A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.
Results 1 to 8 of 8

Thread: New here, hoping I'm okay

  1. #1

    New here, hoping I'm okay

    I spend most of my time over at the prostate cancer forums, just a slight case so far of G6.

    Last year in December, I went to the pulmonologist for intermittent breathing issues. CT later and no problems noted except for a 5mm nodule on my right lung. It is in the superior segment of the right lower lobe. Doc felt it was something I inhaled that the body walled off or inflammation. He wanted me to do another CT in December of this year to ensure it was stable and didn't change.

    I'm male, 48 years old never a smoker.

    Fast forward to this week and had to do a CT now because i failed a stupid d dimer test. Slightly elevated.

    The good news is the 5mm right lung nodule is still 5mm and appears stable. Great!

    The bad news is they found two nodules on the left lung....one 2mm and one 6mm. The 6mm is in the lower lobe and appears to be stable. The left 2mm is in the superior segment of the left lower lobe is stable. Exact wording.

    So I guess I'm stupid but two nodules that are there where they haven't been 8 months previously seems the opposite of stable.

    Is there anyone with knowledge here that can calm me down that this is probably nothing to worry about?

    The suggestion was that the 2mm and 5mm, ignore them as the chance of cancer is less than 1%. The suggestion for the 6mm was to do another CT in 6-12 months. So it sounds like they aren't too worried about these too much.

    However, I'm freaking out about the number of them. I'm not sure why I'm suddenly growing nodules.

    Thanks in advance!
    Last edited by IceStationZebra; 08-09-2019 at 02:39 AM.

  2. #2
    Administrator Top User lisa1962's Avatar
    Join Date
    Jan 2013
    Posts
    3,936
    Hello IceStationZebra and sorry you have concerns and needed to post within another subforum. I have moved your thread out of the Lung Cancer forum and moved here in the Worried Forum. Mods within the Lung Forum like to keep only those actually diagnosed in the LC forum and have the others post here until a diagnosis is definitively made.

    What I can say, Lung Nodules are very common. In fact, most go through life unaware. While you have a preexisting diagnosis of Prostrate Cancer, then your doctors most likely are monitoring more closely than the average.

    Most lung nodules are benign, caused by scarring, infection, environmental elements and the list goes on. I would take comfort that your doctors are being vigilant and are monitoring for any substantial growth or appearance changes. If you can, in order to alleviate any anxiousness you have, ask for an evaluation sooner rather than their suggested timeframe of 6 – 12 months.

    I am sure others will chime in here and hope we never have to welcome you to the Lung Cancer Forum but do feel welcome to post more questions.

  3. #3
    Quote Originally Posted by lisa1962 View Post
    Hello IceStationZebra and sorry you have concerns and needed to post within another subforum. I have moved your thread out of the Lung Cancer forum and moved here in the Worried Forum. Mods within the Lung Forum like to keep only those actually diagnosed in the LC forum and have the others post here until a diagnosis is definitively made.

    What I can say, Lung Nodules are very common. In fact, most go through life unaware. While you have a preexisting diagnosis of Prostrate Cancer, then your doctors most likely are monitoring more closely than the average.

    Most lung nodules are benign, caused by scarring, infection, environmental elements and the list goes on. I would take comfort that your doctors are being vigilant and are monitoring for any substantial growth or appearance changes. If you can, in order to alleviate any anxiousness you have, ask for an evaluation sooner rather than their suggested timeframe of 6 – 12 months.

    I am sure others will chime in here and hope we never have to welcome you to the Lung Cancer Forum but do feel welcome to post more questions.
    Thank you.

  4. #4
    Senior User
    Join Date
    Dec 2012
    Posts
    303
    Hello, ICE,

    Listen to Lisa..It will be time start worrying when the biopsy sings! I know that you've already been up the creek and across the bridge, but in this case, just let the water flow, so to speak.

    Having said that, biopsy(s) may not be easy. I had so many tries that I felt like a ____ pin cushion, so chin up when they try. Of course, in your case, the spots will probably be gone by the time they would have mentioned biopsy..

    Take care and enjoy every day,
    zim

  5. #5
    Super Moderator Top User po18guy's Avatar
    Join Date
    Feb 2012
    Posts
    10,303
    Have had several nodules since 2008. All resolved by themselves. Been sick? Virus? Cold? Allergies? Coughing? All of that can contribute to the formation of lung nodules. I hope that doctor reassured you of this(?) Simple monitoring of them is the plan, I am guessing.

