A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.
Page 1 of 2 12 LastLast
Results 1 to 10 of 17

Thread: Greetings

  1. #1
    Newbie New User
    Join Date
    Jul 2019
    Posts
    6

    Red face Greetings

    Hello all,

    Just came across this forum. I read the forums and seek advice for my husband who was diagnosed last year. He's post RALP, G 4+5, on ADT - planning 24 months, and just completed 7.5 weeks of SRT. His last PSA was <0.04. His med onc is at OSU. We're praying that the SRT and ADT will mop up whatever was left behind. He's feeling well and working fulltime - he amazes me. Just a bit of occasional fatigue and joint/muscle aches with the ADT. The SRT made him profoundly tired by the end of treatment and he struggled with some bowel issues, but that is now resolving since his treatment ended. I appreciate the welcoming atmosphere and calm support offered in the various posts that I've read here. I have been on another forum since this all began last year, but some folks there are very abrasive and critical once they know that surgery was the chosen route, especially when the path indicates a G9. My husbands path prior to surgery was 4+4. Our choice for surgery was to obliterate the disease as much as possible and we went in knowing that the stats for surgery and radiation are basically the same over the long haul. I will be following along and learning as much as I can.

    Nytngale

  2. #2
    Hi Nytngale,

    Sorry you and your husband have been through so much--I don't think we're a critical bunch here and we're happy to have you ! I also opted for surgery and was downgraded from a G10 to G9. Even in some cases that are quite advanced at diagnosis, surgery is done in conjunction with other treatments. You shouldn't have to defend your choices!

    On the main Forum page you'll find a Sticky Post "How to list my stats...." with instructions for creating a signature file with your husband's history with dates. It will save you time from repeating whenever you post a question and will help others be specific in their responses. Have a look at other signatures to get an idea of what to include.

    A PSA of <0.04 so soon after SRT is very good! As you know, post-treatment PSA is quite a precise monitor of what's going on and treatment response. Were any positive nodes remove or did anything show up on a bone scan? You can add any other adverse path-report findings to you signature as well. Hopefully the bowel issues will resolve soon. It's very good that he's back at work -- I can imagine it can sometimes be hard to relax fully and take your mind away from PCa and treatments.

    Unless your husband's body tells you otherwise, you should think of his last treatment as definitive. Relax, peruse the Forum posts, and chime in whenever you feel like it, whether to comment or ask something.

    Djin
    Last edited by DjinTonic; 07-12-2019 at 06:46 PM.
    69 yr at Dx, BPH x 20 yr, 9 (!) neg. Bx, PCA3 -
    2013 TURP (90→30 g) path neg. then 6-mo. checks
    6-06-17 Nodule on R + PSA rise on finasteride: 3.6→4.3
    6-28-17 Bx #10: 2/14 cores: G10 (5+5) 50% RB, G9 (4+5) 3% RLM
    Bone scan, CTs, X-rays: neg.
    8-7-17 Open RP, neg. frozen sections, Duke Regional
    SM EPE BNI LVI SVI LNI(16): negative, PNI+, nerves spared
    pT2c pN0 pMX acinar adenocarcinoma G9 (4+5) 5% of prostate (4.5x5x4 cm, 64 g)
    11-10-17 Decipher 0.37 Low Risk: 5-yr met risk 2.4%, 10-yr PCa-specific mortality 3.3%
    Dry; ED OK with sildenafil
    9-16-17 (5 wk) PSA <0.1
    LabCorp uPSA, Roche ECLIA:
    11-28-17 (3 m ) 0.010
    02-26-18 (6 m ) 0.009
    05-30-18 (9 m ) 0.007
    08-27-18 (1 yr.) 0.018 (?)
    09-26-18 (13 m) 0.013 (30-day check)
    11-26-18 (15 m) 0.012
    02-25-19 (18 m) 0.015
    05-22-19 (21 m) 0.015

