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Thread: ascites

  1. #11
    Senior User
    Join Date
    Mar 2018
    Posts
    136
    Yaaaaay! Good to know.
    Mar. '18 - Diagnosed Stage IV with liver mets CA-19 124,000
    Apr. '18 - Started chemo - Gem, Abrx, Cis
    July and Sept '18 - Ct scan - all tumors shrinking
    Oct. '18 - CA-19 - 1,495
    Oct. '18 - Started Gem, Abrx 1/2 dose

  2. #12
    Thank you!
    February 2016- diagnosed with PC
    March 2016- inoperable due to arteries, also liver mets suspected
    March 2016-January 2017 -Gemzar/Abraxane
    February 2017 surgery-PC tumour and liver mets removed at same time
    July 2018 Back on Gemzar/Abraxane due to rising CA 19-9. Scans were clear.
    January 2019 Tried FOLFIRINOX after G/A became ineffective. FFX doesn't work. CA 19-9 rising
    February 2019 two small tumors appear on liver
    May 2019 - CA 19-9 skyrocketing. Started IMRT radiation treatment.
    August 2019 MRI done. No Evidence of Disease (NED). CA 19-9 dropped significantly. Still not normal range.

  3. #13
    Senior User
    Join Date
    Mar 2018
    Posts
    137
    Good news Jackie! I seem to have that tightness quite often...and i usually find that it turns out to be gas.
    +++++++++++++++++++++++++++++
    53 yrs old
    3/8/18 went to ER w/what i thought to be gall bladder issues...CT and MRI found 1.5 cm spot on body/neck of pancreas
    3/10/18 Followed up with endoscopic u/s and biopsy. No mets/contained
    3/20/18 started 4 cycles of Gem/Abrax followed by distal pancreatomy.
    5/15/18 CT scan showed tumor shrinkage .97cm
    7/11/18 Pre surgery CT scan shows slight tumor growth (1.2cm) could be necrosis.
    8/3/18 distal pancreatomy/splenectomy-open procedure. No mets, no lymph node involvement.
    9/26/18 CA19 33 NORMAL
    10/10/18 CA19 up to 53. Time to go back to treatment!
    10/10/18 Starting 3 mos Folfirinox adjuvant therapy.
    5/12/19 CT scan shows enlarged lymph node at surgical site. EUS biopsy determines cancer. Local and contained.
    6/22-26 Begin radiation. SBRT 5 day regimen.

  4. #14
    Experienced User
    Join Date
    Dec 2017
    Posts
    86
    That's good news! Good luck!
    Oct 2017 - Mom's annual checkup found elevated CA19-9 (280 kU/L)
    Nov 2017 - Diagnosed. Pancreatic Adenocarcinoma on body/tail of pancreas, ~3cm mass
    Dec 2017 - Distal pancreatectomy, 3.5*3*2 mass removed, 2/17 lymph nodes.
    Jan 2018 - CA19-9 dropped to 30 kU/L 4 weeks after surgery.
    Feb 2018 - 3 rounds of S1
    June 2018 - CA 19-9 from 50 to 170 KU/L. CT + PET confirmed recurrence at remainder of pancreas + peritoneal mets.
    July 2018 - Started Gem/Abraxane
    Sep 2018 - Peritoneal mets disappeared on CT. CA 19-9 dropped to 35.
    Nov 2018 - Finished 4th round of Gem/Abraxane. Clear CT. CA19-9 dropped to 22.

  5. #15
    Newbie New User
    Join Date
    Mar 2018
    Posts
    6
    I'm so happy you got good news!!!

    I had excites awhile back and ended up in the ER for pain relief but by the time I got to my dr it had gone away. That was the first time. Last week I got it again and had it drained. Started on lasix. They tested the fluid and it shows there are cancer clusters in the fluid. I just got the news today. Have a ct scan tomorrow I came here looking for some answers myself.
    I'm in alot of pain tonight in the same area but am hoping it's gas. A heating pad will help a little. When the fluid built up I gained 18 to 20 lbs..my stomach was huge(looked pregnant). my feet and legs swelled pretty bad and couldn't eat. Some cramping in the morning before finally having a bowel movement. I was pretty weak from the fluid in my legs and feet.
    I'm very scared but I am a very positive person. This one is not easy tho. Any experiences..good or bad..is so apreciated.
    I'm so sorry to for your loss Alice's daughter.
    So happy to hear your good news Jackie!!
    We gotta hang in there and thank you for any and all info.

  6. #16
    Experienced User
    Join Date
    Feb 2018
    Posts
    72
    Hello tweixel,
    Iím glad to see that you stay positive and I wish that you can receive some good news soon. I believe that it is important to take care of yourself and feel comfortable. Does adding egg whites to your diet help? Or gentle massage in your legs with upward direction to relieve the built up if fluid off your calves and feet? My mom had a lot of ascites but still would walk the dog. I think it helps with everything to take a walk.

  7. #17
    Newbie New User
    Join Date
    Mar 2018
    Posts
    6
    Quote Originally Posted by simonedriva View Post
    Hello tweixel,
    Iím glad to see that you stay positive and I wish that you can receive some good news soon. I believe that it is important to take care of yourself and feel comfortable. Does adding egg whites to your diet help? Or gentle massage in your legs with upward direction to relieve the built up if fluid off your calves and feet? My mom had a lot of ascites but still would walk the dog. I think it helps with everything to take a walk.
    Thank you for your response and your suggestion. I need to get out and walk more
    We are going to start me up again on the pump. My pancreatic tumor markers are improving and ct scan shows no changes there so we're gonna

 

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