    After3-4 viruses and a hospitalization this year, I am betting that I have several nodules right now. Due to immune suppression, viruses last from 1-3 months. Yup. Last month just got over Human Parainfluenza Virus type 3, which causes pneumonia.

    Coughed and hacked my head almost off. Better now, but I don't want to look at my lungs, frankly.
    05/08-07/08 Tumor appears behind left ear. Followed by serial medical incompetence on the parts of PCP, veteran oncologist and pathologist (misdiagnosis via non-diagnosis). Providential guidance to proper care at an NCI designated comprehensive cancer center.
    07/08 Age 56 DX 1) Peripheral T-Cell Lymphoma-Not Otherwise Specified. Stage IV-B, >50 ("innumerable") tumors, bone marrow involvement.
    08/08-12/08 Four cycles CHOEP14 + four cycles GND (Cyclofosfamide, Doxorubicin, Vincristine, Etoposide, Prednisone & Gemcitabine, Navelbine, Doxil)
    02/09 2) Relapse.
    03/09-06/13 Clinical trial of Romidepsin > long-term study. NED for 64 twenty-eight day cycles, dose tapered.
    07/13 3) Relapse, 4) Suspected Mutation.
    08/13-02/14 Romidepsin increased, stopped for lack of response. Watch & Wait.
    09/14 Relapse/Progression. Visible cervical nodes appear within 4 days of being checked clear.
    10/06/14 One cycle Belinostat. Discontinued to enter second clinical trial.
    10/25/14 Clinical trial of Alisertib/Failed - Progression.
    01/12/15 Belinostat resumed/Failed - Progression. 02/23/15
    02/24/15 Pralatrexate/Failed - Progression. 04/17/15
    04/15 Genomic profiling reveals mutation into PTCL-NOS + AngioImmunoblastic T-Cell Lymphoma. Stage IV-B a second time. Two dozen tumors + small intestine (Ileum) involvement.
    04/22/15 TEC (Bendamustine, Etoposide, Carboplatin). Full response in two cycles. PET/CT both clear. Third cycle followed.
    06/15-07/15 Transplant preparation (X-rays, spinal taps, BMB, blood test, MUGA scan, lung function, CMV screening, C-Diff testing etc. etc. etc.) Intrathecal Methotrexate during spinal tap.
    BMB reveals 5) 26% blast cells of 20q Deletion Myelodysplastic Syndrome MDS), a bone marrow cancer and precursor to Acute Myeloid Leukemia.
    07/11-12/15 Cyclofosfamide + Fludarabine conditioning regimen.
    07/16/15 Total Body Irradiation.
    07/17/15 Moderate intensity Haploidentical Allogeneic Stem Cell Transplant receiving my son's peripheral blood stem cells.
    07/21-22/15 Triple dose Cyclofosfamide + Mesna, followed by immunosuppressants Tacrolimus and Mycophenolate Mofetil.
    07/23-08/03/15 Marrow producing zero blood cells. Fever. Hospitalized two weeks.
    08/04/15 Engraftment occurs, and blood cells are measurable - released from hospital.
    08/13/15 Day 26 - Marrow is 100% donor cells. Platelets climbing steadily, red cells follow.
    09/21/15 Acute skin Graft versus Host Disease arrives.
    DEXA scan reveals Osteoporosis.
    09/26/-11/03/15 Prednisone to control skin GvHD.
    11/2015 Acute GvHD re-classified to Chronic Graft versus Host Disease.
    05/2016 Tacrolimus stopped. Prednisone from 30-90mg daily tried. Sirolimus begun. Narrow-band UV-B therapy started, but discontinued for lack of response. One treatment of P-UVAreceived, but halted due to medication reaction.
    09/16/16 Three skin punch biopsies.
    11/04/16 GvHD clinical trial of Ofatumumab (Arzerra) + Prednisone + Methylprednisolone begun.
    12/16 Type II Diabetes, Hypertension - both treatment-related.
    05/17 Extracorporeal Photopheresis (ECP) begun in attempt to control chronic Graft-versus-Host-Disease (cGvHD. 8 year old Power Port removed and replaced with Vortex (Smart) Port for ECP.
    05/2017 Chronic anemia (low hematocrit). Chronic kidney disease. Cataracts from radiation and steroids.
    06/17 Trying various antibiotics in a search for tolerable prophylaxis.
    08/17 Bone marrow biopsy reveals the presence of 2% cells with 20q Deletion Myelodysplastic Syndrome, considered to be Minimum Residual Disease.
    12/17 Bone marrow biopsy reveals no abnormalities in the marrow - MDS eradicated. The steroid taper continues.
    01/18 Consented for Kadmon clinical trial.
    03/18 Began 400mg daily of KD025, a rho-Associated Coiled-coil Kinase 2 Inhibitor (ROCK2).
    09/18 Due to refractory GvHD, Extracorporeal Photopheresis halted after 15 months ue to lack of additional benefit.
    10/18 I was withdrawn from the Kadmon KD025 clinical trial due to increasing fatigue/lack of benefit.
    11/18 Began therapy with Ruxolitinib (Jakafi), a JAK 1&2 inhibitor class drug. Started at half-dose due to concerns with drug interactions.

    To date: 1 cancer, relapse, second relapse/mutation into 2 cancers, then 3 cancers simultaneously, 20 chemotherapy/GVHD drugs in 11 regimens (4 of them at least twice), 5 salvage regimens, 4 clinical trials, 5 post-transplant immuno-suppressant/modulatory drugs, the equivalent of 1,000 years of background radiation from 40+ CT series scans and about 24 PET scans.
    Both lymphoid and myeloid malignancies lend a certain symmetry to the hematological journey.

    Believing in the redemptive value of suffering makes all the difference.

  6. #6
    Quote Originally Posted by po18guy View Post
    Have had several nodules since 2008. All resolved by themselves. Been sick? Virus? Cold? Allergies? Coughing? All of that can contribute to the formation of lung nodules. I hope that doctor reassured you of this(?) Simple monitoring of them is the plan, I am guessing.

    After3-4 viruses and a hospitalization this year, I am betting that I have several nodules right now. Due to immune suppression, viruses last from 1-3 months. Yup. Last month just got over Human Parainfluenza Virus type 3, which causes pneumonia.

    Coughed and hacked my head almost off. Better now, but I don't want to look at my lungs, frankly.
    Thank you all for the reassurance.

    As for sicknesses I really cannot say that I've had any recently. However when trying to diagnose breathing issues when exercising (intermittent), the pulmonologist did allergy testing. I'm allergic to nearly everything except my dog. Cats and every single tree, shrub and grass. In fact my highest level of reaction was to Bermuda grass and the doc was like "that's crazy high"

    Now that you mention it though, I've taken over the grass mowing again after my wife hurt her knee (I work 60+ hours a week and she loves yardwork). I wonder if that might be the culprit, breathing in my Bermuda grass while cutting it.

  7. #7
    Super Moderator Top User po18guy's Avatar
    Join Date
    Feb 2012
    Posts
    10,303
    If ever there was an excuse for not mowing the lawn...

  8. #8
    Quote Originally Posted by po18guy View Post
    If ever there was an excuse for not mowing the lawn...
    That's the funny part....the doc came in and said "I've got good news and bad news". Good, the CT showed no PE. The bad, you're off the charts allergic to nearly everything".

    I was like....uh huh sure. I've never had any kind of allergic reaction to anything at all. Even mowing the grass, I'm fine. I wondered if they got my results mixed up with someone else.

    Unless the breathing problems I've experienced intermittently were such an allergic reaction.

    We've been chasing down these breathing issues for a while and they've done it all. Breathing function tests, CT's, echocardiograms, stres test and heart cath, etc. Nothing. They cannot explain the breathing problems.

    After all that money, time and worry it would be a bit aggravating to find that a daily dose of claritin would solve it all.

    I'm quite concerned about these spots since it seems another mystery with no answer what's causing them and causing them to grow relatively fast.
    Last edited by IceStationZebra; 08-12-2019 at 10:50 AM.

 

Similar Threads

  1. Okay, Here Goes...
    By mumamay in forum Pancreatic Cancer Forum
    Replies: 12
    Last Post: 09-16-2013, 09:34 PM
  2. New here...hoping this is what I need
    By introverted_me in forum Coping and Support
    Replies: 4
    Last Post: 07-03-2007, 11:36 AM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •