, Distal pancreatectomy, removed tail/body, spleen and 6 lymph nodes (all negative)
    Genetic profiling done via PanCan: No BRCA mutations, but SMAD4, CTNNB1 and MLL2
    May 17 - April 19 CT show stabile disease - no new or enlarged mets
    June 19 - No sign og active cancer in liver or pancreas bed. One small lesion unidentified under diaphragm.

  5. #15
    Senior User
    Join Date
    Apr 2016
    Posts
    114
    I was checking this forum to see how he and you were doing. Thinking of you and your family.
    Jan 15, 2016 Father went to the ER with extreme abdominal pain...
    Jan 16, 2016 unofficially diagnosed with pancreatic cancer stage IV in the tail, too many mets in his liver to count, spleen and lung.
    Folfirinox-2 doses in February 2016
    March 2016-discont. chemo
    Apr 2016 severe onset of diabetes
    June 15, 2016 Celebrated he/my mom's 47th Wedding Anniversary eating pier fries/fried dough (I think this was his goal...to live to make it 47 years)
    June 15th, 2016 at 11:00 PM experienced sharp abdominal pain not managed with pain meds at home
    June 16th, 2016 at 3am went into the hospice home for pain management (walked into the facility).
    June 16th, 2016 by 11am...we learned this would be where he would spend his last days (shocked because at 9am he took a few sips of coffee)
    June 17th, 2016 at 8:20 pm...sun was setting, windows were open, birds chirping, my mom/me/my brother were all by his side with our hands on his body as he took his last breath at 68 years old.

  6. #16
    Senior User
    Join Date
    Dec 2012
    Posts
    309
    David,
    I've followed along through all of your trials, and, you sure have had a few. I know that the loss of your father will add to the burdens you carry, but I trust that you, your Mother, and your siblings will remember him as he was in better days.

    Take care,
    zim

  7. #17
    Experienced User
    Join Date
    Dec 2017
    Posts
    86
    I'm sorry to hear it. My sincere condolences to you and your family.
    Oct 2017 - Mom's annual checkup found elevated CA19-9 (280 kU/L)
    Nov 2017 - Diagnosed. Pancreatic Adenocarcinoma on body/tail of pancreas, ~3cm mass
    Dec 2017 - Distal pancreatectomy, 3.5*3*2 mass removed, 2/17 lymph nodes.
    Jan 2018 - CA19-9 dropped to 30 kU/L 4 weeks after surgery.
    Feb 2018 - 3 rounds of S1
    June 2018 - CA 19-9 from 50 to 170 KU/L. CT + PET confirmed recurrence at remainder of pancreas + peritoneal mets.
    July 2018 - Started Gem/Abraxane
    Sep 2018 - Peritoneal mets disappeared on CT. CA 19-9 dropped to 35.
    Nov 2018 - Finished 4th round of Gem/Abraxane. Clear CT. CA19-9 dropped to 22.

 

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