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Thread: Happy anniversary!

  1. #11
    Thanks for the biopsy info Kendadi. So it was about a year between the first negative biopsy and the saturation biopsy, then another 18 month until the MRI (or MRI's? It appears you had two, the second being 3T)... And after that everything moved quickly. Excellent move on both you and your doctor recognizing the urgency of the situation.

    It's surprising that the saturation biopsy did not turn up anything. I suppose this would lead to us (FB guys) asking for number of cores and % of each core and specific zone or location for each... the stuff that techies love to fill our brains with and discuss possibilities. But not necessary. What happened for you was indeed amazing and given your relatively low PSA and slow rise (long DT) surprising that your doc pushed you thru so quickly... or perhaps you pushed him. Makes me somewhat envious to be honest.

    If everyone recognized the significance of an elevated and steadily rising PSA and acted upon it appropriately, there would be a LOT less metastatic and castrate resistant PCa in the world. The lesson learned from your case is that YES, high grade PCa can be stopped before it advances if both the patient and the physician treat it as the serious disease that it is.

    Thank you for sharing your story with us.
    Late 2012: PSA 4, age 62 all DRE's 'normal'
    Early 2014: PSA 9.5, TRUS biopsy (false) negative
    2015: PSA's 12 & 20, LOTS of Cipro ... Mar'16: PSA 25, changed Urologist
    Jun'16: MRI fusion biopsy, tumor right base, 6/16 cores: 2-40%+2-100% G8(4+4)
    Aug'16: DaVinci RP, -SM, 11 LN-, 53g, 25% involved, PNI, 6mm EPE, BL SVI, pT3B

    Jan'17: started Lupron ADT, uPSA's ~.03
    May'17: AMS800 implanted, revised 6/17
    Aug'17: 39 tx (70 Gy) RapidArc IGIMRT
    Jan'18-Jan 2019: PSA's <0.008, T=9
    Apr'18: Dx radiation colitis, Oct'18: Tx sclerosing mesenteritis

    "Everyone you meet is fighting a battle you cannot see"
    Mrs: Dec 2016
    Dx stage 4 NHL/DLBCL, Primary Bone Lymphoma
    spinal RT boost+6X R-CHOP21+IT MTX via LP. Now in remission
    Read our story at CancerCoupleBlog

  2. #12
    Top User
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    I'll request you put your PSA history and two negative biopsies in chronological order into your signature. It will be helpful to see for others the difficulty in finding cancer in the face of strong PSA data and the impact of negative biopsies.

  3. #13
    Regular User
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    H another. Please review my signature.
    PSA: 2/2011: 2.7 ( age fifty eight).
    2/2013: 3.5
    3/2014: 3.5
    6/2015: 4.3 10/2015 neg. biopsy
    3/2016: 6.0.
    7/2016: 8.0 9/2016 neg. saturation biopsy
    1/2017: 8.0
    10/2017: 8.2
    4/2018: 9.8. 4/2018 MRI PIRADS 5
    5/2018 3T MRI PIRADS 5
    Normal DRE throughout
    Laparoscopic radical prostatectomy on 6/14/2018
    Pathology report: Gleason 4+5, with tertiary grade 3 confined to gland. Grade group 5.
    Seminal vesicles neg. bladder neck margin, right apex, lymph nodes neg.
    pTNM stage: p T2 NO
    Prostate weight:51g. 70% involved by tumor.
    EPE NEG.
    LVI NEG.
    Perineural invasion present.
    3 month PSA: <0.1 ng/ml
    6 month PSA: <0.1 ng/ml
    9 month PSA: <0.1 Ng/ml
    12 month PSA: <0.1 Ng/ml

  4. #14
    Regular User
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    May 2018
    Posts
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    Hi another. Please review revised signature
    PSA: 2/2011: 2.7 ( age fifty eight).
    2/2013: 3.5
    3/2014: 3.5
    6/2015: 4.3 10/2015 neg. biopsy
    3/2016: 6.0.
    7/2016: 8.0 9/2016 neg. saturation biopsy
    1/2017: 8.0
    10/2017: 8.2
    4/2018: 9.8. 4/2018 MRI PIRADS 5
    5/2018 3T MRI PIRADS 5
    Normal DRE throughout
    Laparoscopic radical prostatectomy on 6/14/2018
    Pathology report: Gleason 4+5, with tertiary grade 3 confined to gland. Grade group 5.
    Seminal vesicles neg. bladder neck margin, right apex, lymph nodes neg.
    pTNM stage: p T2 NO
    Prostate weight:51g. 70% involved by tumor.
    EPE NEG.
    LVI NEG.
    Perineural invasion present.
    3 month PSA: <0.1 ng/ml
    6 month PSA: <0.1 ng/ml
    9 month PSA: <0.1 Ng/ml
    12 month PSA: <0.1 Ng/ml

  5. #15
    Newbie Regular User
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    Jun 2019
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    Good luck!
    One question: does <0.1 enough? I thought we should test higher accuracy?

  6. #16
    Moderator Top User HighlanderCFH's Avatar
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    7,154
    Quote Originally Posted by jerryice View Post
    Good luck!
    One question: does <0.1 enough? I thought we should test higher accuracy?
    <0.1 is ZERO, so that would generally suffice unless dealing with a case with a very high Gleason score.
    July 2011 local PSA lab reading 6.41 (from 4.1 in 2009). Mayo Clinic PSA 9/ 2011 = 5.7.
    Local uro DRE revealed significant BPH, no lumps.
    PCa Dx Aug. 2011 age of 61.
    Biopsy DXd adenocarcinoma in 3/20 cores (one 5%, two 20%). T2C.
    Gleason 3+3=6. CT abdomen, bone scan negative.
    DaVinci prostatectomy 11/1/11 at Mayo Clinic (Rochester, MN), nerve sparing, age 62.
    Surgeon was Dr. Matthew Tollefson, who I highly recommend.
    Final pathology shows tumor confined to prostate.
    5 lymph nodes, seminal vesicules, extraprostatic soft tissue all negative.
    1.0 x 0.6 x 0.6 cm mass involving right posterior inferior, right posterior apex & left
    mid posterior prostate. Right posterior apex margin involved by tumor over 0.2 cm length,
    doctor says this is insignificant.
    Prostate 98 grams, tumor 2 grams.
    Catheter out in 7 days. No incontinence, minor dripping for a few weeks.
    Seven annual post-op exams 2012 through 2018: PSA <0.1
    Semi-firm erections without "training wheels," usable erections with 100mg Sildenafil.
    NOTE: ED caused by BPH, not the surgery.

 

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