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Thread: Pathology report for Biopsy shows Gleason 10. Any advice?

  1. #21
    Quote Originally Posted by Southsider View Post
    But your PSA score is definitely not 9.72, as that would indicate they used an expensive ultra sensitive PSA test- which would be pointless before treatment.
    Many facilities use nothing but tests that go out to two decimal places. I just realized that his PSA issue was resolved. That was the code not his PSA reading.
    __________________________________________________ __________________________________________________
    JesseW,

    My best advice is breathe deeply and be calm. When I think of how my heart would race when I would go to the lab to get my post surgical PSA tests 15 years ago I think of all the unneeded, unproductive stress.

    Think of what you can do. Get advice. Make a list. Do it, and then focus on other things the best you can. Concern and action is good, worry is NOT!

    They did not get all of my Gleason 8 during surgery 15 years ago and I am still symptom-free. There is much you can and should do but there is a lot that you can't control so focus on enjoying life. When I sat at PC's searching the internet for 60 hours a week I used to wonder if such searching extended my life a few years and I spent those years searching for cancer treatments, what had I gained. Don't get me wrong. There is a place for concern and action but a truck can run over me tomorrow and I will be annoyed at all the worry I wasted on PCa.
    Last edited by Hawk; 07-11-2019 at 03:38 PM.
    History: age 53 It took 3 biopsies (34 cores) to find 2 cores 4+4 Gleason 8
    Lap RP at MSKCC Apr 2004, age 54 All neg margins, nodes & structures. (T2a).
    Post RP PSA: <.1 until Feb, 08 (46 mos) PSA 0.1 - I then got sensitive tests -> 2008: Feb 0.06,
    May-08 0.09 - Jun-08 0.10, - Aug-08 0.10, - Nov-08 0.15
    SRT Dec-2008 ---Post SRT PSA 2009, Feb-09 0.10, May-09 0.09, Aug-09 0.06, Dec-09 .04, - 2010 Mar-09 0.04, 2011 .02, 2012 .02,
    STARTED UP Feb 2014-0.06, Jul-2015 0.10, Oct-2015 0.10, Feb-2016 0.15, Jun-2016 0.17, Dec-2016 0.25, Jan-2019 0.74, Jun -2019 0.72
    Aug 2018 Auximin scan - nothing
    Had an inflatable penile implant 2018 for ED. Best decision ever https://www.peyroniesforum.net/index...oard,56.0.html

  2. #22
    Senior User
    Join Date
    Feb 2017
    Posts
    169
    Take a deep breath. Maybe a couple of deep breaths.

    If you check my stats, I ended up with G9, a couple of lymph nodes, etc.

    I had a RALP, chemo, 69 Gy of radiation, and just completed two years of ADT.

    I’ve been a member of “Club Zero” since 6 months after the RALP. That was 2 years ago.

    It’s not easy to do this a day at a time, but you’ve got a lot of company by your side.

  3. #23
    Newbie New User
    Join Date
    Jul 2019
    Posts
    5
    Quote Originally Posted by BAB View Post
    Take a deep breath. Maybe a couple of deep breaths.

    If you check my stats, I ended up with G9, a couple of lymph nodes, etc.

    I had a RALP, chemo, 69 Gy of radiation, and just completed two years of ADT.

    I’ve been a member of “Club Zero” since 6 months after the RALP. That was 2 years ago.

    It’s not easy to do this a day at a time, but you’ve got a lot of company by your side.
    Your absolutely right. Time to throttle it back. Thanks everybody for the great advice! The calmness and serenity on this board is really up lifting. I have my scans on Monday and meet with the oncologist on Tuesday. I’m looking forward to getting after it and getting to the position of providing support as well!
    Last edited by Jessew; 07-12-2019 at 11:24 AM.

  4. #24
    Top User
    Join Date
    Aug 2016
    Posts
    1,694
    If you intend to hang out here, and I recommend you do, please complete your signature. The benefit is primarily yours. It keeps the salient facts of your profile front and center and current.

    It does help us to remember as well as questions arise. The mind is a slippery character and the temptation is to try to out think or rationalize our way through this disease. It's a lot simpler than most of us want to accept.

    I haven't found a better forum.

  5. #25
    Quote Originally Posted by Another View Post
    If you intend to hang out here, and I recommend you do, please complete your signature. The benefit is primarily yours. It keeps the salient facts of your profile front and center and current.

    It does help us to remember as well as questions arise. The mind is a slippery character and the temptation is to try to out think or rationalize our way through this disease. It's a lot simpler than most of us want to accept.

    I haven't found a better forum.
    Sometimes when I read a signature-less post, I think I actually remember the details for that username fairly well -- only to realize the signature I'm thinking of belongs to someone else I would add that it's also very helpful to update your signature when you get a new piece of information, be it a PSA result or a thumbnail summary of a consult with a specialist. Since there's a limit to signature length (1000 characters), if you run out of space, you can condense older history to make room for newer. For example, many biopsy details become less important after you get the path report if you've done RP.

  6. #26
    Top User
    Join Date
    Aug 2016
    Posts
    1,694
    I also use it in email correspondence with my brothers.

    When hiking new paths there is an easily forgotten exercise. Look back often to see and remember the path back. Having a memory of where we have been is essential to knowing where we are.

    I considered posting it on my refrigerator, but wisely realized it rose to the level of obsession. I hang out here instead. : )
    Last edited by Another; 07-12-2019 at 02:13 PM.

 

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