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Thread: Prostate Cancer - Looking for people who have had the Da Vinci Surgery with Dr. Vipul

  1. #31
    Top User garyi's Avatar
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    Apr 2017
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    1,282
    [QUOTE=Southsider;384700]The medical consensus is that ADT really improves the performance of radiation treatment, and there are studies that prove it.

    /QUOTE]

    There are NO conclusive studies that I have ever found that prove ADT "really improves the performance of radiation".
    72...LUTS for the past 7 years
    TURP 2/16,
    G3+4 discovered
    3T MRI 5/16
    MRI fusion guided biopsy 6/16
    14 cores; four G 3+3, one G3+4,
    CIPRO antibiotic = C. Diff infection 7/16
    Cured with Vanco for 14 days
    Second 3T MRI 1/17
    Worsened bulging of posterior capsule
    Oncotype DX GPS 3/17, LFP risk 63%, Likelihood of Low
    Grade Disease 81%, Likelihood of Organ Confined 80%
    RALP 7/13/17 Dr. Gonzaglo @ Univ of Miami
    G3+4 Confirmed, Organ confined
    pT2 pNO pMn/a Grade Group 2
    PSA 0.32 to .54 over 3 months
    DCFPyl PET & ercMRI Scans - 11/17
    A one inch tumor still in prostate bed = failed surgery
    All met scans clear
    SRT, 2ADT, IMGT 70.2 Gys @1.8 per, completed 5/18
    Radiation Procitis, and Ulcerative Colitis flaired after 20 years
    PSA <.006 9/18, .054 11/18, .070 12/18, .067 2/19, .078 5/19, .074 7/19
    We'll see....what is not known dwarfs what is thought to be fact

  2. #32
    Top User
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    1,636
    Quote Originally Posted by infallibleremission View Post
    I return to this forum, post-robotic prostatectomy. My recovery is going well, with incontinence being fixed and impotence getting better and better.

    The clinic where I had my surgery done recommended radiation therapy with hormone therapy (androgen deprivation) concurrently. Is there anyone that has followed any alternative methods to the ones stated above? Hormonal therapy brings a lot of side effects by itself and it isn't desirable, so I am looking for any methods or medications that don't involve it while managing to keep the PSA levels down. Thank you.
    There is only one magic bullet with this cancer. Early detection early treatment all the way down. Don't even think of anything else.

  3. #33
    Quote Originally Posted by Duck2 View Post
    Or maybe the doctor doesn’t believe he is curable and believes the treatment will help him extend cancer specific survival, which is what my URO believes because he said this course of treatment would help me. There was no mention of cure.

    I do not believe there is a cure for G8-10 T3 if surgery fails. If there is, the percentage cured is very low.


    I think this is a query for the doctor here. Although it was my understanding that radiation is more strictly a curative treatment- but ADT can be part of a protocol for a cure or to extend life
    Nov 2013 PSA 4.2 Biopsy Jan 2014- 1 core positive, 20% Gleason 6, doctor highly reco'ed robotic RP - 2nd opinion at UPMC April 2014, put on active surveillance. 2nd biopsy Feb 2015, results negative. PSA test Feb 2016, 3.5. 3rd Biopsy Feb 2016. 3 positive cores less than 5%, Gleason 6. Octotype DX done April 2016, GPS Score of 24--rated "Low risk". PSA test 8/2016, 3.2. PSA test 1/2018 2.2 (after 7 months of proscar) PSA test 7/2018 2.3, PSA test 7/2019 2.0


    DOB 1956, in Pittsburgh, USA

  4. #34
    Quote Originally Posted by Duck2 View Post
    Or maybe the doctor doesn’t believe he is curable and believes the treatment will help him extend cancer specific survival, which is what my URO believes because he said this course of treatment would help me. There was no mention of cure.

    I do not believe there is a cure for G8-10 T3 if surgery fails. If there is, the percentage cured is very low.
    Hi Duck2! Don't assume "very low." On our Forum, CURE implies permanent freedom from PCa recurrence. There are and have been several FBs in the G8-10 T3 category who are now likely in the CURE Category. However, since there is currently no way to know 100% for certain, they will continue to monitor their PSAs indefinitely. Thus certainty goes down the drain!

    When CURE is no longer a possibility, Control & Management mode is activated. The treatment armamentarium continues to rapidly grow and improve resulting in good quality of life for many many years.

    Certainly all of us would opt for CURE but when no longer possible, the next step is blocking/suppressing metastatic advancement.

    Good luck getting over your next treatment hump! I suspect that you will remain a long term member of "Club Zero!"

    MF
    Last edited by Michael F; 07-09-2019 at 01:11 PM.

  5. #35
    Top User garyi's Avatar
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    Quote Originally Posted by Michael F View Post
    ....On our Forum, CURE implies permanent freedom from PCa recurrence.....Thus certainty goes down the drain!
    Whatever degree of PCa one has, whatever treatment is chosen, and whatever the results are, a lifetime of monitoring PSA at some interval, a lifetime of living with treatment side effects, a lifetime of some risk of BCR, and a lifetime of adjusting to the 'new normal is part and parcel of the PCa package.

    It's why I object to the term 'cure' with this disease. It implies unrealistic and false hope. The best to be hoped for is lifetime remission.
    72...LUTS for the past 7 years
    TURP 2/16,
    G3+4 discovered
    3T MRI 5/16
    MRI fusion guided biopsy 6/16
    14 cores; four G 3+3, one G3+4,
    CIPRO antibiotic = C. Diff infection 7/16
    Cured with Vanco for 14 days
    Second 3T MRI 1/17
    Worsened bulging of posterior capsule
    Oncotype DX GPS 3/17, LFP risk 63%, Likelihood of Low
    Grade Disease 81%, Likelihood of Organ Confined 80%
    RALP 7/13/17 Dr. Gonzaglo @ Univ of Miami
    G3+4 Confirmed, Organ confined
    pT2 pNO pMn/a Grade Group 2
    PSA 0.32 to .54 over 3 months
    DCFPyl PET & ercMRI Scans - 11/17
    A one inch tumor still in prostate bed = failed surgery
    All met scans clear
    SRT, 2ADT, IMGT 70.2 Gys @1.8 per, completed 5/18
    Radiation Procitis, and Ulcerative Colitis flaired after 20 years
    PSA <.006 9/18, .054 11/18, .070 12/18, .067 2/19, .078 5/19, .074 7/19
    We'll see....what is not known dwarfs what is thought to be fact

 

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