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Thread: Worried I don't have long to Live......

  1. #11
    Super Moderator Top User Baz10's Avatar
    Join Date
    May 2011
    Then, it seems you have answered your own question.
    Lower lumbar problems (skeletal ) nerve impingement of which I don’t boast, but I’m a expert in pain having had it for years.
    If it bothers you so much, get a referred for a MRI scan, telling your doctor
    all and I stress all the facts.
    You never know, you may just get an answer that is far more comfortable than suspecting cancer.
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    12/09 Colonoscopy clear but picked up hospital infection.
    Aorta & femoral arteries occluded.
    Clot buster drugs put me in ICU with internal bleeding. 9 blood units later they got it under control.
    Aortobifemoral surgery 5th May. yughh.
    PET scan indicates clear
    DEXA bone scan clear
    13/5 CT showed "unknown" but no concern from docs.
    Inguinal lymph nodes and severe groin pain.
    Ultrasound and MRI show no nasties. Pheww
    Groin pain and enlarged lymph nodes still there.
    October -still the same pains but under semi control.
    Additional chest CT scan ordered for 11th November prior to surgery.
    Sinus surgery done and dusted.
    July 2014 PSA at 5.10. 2months of antibiotics in case of UTI, jan 2015 PSA at 7.20, 23/08 now 8.2, current 8.1
    Prostate Cancer confirmed Gleason 3+Marginal 4.
    Active surveillance continues.
    PET CT Aug 2017 indicated lung nodule changes
    CT Guided biopsy 7/09
    November 1 Vats Wedge section pathology Glomulated previous infection
    no Cancer.

    Not all's rosy in the garden, but see following.
    Stop grumbling Baz, your still alive and kicking so far.
    Age and illness doesn't define who we are, but more what we are able to do.
    Do what I love doing, when I can until I can't.
    and dodging bullets in the meanwhile, too many bullets at moment.

  2. #12
    Wouldn't that have been picked in the xrays I had ?

  3. #13
    My pain is in the back just below the left rib and about 2 to 3 inches left of of center of spine.....it's a constant dull burning pain sometimes better sometime worse......seems like xrays would have picked it up.....

  4. #14
    Super Moderator Top User ddessert's Avatar
    Join Date
    Oct 2013
    Blog Entries
    Not sure what you’re looking for as you know we cannot diagnose you but you don’t say what else you’re looking for.

    I do know that if you list a crap-load of symptoms and ask a bunch of cancer patients if they’ve ever had these symptoms, well, you can guess what the answer will be! Does that really tell you anything? No, it does not. Unless you were under the illusion that cancer patients all have a limited and fixed number of symptoms based on their particular type of cancer.

    No one here is going to tell you that you have cancer.
    No one here is going to tell you that you don’t have cancer.

    That is what we have doctors for. Yes, they make mistakes. But at least their mistakes are informed.

    They will be able to look at you in person. They can see if your weight might be causing spine/alignment problems. They can assess whether you’ve been punishing your GI tract with a poor diet. They can ask about your exercise regimen. Whether you’ve strained yourself. Whether you’re the type of person who doesn’t let themselves rest and heal properly now that they’re getting older. Whether your skin looks jaundiced. Whether you’ve changed the types of soap and shampoo you’ve used. Whether the local weather has been making others have the same symptoms. Allergies. Family issues. Recent deaths. Job stress. Gallstones. Cirrhosis of the liver. Diabetes. IBS. Etc. etc. etc.

    All of which are much more likely and less dire than pancreatic cancer.
    BRCA2 3398del5
    Dec 2010 - back/abd pain
    May 2011 - Unresectable stage III, 2.5cm tumor
    Jun-Aug 2011 - Gem/Cis, 9 rounds
    Oct-Nov 2011 - IMRT+Xeloda
    Oct 2011-Sep 2012 - shrinking tumor
    Feb 2012 - National Familial Pancreatic Study
    Aug 2012 - Downgraded to stage IIA, PGP
    Sep 2012 - Whipple, T3N0M0, 0.5cm tumor, 0/16 lymph nodes
    Dec 2012 - Quebec PanCan Study
    Sep 2012-May 2019 - NED
    Mar 2013-present - NCT01088789
    Jun 2019- NCT03805919

  5. #15
    So far no jaundice....as I can tell....

    my cbc blood work 5 months ago was normal including bilirubine.....

    Another symptom I have had which started before the back pain is bad joint pain.....especially my right big toe and my left middle finger where ithe joint meets the hand.....the big toe joint pain comes and goes......

    My life has changed drastically.....

  6. #16
    Administrator Top User lisa1962's Avatar
    Join Date
    Jan 2013
    Now more symptoms. Make an appointment as there is nothing else we can offer.

    Closing this thread now. If you should ever be diagnosed with cancer, we will be here for you but for now, seek medical advise by a medically trained physician.

  7. #17

    Worried I don't have long to Live......

    I've been having left side back pain just under rib for 6 months.....today I layed on my back and pressed on my stomach which made the pain in my left back worse.....which has me very worried that I don't have long to live.....

    Would I still be alive today after 6 months if it were pc ?

    Thanks in advance......

  8. #18
    Administrator Top User lisa1962's Avatar
    Join Date
    Jan 2013

    I have merged your newest thread in which you are asking the same questions. Your previous thread was closed and an explanation as to why was provided.

    We have offered our support and answered questions to the best of our ability. This newest thread, combined with the older one is now closed.

    Please refrain from posting here as you must discuss this with your physician. If you are ever diagnosed with cancer, we of course will be here for you but for now, only you are believing the worst case scenario.

    Please read our policies as it outlines reasons for closing threads.



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