  3. #3
    Newbie New User
    Join Date
    Jul 2019
    Posts
    6
    Thanks for the welcome, Djin! I created my sig, not sure why it didn't show with this first post. I have the button to show my sig checked in my profile. Hopefully, it will show up with subsequent posts. Hubby had one positive node, + bilat SVI, + EPE, and a + margin at the left bladder neck. Pretty crappy path report. His decipher came back at high risk, 0.75 if I recall with a 25% 5 year met and 22% 10 yr mortality risk. Hence, why we proceeded quickly with ADT and SRT. I hated getting the Decipher results, really played a field day on my hubby's morale. I did remind him that if you look at those results from the other direction he had a 75% chance of no mets at 5 yrs and a 78% chance that he wouldn't die at 10 years out. Also, kept reminding him that the results were based on having just RALP as the treatment modality. I firmly believe that we need to try and keep things in perspective as much as possible. Bone scans and Axumin scan were clear just prior to the initiation of ADT. His next PSA is the first week of August - I'm praying we hold onto that non-detectable status!
    Dx PCa Pre-surgical PSA 6.25 7/18 RALP; 8/18 Post op path: G 4+5, Prostate 44gms + SVI, + EPE, + margin Left bladder neck, 1 + LN. 3 month post-surgical PSA 0.06; Bone scans and Axumin PET scan clear; Decipher high risk; Casodex 12/18; Eligard 1/19 ADT planned for 24 months; SRT x 37 tx finished 5/19 Most recent PSA <0.04 considered nondetectable Tx at OSU

  4. #4
    The Forum Welcomes you Nytngale! You have arrived with a lengthy journey already behind you. Hopefully it will all fade permanently into the rear view mirror.

    Be assured that you will receive NO criticism here and nothing but support!

    Re "His last PSA was <0.04" Congrats! At this time point, this result could not be better! Let's keep it this way!

    When convenient, please consider creating your Signature (clinical profile). It is easy to do and Chuck, our Moderator, has easy instructions that are found in a "Sticky" at the top of The Forum page:

    https://www.cancerforums.net/threads...ch-of-My-Posts

    Salient data is all that is needed:

    - Age
    - PSA History: Pre + Post Treatments
    - Key Surgical Path Report Findings: (G 4+5) / Seminal Vesicle Status / Margins Status / Lymph Node findings / ExtraProstatic Extensions (EPE)
    - Time between RP and SRT

    You will meet several Forum Brothers (FBs) and Forum Sisters (FSs) with similar clinical histories. Together we all will get through this!

    Stay tuned!

    MF
    PSA: Oct '09 = 1.91, Oct '11 = 2.79, Dec '11 = 2.98 (PSA, Free = 0.39ng/ml, % PSA Free = 13%)
    Referred to URO MD
    Jan '12: DRE = Positive: "Left induration"
    Jan '12: Biopsy = 6 of 12 Cores were Positive: 1 = G7 (3+4) and 5 = Gleason 6
    Referred to URO Surgeon
    March '12: Robotic RP: Left: PM + EPE. MD waited in surgery for preliminary Path Report then excised substantial left adjacent tissue(s) down to negative margins and placed 2 Ti clips for SR guidance, if needed in future.
    Pathology: Gleason (3+4) pT3a pNO pMX pRO c tertiary pattern 5 / Prostate Size = 32 grams / Tumor = Bilateral: 20% / PNI: present
    3 month Post Op standard PSA = <0.1 ng/ml
    1st uPSA at 7 months Post Op = 0.018 ng/ml
    uPSA remains "stable" at 84 Months Post Op: Mean = 0.021 (20x uPSAs: Range 0.017 - 0.026) LabCorp: Ultrasensitive PSA: Roche ECLIA
    Continence = Very Good (≥ 99%)
    ED = present

