A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.
Page 1 of 3 123 LastLast
Results 1 to 10 of 24

Thread: Stage 1 to Stage 4 Colon Cancer in 12 Months

  1. #1
    Regular User
    Join Date
    May 2018
    Posts
    28

    Question Stage 1 to Stage 4 Colon Cancer in 12 Months

    I have a thread I started last year, but it has been closed by a moderator - due, I guess, to not posting in almost a year.

    I had Stage 1 colon cancer last May and received a Right Hemicolectomy without any chemo or radiation - my oncologist explained at the time there was no benefit to receiving chemo with Stage 1 and even some Stage 2s. Fast forward to January 2019 when I had a new baseline CT scan and a very small nodule was noted on my right lung - I was then scheduled for a PET-CT scan (all of these scans ordered by my oncologist/hematologist), which was ruled inconclusive, the small spot barely lit up - the radiology oncologist could not rule out cancer, but stated it didn't act like cancer. Follow-up CT ordered for May 2019 - the nodule had grown from 7mm to 10mm, so a lung biopsy was ordered. I had the biopsy done a week ago, Thursday, received the results Monday - colon cancer met in my right lung - had Medi-Port placed yesterday. I meet with radiology oncologist and my regular oncologist Tuesday morning to determine the chemo and radiation regimens.

    I alternate between crying jags and believing I can overcome this. But, I really need some words of encouragement, if you all have any to offer. My onc said she couldn't do anything about the staging as that is how it is labeled when primary cancer cells show up in another organ, but that it was not a death sentence. I'm having some trust issues because all the medical peeps last year told me to get on with living my life - that the surgery removed all traces of the colon cancer (I even have a copy of the path report, which stated not a single cancer cell remained from the cancerous polyp removed during the colonoscopy), but, somehow, I'm now with adenocarcinoma in my right lung.

    I am so frightened of the chemo side effects, of becoming so ill I can't help my husband, of dying prematurely and not being able to see my little grandson grow up. Basically, I am just a mess, and my chest hurts where the port was inserted yesterday.

  2. #2
    Super Moderator Top User Baz10's Avatar
    Join Date
    May 2011
    Posts
    5,414
    Debs,
    Sorry you are back with this news.
    A couple of points I would like to make are !
    I have never ever heard of any specialist, surgeon or oncologist suggest or indeed state “not a single cancer cell remains” as this statement can never ever be correct.
    The reason being a individual or indeed a number of malignant cells are
    1. Impossible to detect by any current test.
    2. Professionally it would be grossly irresponsible to make such a statement.
    Non detectable is entirely different.
    Having said this stage 1 to 4 is quite possible as and I quote my eminent surgeon professor
    ” We believe we have got it all, yet I cannot guarantee there may be a single cell that may take up residence elsewhere in the future”
    It did, enough said.

    Please remember the past cannot be changed, your future can and this is what is being attempted by your medical team.
    Im sure our other members will. Hip in with answers and support.
    Barry
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    12/09 Colonoscopy clear but picked up hospital infection.
    Aorta & femoral arteries occluded.
    Clot buster drugs put me in ICU with internal bleeding. 9 blood units later they got it under control.
    Aortobifemoral surgery 5th May. yughh.
    PET scan indicates clear
    DEXA bone scan clear
    13/5 CT showed "unknown" but no concern from docs.
    Inguinal lymph nodes and severe groin pain.
    Ultrasound and MRI show no nasties. Pheww
    Groin pain and enlarged lymph nodes still there.
    October -still the same pains but under semi control.
    Additional chest CT scan ordered for 11th November prior to surgery.
    Sinus surgery done and dusted.
    July 2014 PSA at 5.10. 2months of antibiotics in case of UTI, jan 2015 PSA at 7.20, 23/08 now 8.2, current 8.1
    Prostate Cancer confirmed Gleason 3+Marginal 4.
    Active surveillance continues.
    PET CT Aug 2017 indicated lung nodule changes
    CT Guided biopsy 7/09
    November 1 Vats Wedge section pathology Glomulated previous infection
    no Cancer.

    Not all's rosy in the garden, but see following.
    Stop grumbling Baz, your still alive and kicking so far.
    Age and illness doesn't define who we are, but more what we are able to do.
    Motto
    Do what I love doing, when I can until I can't.
    and dodging bullets in the meanwhile, too many bullets at moment.

  3. #3
    Regular User
    Join Date
    May 2018
    Posts
    28
    Thank you, Barry - it was my Gastroenterologist who stated no cancer cells remained when I went for my 3-month checkup last August. I agree that it was irresponsible. I'm hoping someone here will chime in with even just anecdotal positive information. I'm having such a tough time trying to go about my everyday duties/pleasures because I'm so afraid I won't be around to enjoy them - believe me, the irony is not lost on me. Thanks again for your response.

  4. #4
    Moderator Top User Doug K's Avatar
    Join Date
    Dec 2014
    Posts
    585
    Quote Originally Posted by DebSeg View Post
    Thank you, Barry - it was my Gastroenterologist who stated no cancer cells remained when I went for my 3-month checkup last August. I agree that it was irresponsible. I'm hoping someone here will chime in with even just anecdotal positive information. I'm having such a tough time trying to go about my everyday duties/pleasures because I'm so afraid I won't be around to enjoy them - believe me, the irony is not lost on me. Thanks again for your response.
    Deb, so sorry to hear of this change of events. All of what Barry has said seems correct to me. As of this time, I cannot offer much except for you to continue to visit and update. You never know who might post and who might have something to add to your experience. I was fortunate to have not had a serious reaction to the chemo. I was fortunate as I have read things here that have happened to people. Also, the support group I attend monthly has had its share of members with difficult times.

    One other thought from that same support group, there are members there who have had stage 4 colonrectal cancers and have been coming to the group for many years. It was where I learned that a diagnosis isn't the end, it is the beginning. Good luck to you and keep us up to date.

    doug
    MyJourney:
    August 2004 Colonoscopy Clear
    June-July 2013 Abdominal Discomfort Upper Abdomen X-ray, UltraSound, CTScan all clear
    8.23.13 Diagnosed 5cm tumor on rectum wall: adenocarcinoma @age 66
    Aug-Sept2013 Met with Surgeon,Hematologist and Radiation oncologist
    Oct.-Nov.: Xeloda concurrent with radiation: 25 doses
    November CTScan, MRI and surgeon scoped: Tumor gone, scar tissue
    1.6.14 Surgery LAR: Rectum removed, sphincter remains: Pathology: no lymph node,
    Tumor downgraded from Possible T3 to T2
    Feb. - April Chemo:5 FU and Oxilaplatin:6 infusions over 14 weeks
    9.4.14 ColonoscopyClear,CT Clear
    Dec.14 Follow up BlWk +,CEA .9
    Mar.15Follow up BlWk +,CEA .6
    June.15 Follow up BlWk +,CEA .7
    Sept2015Followup BlWk + CEA .7 CTScanClear NED
    Dec2015SurgicalHerniaRepair
    Sept2016Followup BlWk + CEA .7 CTScanClear NED
    Sept-Oct2017Followup All clear NED
    Sept-Oct2018CTScan+Clear Bldwk+
    Mar2019Bldwk+NED
    Continue ColoRectal Support Group monthly

  5. #5
    Regular User
    Join Date
    May 2018
    Posts
    28
    Thank you, Doug - you provided some comforting words.

  6. #6
    Moderator Top User Fourlegsgood's Avatar
    Join Date
    Aug 2011
    Posts
    977
    Deb,

    My close friend in the next village was diagnosed with stage 4 colon cancer 8 years ago. He still goes for check ups but he is NED (no evidence of disease). It was a lumpy road but he got there.

    The main thing is not to view yourself as a statistic and to realise that it is not necessarily a preset path. However your mental and physical state play a part in how well you get on. If there might be future operations or chemo then being fit will help. I found that doing exercise pre operation and treatment made me feel better and was also a good distraction.

    Also, I know your faith in your team might be a bit shaken but somehow you have got to get that trust back and believe that was they say really is the best shot for you.

    Nick
    Age 1/2 way to 120 plus 1. Symptom of blood in stools May 2011. Colonoscopy June 2011 confirmed rectal cancer. CT scan June 2011 showed no spread to other organs. Anterior resection July 2011 plus 50% bowel removed due to thickening observed during operation. Biopsy confirmed stage 2 in rectum only. Completed 8 cycles of precautionary capecitabine (4600mg Xeloda). Returned to horse riding 6 weeks post op, jumping 2weeks later and first competition 2 weeks after that. July 2012 - CT scan clear. June 2014 - CT scan clear. December 2014 - Colonoscopy clear. July 2017 - 6 year CT scan clear.

  7. #7
    Regular User
    Join Date
    May 2018
    Posts
    28
    Thank you for your response, Nick - hearing about your friend is encouraging. I was supposed to meet with my medical team Tuesday, 6/14, but as we were driving into San Antonio from our tiny rural community (about 45 miles), our practically new truck froze up in the middle of the expressway. We had to call a tow truck to take it back to the dealership and I had to cancel my appointments. We got the truck back today and I meet with the team on Tuesday next week. I am feeling more optimistic, especially because my oncologist has really stayed on top of her game with me, and she has been doing some great hand-holding as well.

    As for getting into better physical condition - yes, I have been working on that for a few months now. Carefully counting carbs, adding fiber and protein, and "good-for-you" fats, and walking at least 1.5 -2.0 miles per day. 'Lost 18 pounds in 12 weeks. It's getting unbearably hot here now, so I need to find an indoor place to walk - back in the day, people would walk shopping malls for their health, now there are hardly any malls open any where.

    Thank you again!
    Last edited by DebSeg; 06-15-2019 at 04:58 AM. Reason: Typo correction.

  8. #8
    Moderator Top User Fourlegsgood's Avatar
    Join Date
    Aug 2011
    Posts
    977
    Deb,

    Good luck with the meet.

    And exercise really is a 'super drug'. Well done for what you have done and keep it up.

    Nick
    Age 1/2 way to 120 plus 1. Symptom of blood in stools May 2011. Colonoscopy June 2011 confirmed rectal cancer. CT scan June 2011 showed no spread to other organs. Anterior resection July 2011 plus 50% bowel removed due to thickening observed during operation. Biopsy confirmed stage 2 in rectum only. Completed 8 cycles of precautionary capecitabine (4600mg Xeloda). Returned to horse riding 6 weeks post op, jumping 2weeks later and first competition 2 weeks after that. July 2012 - CT scan clear. June 2014 - CT scan clear. December 2014 - Colonoscopy clear. July 2017 - 6 year CT scan clear.

  9. #9
    Regular User
    Join Date
    May 2018
    Posts
    28
    I have been kept very busy by my oncologist - seeing a Thoracic surgeon, taking a chemo teaching class, visiting the radiologists, etc.

    I saw the surgeon this last Thursday morning, and am scheduled for lung surgery July 8 at Methodist Hospital in the South Texas Medical Center in San Antonio. He will try doing a wedge resection which will have me in ICU for a day or two, then a regular room for 4-5 days until lung drain can be removed. If he runs into problems, it will be a lobectomy which will be longer in ICU and regular hospital room. The surgeon has spoken to my oncologist and radiation oncologist and chemo will be postponed until I recover.

    I see my medical oncologist (MO) tomorrow at 2:00, then I have to go back to Methodist Wednesday morning to do all the pre-admission testing (labs, x-rays, EKG, etc.). Hopefully, by the end of July I'll start chemo and be done with that after the first of the year - 6 months. The chemo regimen is Folfox + Bevacizumab (Avastin) every two weeks at the infusion center then a pump with more of the chemo drugs to take home for the next 46 hours. Because we live quite a distance from Texas Oncology, the infusion nurses will teach me how to disconnect the pump from my port so that we can keep the long drives to a minimum.

    My poor Dad, he's nearly 83 and feels this should be happening to him and not me - he still smokes 2 packs a day, and I've been quit for nearly 14 months, but I have to keep reminding him that I don't have lung cancer - I have metastatic colon cancer in my lung - a single small nodule. All the above said, my MO, RO, and surgeon all state this approach is the concerted effort for a cure, not just treatment - it was very reassuring to see the word "Cure" used in my online records as to the purpose of the treatment plan. I have to believe that or else I will go nuts.

    I have been reading the Folfox sticky on this board and it has really helped to prepare me for the chemo journey. I just hope I will be as strong as Deb was in her experience - interesting that she is also in central Texas and we are both named Deb and very close to the same age.

  10. #10
    Super Moderator Top User Baz10's Avatar
    Join Date
    May 2011
    Posts
    5,414
    Debs,
    if you read my recent history, I had a right wedge section 18 months ago as they were convinced I had lung cancer either as a secondary or primary.

    Fortunately it turned out to be old scar tissue from a previous infection.

    The op itself was frankly no big deal, as usual for me I developed complication with sepsis and kidney failure which prolonged my stay is both ICU and HDU.

    Thereafter with the exception of some easily manageable nerve pain recovery was quite easy.
    lets hope they get the little blighter out during the wedge and you progress with the chemo to mop up any other potential little blighters that may be floating about in your system.
    Good luck,
    Barry
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    12/09 Colonoscopy clear but picked up hospital infection.
    Aorta & femoral arteries occluded.
    Clot buster drugs put me in ICU with internal bleeding. 9 blood units later they got it under control.
    Aortobifemoral surgery 5th May. yughh.
    PET scan indicates clear
    DEXA bone scan clear
    13/5 CT showed "unknown" but no concern from docs.
    Inguinal lymph nodes and severe groin pain.
    Ultrasound and MRI show no nasties. Pheww
    Groin pain and enlarged lymph nodes still there.
    October -still the same pains but under semi control.
    Additional chest CT scan ordered for 11th November prior to surgery.
    Sinus surgery done and dusted.
    July 2014 PSA at 5.10. 2months of antibiotics in case of UTI, jan 2015 PSA at 7.20, 23/08 now 8.2, current 8.1
    Prostate Cancer confirmed Gleason 3+Marginal 4.
    Active surveillance continues.
    PET CT Aug 2017 indicated lung nodule changes
    CT Guided biopsy 7/09
    November 1 Vats Wedge section pathology Glomulated previous infection
    no Cancer.

    Not all's rosy in the garden, but see following.
    Stop grumbling Baz, your still alive and kicking so far.
    Age and illness doesn't define who we are, but more what we are able to do.
    Motto
    Do what I love doing, when I can until I can't.
    and dodging bullets in the meanwhile, too many bullets at moment.

 

Similar Threads

  1. Replies: 2
    Last Post: 12-30-2014, 05:05 PM
  2. Psa of 0.1 after op at 6 months no change, at 9 months number is 0.8.
    By Lonemoose in forum Prostate Cancer Forum
    Replies: 13
    Last Post: 11-20-2014, 05:56 PM
  3. Replies: 2
    Last Post: 09-12-2012, 12:31 AM
  4. cancer in my colon, but not colon cancer
    By joepet in forum Colon Cancer and Rectal Cancer Forum
    Replies: 0
    Last Post: 12-20-2008, 04:47 AM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •