A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.
Page 4 of 5 FirstFirst ... 2345 LastLast
Results 31 to 40 of 47

Thread: Starting my RT in two weeks ...

  1. #31
    Top User garyi's Avatar
    Join Date
    Apr 2017
    Posts
    1,346
    Quote Originally Posted by Trex Dino View Post

    ...Regarding the hormone treatment ... how did you deal with cravings of dark chocolate, red wine and candle light baths ? hehe

    Casey
    All that was a pleasure! It was trying to walk in high heel shoes that I found difficult.
    72...LUTS for the past 7 years
    TURP 2/16,
    G3+4 discovered
    3T MRI 5/16
    MRI fusion guided biopsy 6/16
    14 cores; four G 3+3, one G3+4,
    CIPRO antibiotic = C. Diff infection 7/16
    Cured with Vanco for 14 days
    Second 3T MRI 1/17
    Worsened bulging of posterior capsule
    Oncotype DX GPS 3/17, LFP risk 63%, Likelihood of Low
    Grade Disease 81%, Likelihood of Organ Confined 80%
    RALP 7/13/17 Dr. Gonzaglo @ Univ of Miami
    G3+4 Confirmed, Organ confined
    pT2 pNO pMn/a Grade Group 2
    PSA 0.32 to .54 over 3 months
    DCFPyl PET & ercMRI Scans - 11/17
    A one inch tumor still in prostate bed = failed surgery
    All met scans clear
    SRT, 2ADT, IMGT 70.2 Gys @1.8 per, completed 5/18
    Radiation Procitis, and Ulcerative Colitis flaired after 20 years
    PSA <.006 9/18, .054 11/18, .070 12/18, .067 2/19, .078 5/19, .074 7/19, .081 9/19
    We'll see....what is not known dwarfs what is thought to be fact

  2. #32
    Senior User
    Join Date
    Feb 2019
    Posts
    194
    Quote Originally Posted by garyi View Post
    All that was a pleasure! It was trying to walk in high heel shoes that I found difficult.
    ... and the reason to wear flats, much easier to walk in.
    Age DX 63 dob 1955
    8/11/16 CT scan (blood/sand in urine). Prostate norm w/cent calcification.
    11/6/18 GP freq urine/retro ejact. PSA 7.1 (RX Proscar/Flomax)
    12/18 PSA 4.1 14.8% Free Proscar? MRI Lesion 1.6cm. Lymph nodes sim to 2016 CT, prostate norm size. Stage 3. PIRADS 4
    1/19 Biopsy 2/5/19 DX
    2/19 Bone/CT scans: No evid met chest/abd/pelvis
    3/2019 RALP Cath out/post-op path rpt week later:
    G9 (4+5) (65-70% + 15-20%)
    Dominant tumor: 4.3 cm apex to base, bilat.
    LNI+ (4 of 12 on R, largest 4mm, 1 of 8 on L, 9 mm)
    EPE+ (right lat., post. and L lat. aspects apex to base and at ant. mid aspect)
    Intaraductal component+, BNI-, SVI+, LVI+
    SM+ (carcinoma unifocally extends to ant. mid margin area of EPE (2mm)
    Prostate fat: neg. pT3b pN1
    5/2019 Casodex 2-weeks. uPSA 0.11
    5/24 uPSA 0.11 Lupron injection
    6/19 uPSA .02
    8/7 began 39 sessions RT.
    8/23 uPSA .01 Lupron injection

  3. #33
    Quote Originally Posted by garyi View Post
    All that was a pleasure! It was trying to walk in high heel shoes that I found difficult.
    Most of the old-timers in the Forum (what, 92%?) will remember the caption that came from a 1982 Frank and Ernest cartoon: "Sure he [Fred Astaire] was great, but don't forget that Ginger Rogers did everything he did...backwards and in high heels".

    Best of luck, TRex!

    Djin

  4. #34
    Senior User
    Join Date
    Feb 2019
    Posts
    194
    Quote Originally Posted by DjinTonic View Post
    Most of the old-timers in the Forum (what, 92%?) will remember the caption that came from a 1982 Frank and Ernest cartoon: "Sure he [Fred Astaire] was great, but don't forget that Ginger Rogers did everything he did...backwards and in high heels".

    Best of luck, TRex!

    Djin
    Thanks for the laugh and smile ... ! I am old enough to remember this !

    They call me Ginger ... Ginger Bond.

    (aka James Bond)
    Age DX 63 dob 1955
    8/11/16 CT scan (blood/sand in urine). Prostate norm w/cent calcification.
    11/6/18 GP freq urine/retro ejact. PSA 7.1 (RX Proscar/Flomax)
    12/18 PSA 4.1 14.8% Free Proscar? MRI Lesion 1.6cm. Lymph nodes sim to 2016 CT, prostate norm size. Stage 3. PIRADS 4
    1/19 Biopsy 2/5/19 DX
    2/19 Bone/CT scans: No evid met chest/abd/pelvis
    3/2019 RALP Cath out/post-op path rpt week later:
    G9 (4+5) (65-70% + 15-20%)
    Dominant tumor: 4.3 cm apex to base, bilat.
    LNI+ (4 of 12 on R, largest 4mm, 1 of 8 on L, 9 mm)
    EPE+ (right lat., post. and L lat. aspects apex to base and at ant. mid aspect)
    Intaraductal component+, BNI-, SVI+, LVI+
    SM+ (carcinoma unifocally extends to ant. mid margin area of EPE (2mm)
    Prostate fat: neg. pT3b pN1
    5/2019 Casodex 2-weeks. uPSA 0.11
    5/24 uPSA 0.11 Lupron injection
    6/19 uPSA .02
    8/7 began 39 sessions RT.
    8/23 uPSA .01 Lupron injection

  5. #35
    Senior User
    Join Date
    Feb 2019
    Posts
    194
    Update 8/23/2019 ...

    This morning had my 13th of 39 RT treatments. RT is going well and was told by my doc RO doc appt this week that my treatments are going perfect.

    Following my RT today went in for a blood suck. My PSA is 0.01 ... last June 19th it was 0.02 . Also got my second Lupron injection today too.

    Asked my MO about the decipher test. Doc said too early to do that now and best to wait until after my RT treatments and see how I respond to both the RT and HT. Reason being that science is changing all the time and would like to wait when the decipher will give us better information based on the medications and technology developed at that time. And that my prostate tissue is on ice and not going anywhere. To me, that makes sense.

    Both my wife and I had a bunch of questions that the MO answered beyond our expectations. Additionally, our long time dentist has a son who is a doc doing nano research stuff, when our dentist told his son who my MO and RO were the doc son said that I had a great team ... gotta say made my day, good to hear.

    My daughter just now had a good question regarding my PSA. The MO doc today looked back and said my 0.02 PSA is considered "undetectable". Today PSA is 0.01 . The statement, and question, from my daughter is that I should inquire how the lab "rounds up" the results. Gonna ask since would like to know how the testing is done.

    One day at a time ...
    Age DX 63 dob 1955
    8/11/16 CT scan (blood/sand in urine). Prostate norm w/cent calcification.
    11/6/18 GP freq urine/retro ejact. PSA 7.1 (RX Proscar/Flomax)
    12/18 PSA 4.1 14.8% Free Proscar? MRI Lesion 1.6cm. Lymph nodes sim to 2016 CT, prostate norm size. Stage 3. PIRADS 4
    1/19 Biopsy 2/5/19 DX
    2/19 Bone/CT scans: No evid met chest/abd/pelvis
    3/2019 RALP Cath out/post-op path rpt week later:
    G9 (4+5) (65-70% + 15-20%)
    Dominant tumor: 4.3 cm apex to base, bilat.
    LNI+ (4 of 12 on R, largest 4mm, 1 of 8 on L, 9 mm)
    EPE+ (right lat., post. and L lat. aspects apex to base and at ant. mid aspect)
    Intaraductal component+, BNI-, SVI+, LVI+
    SM+ (carcinoma unifocally extends to ant. mid margin area of EPE (2mm)
    Prostate fat: neg. pT3b pN1
    5/2019 Casodex 2-weeks. uPSA 0.11
    5/24 uPSA 0.11 Lupron injection
    6/19 uPSA .02
    8/7 began 39 sessions RT.
    8/23 uPSA .01 Lupron injection

  6. #36
    Finished RT 14/39 today. Stools are getting rather loose and changed my diet which seems to had an immediate effect. Otherwise no SEs. 2nd Eligard injection Tuesday.

    Trex,

    My understanding of purpose of Decipher is to provide data so you can make treatment decisions. At this point I don’t know how it would change what you are doing considering your pathology.
    YOB 1957

    DX 12/18, GS 8, 4+4 6/12 cores, LL Apex 100%, LM Apex 60%, LL Mid 50%, LMM 40%, LL Base 5%, LM <5%, Right side negative.

