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Thread: Life after Lupron

  1. #1
    Experienced User
    Join Date
    Jul 2017
    Posts
    75

    Life after Lupron

    Hey guys, the Lupron will be out of my system at the end of the month. years... Will my energy come back some? Will my brain clear from the fog? Any other advice that you can give a guy? I'm wondering if I will stay on any maintenance drugs? Oh, how long before hot flashes go away? Been controlling them ok w/ Megesterol
    06/16 TURP, Diagnosed Gleason 6, wait & watch
    02/17 Biopsy - Gleason 9
    05/3017 RALP, cancer in margin walls and seminal vesicles
    No cancer in 34 lymph nodes
    06/27/17 PSA 0.04
    06/29/17 started Lupron,
    07/21/17 Follow up w/Emory PSA 0.01
    08/29/17 Started Zytiga
    10/23/17 Started radiation 39 treatments
    12/18/17 End radiation
    12/18, End Zytiga and prednisone
    03/19 PSA .06
    03/19 Last Lupron shot and starting Casodex until end of July

  2. #2
    Moderator Top User HighlanderCFH's Avatar
    Join Date
    Nov 2011
    Posts
    7,177
    Here's a link to an online article I found.

    https://www.drugs.com/sfx/lupron-side-effects.html

    I found it under the search phrase, "side effects of Lubron." If you Google this, you'll find other articles also.

    Hope this helps!
    July 2011 local PSA lab reading 6.41 (from 4.1 in 2009). Mayo Clinic PSA 9/ 2011 = 5.7.
    Local uro DRE revealed significant BPH, no lumps.
    PCa Dx Aug. 2011 age of 61.
    Biopsy DXd adenocarcinoma in 3/20 cores (one 5%, two 20%). T2C.
    Gleason 3+3=6. CT abdomen, bone scan negative.
    DaVinci prostatectomy 11/1/11 at Mayo Clinic (Rochester, MN), nerve sparing, age 62.
    Surgeon was Dr. Matthew Tollefson, who I highly recommend.
    Final pathology shows tumor confined to prostate.
    5 lymph nodes, seminal vesicules, extraprostatic soft tissue all negative.
    1.0 x 0.6 x 0.6 cm mass involving right posterior inferior, right posterior apex & left
    mid posterior prostate. Right posterior apex margin involved by tumor over 0.2 cm length,
    doctor says this is insignificant.
    Prostate 98 grams, tumor 2 grams.
    Catheter out in 7 days. No incontinence, minor dripping for a few weeks.
    Seven annual post-op exams 2012 through 2018: PSA <0.1
    Semi-firm erections without "training wheels," usable erections with 100mg Sildenafil.
    NOTE: ED caused by BPH, not the surgery.

  3. #3
    Quote Originally Posted by redbelly7 View Post
    Hey guys, the Lupron will be out of my system at the end of the month. years... how long before hot flashes go away?
    I hate to be the bearer of bad tidings, but my final Lupron injection was January of last year, eighteen months ago. The Lupron was supposed to be "out of my system" a year ago. But my testosterone is still at castrate level and I still have brain fog and hot flashes. So no one can really answer your question. I've heard it said that it takes about as long as the number of months that you were on it... in my case, 18 months, which hopefully will be around new years 2020. Fingers crossed, for both of us. Good luck!
    Late 2012: PSA 4, age 62 all DRE's 'normal'
    Early 2014: PSA 9.5, TRUS biopsy (false) negative
    2015: PSA's 12 & 20, LOTS of Cipro ... Mar'16: PSA 25, changed Urologist
    Jun'16: MRI fusion biopsy, tumor right base, 6/16 cores: 2ea 15-40-100% G8(4+4)
    Aug'16: DVRP,
    "broad cut" 11 LN-,-SM, 53g 25% involved, multifocal EPE, PNI, B/L SVI, pT3b

    Jan'17: started Lupron ADT, uPSA's ~.03
    May'17: AMS800 implanted, revised 6/17
    Aug'17: 39 tx (70 Gy) RapidArc IGIMRT
    Jan'18-July 2019: PSA's <0.008, T~12
    Apr'18: Dx radiation colitis, Oct'18: Tx sclerosing mesenteritis
    "Everyone you meet is fighting a battle you cannot see"

    Mrs: Dec 2016: Dx stage 4 NHL/DLBCL,
    Primary Bone Lymphoma
    spinal RT boost+6X R-CHOP21+6X IT MTX via LP. Now in remission
    Read our story at CancerCoupleBlog

  4. #4
    Senior User
    Join Date
    Apr 2014
    Posts
    127
    When I go for a checkup I always ask to check my testosterone level. It has been close to 3.5 years since my last dose of Eligard. My testosterone stays in the low 200s and feel I have never recovered. Urologist suggested I could take a female fertility drug which had a side effect in men raising their T. Mine doubled after taking for 3 months to low 400s but was short lived and it returned to low 200s. Clomid was the drug, insurance would not pay for it but was around $40 at Costco.

  5. #5
    Quote Originally Posted by white08gt View Post
    ...My testosterone stays in the low 200s and feel I have never recovered. Urologist suggested I could take a female fertility drug which had a side effect in men raising their T. Mine doubled after taking for 3 months to low 400s but was short lived and it returned to low 200s. .
    If your doctor agreed that raising your testosterone was ok, why not just give you testosterone rather than go in a round-about way with a female fertility drug?
    History: age 53 It took 3 biopsies (34 cores) to find 2 cores 4+4 Gleason 8
    Lap RP at MSKCC Apr 2004, age 54 All neg margins, nodes & structures. (T2a).
    Post RP PSA: <.1 until Feb, 08 (46 mos) PSA 0.1 - I then got sensitive tests -> 2008: Feb 0.06,
    May-08 0.09 - Jun-08 0.10, - Aug-08 0.10, - Nov-08 0.15
    SRT Dec-2008 ---Post SRT PSA 2009, Feb-09 0.10, May-09 0.09, Aug-09 0.06, Dec-09 .04, - 2010 Mar-09 0.04, 2011 .02, 2012 .02,
    STARTED UP Feb 2014-0.06, Jul-2015 0.10, Oct-2015 0.10, Feb-2016 0.15, Jun-2016 0.17, Dec-2016 0.25, Jan-2019 0.74, Jun -2019 0.72
    Aug 2018 Auximin scan - nothing
    Had an inflatable penile implant 2018 for ED. Best decision ever https://www.peyroniesforum.net/index...oard,56.0.html

 

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