  5. #5
    Newbie New User
    Join Date
    Jul 2019
    Posts
    6
    Thank you for the welcome, Michael! I created my sig and I noticed it posted for the first time on my reply to Djin - glad I got that to work! We definitely have had quite a journey so far. We still both get the jitters as it comes close to PSA time and I think I'm more nervous now since the rad therapy is completed. I can't imagine we would see a change in the other direction, but I still worry a bit.
    Dx PCa Pre-surgical PSA 6.25 7/18 RALP; 8/18 Post op path: G 4+5, Prostate 44gms + SVI, + EPE, + margin Left bladder neck, 1 + LN. 3 month post-surgical PSA 0.06; Bone scans and Axumin PET scan clear; Decipher high risk; Casodex 12/18; Eligard 1/19 ADT planned for 24 months; SRT x 37 tx finished 5/19 Most recent PSA <0.04 considered nondetectable Tx at OSU

  6. #6
    Your signature is showing loud and clear! Sorry, I misread ART for ADT in your first post (wouldn't be the first time, either). Just curious -- was there talk of doing RT sooner (adjuvant RT) or did they want to do the ADT first? In other words, was the (S)RT planned from the start after the RP results, or was it based more on the post-op PSA trend?

    I can imagine that the Decipher results didn't make your All-Time Best list, BUT the negative scans are very good news. And you are due for good news, so celebrate each small step going forward! As we like to say, the docs have powerful guns up their sleeve, just in case, and can stay ahead of whatever your hubby dishes out!

    Djin
    Last edited by DjinTonic; 07-12-2019 at 07:03 PM.

  7. #7
    Quote Originally Posted by Nytngale View Post
    Thank you for the welcome, Michael! I created my sig and I noticed it posted for the first time on my reply to Djin - glad I got that to work! We definitely have had quite a journey so far. We still both get the jitters as it comes close to PSA time and I think I'm more nervous now since the rad therapy is completed. I can't imagine we would see a change in the other direction, but I still worry a bit.
    Good job Nytngale!

    Apologies for any redundant info contained in responses to you! I'm usually between phone calls when I write responses and often by the time I post it, others have already provided the "guidance!"

    BTW, Dj is "The Oracle of The PCa Forum" to whom we all defer!!!

    MF

  8. #8
    Quote Originally Posted by Michael F View Post
    Good job Nytngale...

    BTW, Dj is "The Oracle of The PCa Forum" to whom we all defer!!!

    MF
    Baloney! Don't mistake quantity for quality!

  9. #9
    Newbie New User
    Join Date
    Jul 2019
    Posts
    6
    Djin,

    He saw the MO first and it took a couple of weeks to get scheduled with the RO, that's how we ended up with ADT starting first. We wanted to get started with treatment asap. He saw the RO at the end of January and he recommended waiting just a bit longer to ensure everything was well healed following the surgery. Surgery was actually on August 29th, so closer to September. Everything I read seemed to reflect SRT starting about 5 months following RALP. His MO did give him an option to actually just monitor the PSAs for a bit, but "encouraged" him to proceed. I was fully advocating treatment based on the path report. Why would anyone want to wait - it makes much more sense to attack the enemy when there might be fewer of them around! LOL
    Dx PCa Pre-surgical PSA 6.25 7/18 RALP; 8/18 Post op path: G 4+5, Prostate 44gms + SVI, + EPE, + margin Left bladder neck, 1 + LN. 3 month post-surgical PSA 0.06; Bone scans and Axumin PET scan clear; Decipher high risk; Casodex 12/18; Eligard 1/19 ADT planned for 24 months; SRT x 37 tx finished 5/19 Most recent PSA <0.04 considered nondetectable Tx at OSU

  10. #10
    Thanks for the info. We learn a lot from signatures and our questions about how PCa specialists reason and what's being tried. I agree with you 100% about not holding back, although the preparatory ADT may have made the RT even more effective. They are searching for the best treatments for high-risk cases, but there are just so many variables: treatment combos, sequencing choices, and timing/duration possibilities. Combine that with all the RT modalities and regimes...

    Djin
    Last edited by DjinTonic; 07-12-2019 at 07:42 PM.

 

Similar Threads

  1. Greetings and Remembrances
    By Big Sister in forum Pancreatic Cancer Forum
    Replies: 0
    Last Post: 12-16-2009, 06:19 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •