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Thread: Two Year Reprieve at an end

  1. #11
    Top User garyi's Avatar
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    Quote Originally Posted by Carmel View Post

    I have not heard of more than one type of PET scan. You've given me information to research. Thank you. I want to be prepared with questions when we meet with the oncologist on Tuesday.

    Carmel
    Carmel....here is a good starting point to learn about PET scans: https://pcnrv.blogspot.com/search/label/PET

    Allen is a true expert. Good luck!
    72...LUTS for the past 7 years
    TURP 2/16,
    G3+4 discovered
    3T MRI 5/16
    MRI fusion guided biopsy 6/16
    14 cores; four G 3+3, one G3+4,
    CIPRO antibiotic = C. Diff infection 7/16
    Cured with Vanco for 14 days
    Second 3T MRI 1/17
    Worsened bulging of posterior capsule
    Oncotype DX GPS 3/17, LFP risk 63%, Likelihood of Low
    Grade Disease 81%, Likelihood of Organ Confined 80%
    RALP 7/13/17 Dr. Gonzaglo @ Univ of Miami
    G3+4 Confirmed, Organ confined
    pT2 pNO pMn/a Grade Group 2
    PSA 0.32 to .54 over 3 months
    DCFPyl PET & ercMRI Scans - 11/17
    A one inch tumor still in prostate bed = failed surgery
    All met scans clear
    SRT, 2ADT, IMGT 70.2 Gys @1.8 per, completed 5/18
    Radiation Procitis, and Ulcerative Colitis flaired after 20 years
    PSA <.006 9/18, .054 11/18, .070 12/18, .067 2/19, .078 5/19, .074 7/19
    We'll see....what is not known dwarfs what is thought to be fact

  2. #12
    Carmel, the PSA doubling time would be of interest. Your husband could wait with HT until his PSA rises above a level of 5 or even 10, which might be some years down the road. This would better his chances to locate possible metastases in a PET scan.
    --------------
    DOB 1965
    PM me for PSA graphing service & detailed story
    PSA 6.8 11/17
    PSA 7.5 04/18
    MRI 05/18 inconclusive, PI-RADS3?
    PSA 11.8 01/19
    PSA 10.1 02/19
    12 core random biopsy 02/19 (4+3)=7 suspicion of vascular invasion, grade 4 cribriform pattern, no PTEN loss
    Bone scan negative 04/19
    PSA 13.3 04/01/19 pre-surgery significant urinal symptoms and some ED
    RRP 04/04/19
    pT2c pN0 (0 of 7 lymph nodes positive) pL0 pV0 R0(local) Pn1
    Perineural growth predominantly on right hand side, tumour diameter 15mm 90% G4 10% G3
    Prostatic parenchyma with glandular hyperplasia and chronic granular, partly purulent inflammation.
    PSA 0.14 04/30/19
    PSA 0.02 05/13/19
    PSA 0.008 06/04/19

  3. #13
    Top User garyi's Avatar
    Join Date
    Apr 2017
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    1,288
    Quote Originally Posted by KarlEmagne View Post
    Carmel, the PSA doubling time would be of interest. Your husband could wait with HT until his PSA rises above a level of 5 or even 10, which might be some years down the road. This would better his chances to locate possible metastases in a PET scan.
    Karl is giving you excellent advise, Carmel.
    72...LUTS for the past 7 years
    TURP 2/16,
    G3+4 discovered
    3T MRI 5/16
    MRI fusion guided biopsy 6/16
    14 cores; four G 3+3, one G3+4,
    CIPRO antibiotic = C. Diff infection 7/16
    Cured with Vanco for 14 days
    Second 3T MRI 1/17
    Worsened bulging of posterior capsule
    Oncotype DX GPS 3/17, LFP risk 63%, Likelihood of Low
    Grade Disease 81%, Likelihood of Organ Confined 80%
    RALP 7/13/17 Dr. Gonzaglo @ Univ of Miami
    G3+4 Confirmed, Organ confined
    pT2 pNO pMn/a Grade Group 2
    PSA 0.32 to .54 over 3 months
    DCFPyl PET & ercMRI Scans - 11/17
    A one inch tumor still in prostate bed = failed surgery
    All met scans clear
    SRT, 2ADT, IMGT 70.2 Gys @1.8 per, completed 5/18
    Radiation Procitis, and Ulcerative Colitis flaired after 20 years
    PSA <.006 9/18, .054 11/18, .070 12/18, .067 2/19, .078 5/19, .074 7/19
    We'll see....what is not known dwarfs what is thought to be fact

  4. #14
    Regular User
    Join Date
    Apr 2017
    Posts
    17
    The PSA doubling time is 3.5 months.

    Bone scan and CAT scan did not show cancer.

    My husband has elected not to go for a PET scan just yet. The high rate of false positives for PET scans (75%? Seriously?) is not encouraging. (Edited to add: the PET scan will definitely pick up the cancer, but it will also pick up other spots which are NOT cancer.)

    The medical oncologist wants a PSA every six weeks. Next PSA will be early August. My husband will re-evaluate a PET scan then.

    There is actually a bright side to my husband's prostate cancer: we cherish every day we spend together.
    Last edited by Carmel; 07-19-2019 at 02:43 AM.
    My 57-year-old husband was diagnosed with aggressive prostate cancer March 31, 2017
    (Previous biopsy 2015 did not detect cancer)
    3/2017: PSA 21. Fusion biopsy; two ROI, 16 cores; Stage T1, Gleason score 4+5 = 9
    4/2017: Pre-surgical bone scan and CT scan both clear. No evidence of cancer in bones or lymph nodes.
    6/2017: DaVinci robotic prostatectomy; biopsy of lymph nodes and prostate during surgery did not show cancer outside the prostate.
    6/2017: Post-surgery biopsy showed cancer in base of seminal vesicles, but contained with clean margins.
    7/2018: PSA levels increased steadily following surgery. Lupron followed by 32 days of radiation on the prostate bed.
    7/2019: PSA levels rising following radiation; after 9 months, PSA is .75 with a doubling time of 3.5 months.
    7/2019: CAT scan and bone do not show location of cancer. PET scan recommended.

 

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