    2/25/19 Robotic Laparoendoscopic Single Site Surgery outpatient Cleveland Clinic,

    3/6/19. Pathology - Grade Group 4 with Intraductal Carcinoma
    T3aNO, GS8, 21 mm unifocal tumor 10%. -7 Nodes, - SV, - Margins, - PNI,
    - bladder neck neg., +LVI, + EPE non focal apex/mid lateral 1mm max extension, Cribriform pattern present. Decipher .86 High Risk.

    PSA 3/27/19 .03. (29 days)
    4/25/19 <.03. (58 days)
    5/25/19 <.02. (88 days)
    9/10/2019. <.02. (198 days)

    ADT - 6/19 - 6/21
    ART - 78Gy 8/19 - 9/19

  7. #37
    Senior User
    Join Date
    Feb 2019
    Posts
    194
    Duck2 ... I had some loose stools too and after cutting out the dairy (which I am intolerant to anyway) and stopped eating hot peppers and hot sauce things firmed back up.

    You are correct about the Decipher providing data for future treatments and not for my current treatments. I was curious if the Decipher was in my MO's bag of tools if needed, I just was not sure when that time would be ... doc said it will be well down the road from now.

    I forgot to add why the < (less than sign) was not preceding my PSA result. Wondering if my MO's lab does not use the < or maybe I am a solid 0.01 and not less than. Will send a message to my MO and ask. Just wondering.
    Age DX 63 dob 1955
    8/11/16 CT scan (blood/sand in urine). Prostate norm w/cent calcification.
    11/6/18 GP freq urine/retro ejact. PSA 7.1 (RX Proscar/Flomax)
    12/18 PSA 4.1 14.8% Free Proscar? MRI Lesion 1.6cm. Lymph nodes sim to 2016 CT, prostate norm size. Stage 3. PIRADS 4
    1/19 Biopsy 2/5/19 DX
    2/19 Bone/CT scans: No evid met chest/abd/pelvis
    3/2019 RALP Cath out/post-op path rpt week later:
    G9 (4+5) (65-70% + 15-20%)
    Dominant tumor: 4.3 cm apex to base, bilat.
    LNI+ (4 of 12 on R, largest 4mm, 1 of 8 on L, 9 mm)
    EPE+ (right lat., post. and L lat. aspects apex to base and at ant. mid aspect)
    Intaraductal component+, BNI-, SVI+, LVI+
    SM+ (carcinoma unifocally extends to ant. mid margin area of EPE (2mm)
    Prostate fat: neg. pT3b pN1
    5/2019 Casodex 2-weeks. uPSA 0.11
    5/24 uPSA 0.11 Lupron injection
    6/19 uPSA .02
    8/7 began 39 sessions RT.
    8/23 uPSA .01 Lupron injection

  8. #38
    Experienced User
    Join Date
    Apr 2019
    Posts
    57
    Last Friday was 25 of 37 for me . . . only one dozen to go! Stools do seem to vary with diet, so I cut out hot sauce and only use milk-of-magnesia in the evening if I have a meal like steak and potatoes with little vegetables. We eat fairly vegetarian the majority of the time. My urinary urgency seems to be kicking in a little more even though my kegel routine has remained the same -- a couple of surprise small wet spots this past Friday and Saturday, so I'm increasing the kegel count a bit. The leakage and urgency could be due to urethral irritation/inflammation towards the end of radiation or maybe a bladder infection again, so I'll report my symptoms to my RO today. Stopped drinking coffee last week, which wasn't pleasant for the first couple of days. Also went back on celecoxib yesterday since some perineal pain started which indicates that my non-kegel exercising may be trying to resurrect my osteitis pubis (URO's PA said to start the medicine at the first hint of possible pelvic inflammation). To lighten the load on my liver due to the celecoxib, I have stopped having the occasional alcoholic beverage, so no bourbon or beer when we visit friends in Chicago this weekend. Pelvic floor PT ended a couple of weeks ago, since all goals were met and I had the tools to manage the situations I just mentioned. My therapist said that I could always come in for some more sessions if it seems like the wheels are falling off. Maybe some lug nuts have loosened, but I'm dealing with it and hope no more than increasing fatigue arises in these next few weeks.
    6/18 New PCP asks "When was your last PSA level checked?" --> 11.5 so off to URO
    9/18 PSA 12.4, TRUS biopsy 10/18 yields 2 of 12 positive: LA GS6 <5%, RA GS7(3+4) 5% and the 4 is cribriform approaching 50%
    Clinical staging T1c, Decipher biopsy 0.94, 58 years old at DX
    12/18 RARP, pathology GS7(4+3) with cribriform, tumors in 10-15% of gland
    -SVI, -LVI, +EPE, +PNI, +BNI, +SM multifocal >=3mm pattern 4
    pT3a,pNx (lymph nodes inaccessible due to large mesh placement from 15 year ago bilateral hernia repair
    4/19 second opinion of pathology GS8, primary tumor composed of >95% cribriform (4+4), <1% pattern 5 and very minor focus comedo-necrosis, intraductal and postive margin at bladder resection
    still at pT3a,pNx and started six months of ADT with ART to start in a month or two
    1/19 PSA <0.1, 4/19 PSA <0.1

  9. #39
    Senior User
    Join Date
    Feb 2019
    Posts
    194
    Good to hear farmanerd on dozen more to go ! I heard that once get pass the halfway mark the sessions pass by faster. My "over the hump day" (#20) is September 4th.

    I plan to get off coffee in the morning too, but right now it really helps me to clear my bowels and fill my bladder before my RT sessions. On the drive in I will drink 16 ounces of water and sometimes more when in the waiting room.

    My stools are more often soft and loose. I really need to get the willpower to stop the dairy ... at least I did get away from spicy food. I am finding that fiber pills are helping, just need to take a few more in the day as I am trying to find the right balance. Am going to chat with my RT doc tomorrow during my weekly appointment about my loose stool.

    Just wondering if anyone has gotten any skin irritation from RT treatments ? Will be asking my RT doc about this as twice now my MO doc made off-hand comment if I am starting to get a "sunburn" yet.
    Age DX 63 dob 1955
    8/11/16 CT scan (blood/sand in urine). Prostate norm w/cent calcification.
    11/6/18 GP freq urine/retro ejact. PSA 7.1 (RX Proscar/Flomax)
    12/18 PSA 4.1 14.8% Free Proscar? MRI Lesion 1.6cm. Lymph nodes sim to 2016 CT, prostate norm size. Stage 3. PIRADS 4
    1/19 Biopsy 2/5/19 DX
    2/19 Bone/CT scans: No evid met chest/abd/pelvis
    3/2019 RALP Cath out/post-op path rpt week later:
    G9 (4+5) (65-70% + 15-20%)
    Dominant tumor: 4.3 cm apex to base, bilat.
    LNI+ (4 of 12 on R, largest 4mm, 1 of 8 on L, 9 mm)
    EPE+ (right lat., post. and L lat. aspects apex to base and at ant. mid aspect)
    Intaraductal component+, BNI-, SVI+, LVI+
    SM+ (carcinoma unifocally extends to ant. mid margin area of EPE (2mm)
    Prostate fat: neg. pT3b pN1
    5/2019 Casodex 2-weeks. uPSA 0.11
    5/24 uPSA 0.11 Lupron injection
    6/19 uPSA .02
    8/7 began 39 sessions RT.
    8/23 uPSA .01 Lupron injection

  10. #40
    Experienced User
    Join Date
    Apr 2019
    Posts
    57
    Haven't noticed any "sunburn" yet, which would be quite noticeable since I trimmed my pubic hair in order to make using my VED (Vacuum Erection Device -- AKA penis pump) a little easier. Just wanted to give the daily cialis a little help and was lucky that insurance covered it. "T" should be back by the new year and I can't wait. Having a hot flash while wearing a raincoat is like being in a sauna.

 

Similar Threads

  1. Replies: 15
    Last Post: 08-06-2018, 02:50 PM
  2. Starting CD19 CAR therapy in two weeks
    By Mary Z in forum Lymphoma - Hodgkin's and Non-Hodgkin's Lymphoma Forum
    Replies: 27
    Last Post: 03-25-2015, 10:27 PM
  3. Starting to get nervous: two pre-surgery questions
    By Logic1 in forum Prostate Cancer Forum
    Replies: 13
    Last Post: 02-13-2015, 03:29 AM
  4. 2 ASCUS PAPS and Colposcopy Two Weeks Ago - Need to Wait 6 Weeks for Results
    By sweet_morticia in forum Cervical Cancer Forum
    Replies: 1
    Last Post: 03-17-2013, 01:39 AM
  5. Chemo once in two weeks instead of 3 weeks.Pls help :(
    By manokrrish in forum Lymphoma - Hodgkin's and Non-Hodgkin's Lymphoma Forum
    Replies: 32
    Last Post: 01-26-2012, 01:06 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •