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Thread: Post op followup.

  1. #1

    Post op followup.

    Hi FB and FS. My husband and I go for post op tomorrow. Any questions I need to ask.? Also, I see some signatures show to have had psa done at this appt(5-6weeks) and some didn't until 3 mths.. Should I ask for one now just to see where we stand or with his final path, we should be ok to wait for 3 mths. If for some reason, psa isn't undetectable I want to know early. Prayers that it is.
    Last edited by Honeybun078; 07-10-2019 at 03:26 PM.

  2. #2
    Hi Honeybun, it's been only a little over a month since surgery -- I would take my doc's advice whatever he suggests-- perobably to wait. Some men take a bit longer to reach undetectable after RP and you don't want to be unnecessarily worried. But you can ask what sensitivity PSA test he likes to do -- how many decimal places.

    Djin
    69 yr at Dx, BPH x 20 yr, 9 (!) neg. Bx, PCA3-
    7-05-13 TURP for BPH (90→30 g) path neg., then 6-mo. checks
    6-06-17 Nodule on R + PSA rise on finasteride: 3.6→4.3
    6-28-17 Bx #10: 2/14 cores: G10 (5+5) 50% RB, G9 (4+5) 3% RLM
    Bone scan, CTs, X-rays: neg.
    8-7-17 Open RP, neg. frozen sections, Duke Regional
    SM EPE BNI LVI SVI LNI(5L, 11R): negative, PNI+, nerves spared
    pT2c pN0 pMX acinar adenocarcinoma G9 (4+5) 5% of prostate (4.5x5x4 cm, 64 g)
    11-10-17 Decipher 0.37 Low Risk: 5-yr met risk 2.4%, 10-yr PCa-specific mortality 3.3%
    Dry; ED OK with sildenafil
    9-16-17 (5 wk) PSA <0.1
    LabCorp uPSA, Roche ECLIA:
    11-28-17 (3 m ) 0.010
    02-26-18 (6 m ) 0.009
    05-30-18 (9 m ) 0.007
    08-27-18 (1 yr.) 0.018 (?)
    09-26-18 (13 m) 0.013 (30-day retest)
    11-26-18 (15 m) 0.012
    02-25-19 (18 m) 0.015
    05-22-19 (21 m) 0.015
    08-28-19 (2 yr. ) 0.016
    Avg. = 0.013

  3. #3
    Will definitely take his recommendation but I noticed even in yours, you had a test at 5 weeks which is where my husband is at. Just wondering if we should expect a test this soon or is standard 3 mths. He mentioned appt was for talking about continence and Ed.. Which doesn't seem like a big issue at this time since he's pretty much regained urinary function and have been able to establish an erection.. I hope we get a test just to see if we are undetectable at this point.

  4. #4
    Quote Originally Posted by Honeybun078 View Post
    Will definitely take his recommendation but I noticed even in yours, you had a test at 5 weeks which is where my husband is at. Just wondering if we should expect a test this soon or is standard 3 mths. He mentioned appt was for talking about continence and Ed.. Which doesn't seem like a big issue at this time since he's pretty much regained urinary function and have been able to establish an erection.. I hope we get a test just to see if we are undetectable at this point.
    Funny you should ask. I was scheduled for my first PSA at 6 weeks post, but I had to stop by to pickup paperwork at his office front desk. Just as I started driving away, his nurse called asking if I would like to come back to do a PSA test. I said isn't it a bit early? -- and she said yes, but we can do it anyway and save me a trip back in a week. I think my uro/surgeon may have been as curious as I was after the surgery, which went well

    It was just the standard test, which came back <0.1. So yes, PSA may drop down in as little as 4-5 weeks, but not always. Had it been the uPSA test which I did thereafter, and it didn't come back very low, I might have been unnecessarily depressed. My doc thinks 6 weeks is enough, but some Brothers have had to wait longer to see the full, confirmatory PSA drop to (essentially) undetectable.

    There's nothing wrong with an early test, just keep the above in mind. Some docs like 6-8 weeks, some even 3 months.

    Djin
    Last edited by DjinTonic; 07-10-2019 at 03:55 PM.

  5. #5
    Senior User mostth's Avatar
    Join Date
    Feb 2019
    Posts
    130
    Had my surgery early April, just sent my blood day before yesterday to Mayo for my first test. Anxiously waiting for results.
    DOB 9/6/59
    1/21/19 PSA 7.5.
    Bx 2/8/19
    G7 (4+3), 60% pattern 4
    Reffered to Mayo Clinic Rochester, MN
    RALP 4/3/19 Igor Frank
    Adenocarcinoma G8 (4+4)
    Mass (3 x 1.5 x 1.2 cm)
    Tumor involves both seminal vesicles.
    Extraprostatic soft tissues, SM, EPE, BNI, LNI (24): neg., SVI+
    pT3b pN0 Mx
    7/19 3mo PSA 0.74
    7/24 retest PSA 0.78
    8/14 3 mo. Lupron inj.
    9/10 Start radiation 38 doses
    10/31 Radiation complete
    11/5 2nd 3 mo Lupron inj.

  6. #6
    Top User
    Join Date
    Aug 2016
    Posts
    1,928
    The first one is the toughest wait. You are not alone. Hang tough.
    Born 1953
    family w/PCa; grandfather, 3 brothers
    07-12-04 PSA 1.90
    07-10-06 PSA 2.02
    08-30-07 PSA 3.20
    12-01-11 PSA 5.69 Internist recommends urologist, I say no
    05-16-12 PSA 4.76 manipulate w/diet & supplements
    12-11-12 PSA 5.20, Health system changes to 3 years on testing
    03-07-16 PSA 7.20 Internist adamant on urologist
    DRE smooth, enlarged
    03-14-16 TRUS biopsy-prostatic adenocarcinoma 1%-60% across 8 of 12 samples, Gleason 3+3=6
    03-31-16 MRI pelvis w/o dye
    05-04-16 DaVinci prostatectomy, nerve sparing, Dr. Kent Adkins - recommend
    Final Path; weight 65g, lymph nodes, seminal vesicles, capsule, margin all negative, Gleason 3+4=7, Tumor volume 35%, +pT2c
    Catheter out - 16 days
    Incontinence at 6mos is minimal – no pad
    Cialis 3x/wk & Viagra on occasion
    Begin self-injection needle therapy for erections, stop after 6 due to onset of Peyronie’s
    Erections 100% - 14 months
    5-21-19 PSA <0.02, Zero Club 3.5 years

  7. #7
    @Another it is but I'll be fine..

 

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