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Thread: Greetings

  1. #11
    Senior User
    Join Date
    Jan 2019
    Posts
    470
    Is OSU Ohio, Oklahoma, or Oregon?
    DOB 5/1957

    PSA - 11/2010=1.9, 6/12=2.3, 12/13=2.19, 12/14=2.64, 3/17=5.29, 3/17=3.91, 6/17=3.47, 12/17=4.50, 12/17=3.80, free PSA low risk (local (Uro, “My opinion you don’t have cancer), 8/18=5.13, 10/18=5.1, 10/19 ISO PSA 56% risk cancer. All DREs negative.

    DX 12/18, GS 8, 4+4 6/12 cores, LL Apex 100%, LM Apex 60%, LL Mid 50%, LMM 40%, LL Base 5%, LM <5%, Right side negative, (Uro opinion “This has been going on for a year”.... ah, more like 2 years ). Bone scan/CT negative

    2/25/19 R-LESS (Robotic Laparoendoscopic Single Site Surgery) outpatient Cleveland Clinic,

    3/6/19. Pathology - Grade Group 4 with Intraductal Carinoma
    T3aNO, GS8, 21 mm unifocal tumor 10%. -7 Nodes, - SV, - Margins, - PNI,
    - bladder neck neg., +LVI, + EPE non focal apex/mid lateral 1mm max extension, Cribriform pattern present. Decipher .86 High Risk.

    PSA 3/27/19 .03. (29 days)
    4/25/19 <.03. (58 days)
    5/25/19 <.02. (88 days)

    ADT - 6/3/19
    ART - 8/5/19

  2. #12
    Newbie New User
    Join Date
    Jul 2019
    Posts
    6
    It is amazing how the treatments have advanced over time. I'm praying this combo is the fix, but it is good to know that there is more out there if he ever needs it!
    Dx PCa Pre-surgical PSA 6.25 7/18 RALP; 8/18 Post op path: G 4+5, Prostate 44gms + SVI, + EPE, + margin Left bladder neck, 1 + LN. 3 month post-surgical PSA 0.06; Bone scans and Axumin PET scan clear; Decipher high risk; Casodex 12/18; Eligard 1/19 ADT planned for 24 months; SRT x 37 tx finished 5/19 Most recent PSA <0.04 considered nondetectable Tx at OSU

  3. #13
    Newbie New User
    Join Date
    Jul 2019
    Posts
    6
    We're in Ohio - go Buckeyes!
    Dx PCa Pre-surgical PSA 6.25 7/18 RALP; 8/18 Post op path: G 4+5, Prostate 44gms + SVI, + EPE, + margin Left bladder neck, 1 + LN. 3 month post-surgical PSA 0.06; Bone scans and Axumin PET scan clear; Decipher high risk; Casodex 12/18; Eligard 1/19 ADT planned for 24 months; SRT x 37 tx finished 5/19 Most recent PSA <0.04 considered nondetectable Tx at OSU

  4. #14
    Regular User
    Join Date
    Jul 2018
    Posts
    39
    Nytngale, it is good to see you here on this board. I sometimes visited that other forum so I remember you, and your husband's journey. Our husbands have similar history, and I am so glad to hear that yours has done well with the treatments.

    We have found this place to be really wonderful. We've gotten a lot of excellent advice, guidance, and support from these guys and gals. Plus all the educational updates and articles.

    Glad you are here.

    Barb
    Age 68, no family PCa
    5/18 - long overdue physical PSA 10.7
    5/18 - PSA 16.4 / DRE normal
    7/11/18 TRUS Biopsy 12 cores Grade Group 3
    2 left cores G7 (4+3) Perinueral invasion
    2 right cores G6 (3+3)
    9/17/18 RALP - rt nerves spared
    9/19/18 Path Report:
    Gleason: upgraded 9 (4+5) / pT3a NO / tumor: 20%
    EPE: present, multifocal - right ant & left prostate
    Negative: Margins / Urinary Bladder neck / SV / LVI / 10 lymph nodes
    9/24/18 Bone Scan normal
    RALP recovery: normal, lingering perineum pain, mild stress incontinence, ED
    12/18/18 PSA <.1
    12/28/18 URO appt, w/ ref to RadOnc due to EPE, G9, decipher score .73 high risk
    1/11/19 RadOcnc recommends adjuvant radiation
    1/19 MRI and CT no spots
    ART completed 4/19...33 sessions
    7/19 PSA <O.1

  5. #15
    Hi D&B!

    Re "7/19 PSA < 0.1:" Congrats!!!!

    Did you post this result previously????

    Best wishes to you & Nytngale for continued success!

    MF

  6. #16
    Moderator Top User HighlanderCFH's Avatar
    Join Date
    Nov 2011
    Posts
    7,182
    Quote Originally Posted by Nytngale View Post
    We're in Ohio - go Buckeyes!

    Welcome to the forum, Nytngale. My Mother is from Martins Ferry, Ohio (opposite Ohio River bank from Wheeling) and is also a Buckeye.

    Sorry about your bad experience in the other forum. I know exactly which one you are referring to and they tend to be savage against members who are not totally against surgery. They worship radiation. Glad you zapped 'em and came over to us.

    We do NOT savage anyone for promoting surgery OR radiation. Although this tends to be more of a surgery oriented forum, we respect both of these major treatment options and always advise a new patient to explore the ins and outs of both treatment types to decide which is best for them.

    I like your husband's 6.24 PSA, especially with a high Gleason score. To me, it gives some hints that there is NO spreading to other parts of the body. Thus, the SRT should be quite effective in treating the prostate bed area to kill any remaining PC cells.

    I think he is going to do just fine!
    Good luck,
    Chuck
    July 2011 local PSA lab reading 6.41 (from 4.1 in 2009). Mayo Clinic PSA 9/ 2011 = 5.7.
    Local uro DRE revealed significant BPH, no lumps.
    PCa Dx Aug. 2011 age of 61.
    Biopsy DXd adenocarcinoma in 3/20 cores (one 5%, two 20%). T2C.
    Gleason 3+3=6. CT abdomen, bone scan negative.
    DaVinci prostatectomy 11/1/11 at Mayo Clinic (Rochester, MN), nerve sparing, age 62.
    Surgeon was Dr. Matthew Tollefson, who I highly recommend.
    Final pathology shows tumor confined to prostate.
    5 lymph nodes, seminal vesicules, extraprostatic soft tissue all negative.
    1.0 x 0.6 x 0.6 cm mass involving right posterior inferior, right posterior apex & left
    mid posterior prostate. Right posterior apex margin involved by tumor over 0.2 cm length,
    doctor says this is insignificant.
    Prostate 98 grams, tumor 2 grams.
    Catheter out in 7 days. No incontinence, minor dripping for a few weeks.
    Seven annual post-op exams 2012 through 2018: PSA <0.1
    Semi-firm erections without "training wheels," usable erections with 100mg Sildenafil.
    NOTE: ED caused by BPH, not the surgery.

  7. #17
    Welcome to the forum, Nytngale. As you can see, I have been around for a while. It has been 15 years since I had RP with Gleason 8, about 10 since I had SRT, about another 5 since my PSA started up again after that. I am symptom-free so it offers the hope that even if it is still lurking there is the potential to die with it and not from it. I used to go to medical the records office and open my post-op PSA tests. I often opened it right in the office. Sometimes I took it to my car and then opened it. Although I looked calm my heart would be racing like I had just run a sprint. I used to refer to it as opening a jury verdict of life or death but the verdict was only good for 3 months and you had to do it over and over.

    W H A T- A- W A S T E - O F - S T R E S S - T H A T - W A S !

    Those days a long over. I take it as it comes and don't think of it much in between. I will leave the medical suggestions to others. Just know that we are here. You are in safe hands, and make sure you and your husband actually enjoy some great time not worrying about PCa.
    History: age 53 It took 3 biopsies (34 cores) to find 2 cores 4+4 Gleason 8
    Lap RP at MSKCC Apr 2004, age 54 All neg margins, nodes & structures. (T2a).
    Post RP PSA: <.1 until Feb, 08 (46 mos) PSA 0.1 - I then got sensitive tests -> 2008: Feb 0.06,
    May-08 0.09 - Jun-08 0.10, - Aug-08 0.10, - Nov-08 0.15
    SRT Dec-2008 ---Post SRT PSA 2009, Feb-09 0.10, May-09 0.09, Aug-09 0.06, Dec-09 .04, - 2010 Mar-09 0.04, 2011 .02, 2012 .02,
    STARTED UP Feb 2014-0.06, Jul-2015 0.10, Oct-2015 0.10, Feb-2016 0.15, Jun-2016 0.17, Dec-2016 0.25, Jan-2019 0.74, Jun -2019 0.72
    Aug 2018 Auximin scan - nothing
    Had an inflatable penile implant 2018 for ED. Best decision ever https://www.peyroniesforum.net/index...oard,56.0.html

 

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