A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.
Results 1 to 7 of 7

Thread: Worried: Head and neck/hyoid bone?

  1. #1

    .

    AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa
    Last edited by anonymous00000000; 08-15-2019 at 07:23 PM.

  2. #2
    Moderator Top User IndyLou's Avatar
    Join Date
    Jan 2014
    Posts
    510
    I can't say that I recall anyone describing a lump in the same location as you. Quite frankly, "lumps" associated with cancer are typically much larger, and there is no pain associated with them.

    I think you're doing a disservice to yourself by assuming the worst in this situation. You are statistically very young to be thinking about a head and neck cancer diagnosis. There are many, many other things this lump could be, including something as benign as an ingrown hair.

    I'm sorry to hear that you currently lack insurance, but perhaps you could find an urgent care, or even a primary care physician that would be willing to accept a cash payment for an exam, maybe at a reduced rate. They might be able to rule out a lot of things, or suggest a more obvious diagnosis based on their examination.

    One final thing--working out and staying in good physical shape is an excellent thing. Working out promotes good health, and does wonderful things for the body and mind. Working out does NOT prevent cancer, nor does it actively slow down cancer that might be already growing. Working out may make you feel like you're in control of your body, and that's worth something, but it doesn't cure cancer.

    As you do not yet have a diagnosis, I am moving this thread to "Worried..."
    Age 54 Male
    early Feb, 2013 - Noticed almond-sized lump in shaving area, right side of neck. No other "classic" cancer symptoms
    late Feb, 2013 - Visited PCP for check-up, PCP advised as lymphoma. Did blood work, orders for CT-scan, referred to ENT
    3/7/13 - CT-scan inconclusive, endoscopy negative
    3/9/13 - FNA of neck mass
    3/14/13 - Received dx of squamous-cell carcinoma, unknown primary
    3/25/13 - CT-PET scan reveals no other active tumors
    3/26/13 - work/up for IMRT
    4/1/13 - W1, D1 of weekly cetuximab
    4/8/13 - W1, D1 of IMRT
    5/20/13 - complete 8 week regimen of weekly cetuximab
    5/24/13 - Complete 35-day regimen of daily IMRT
    mid-July 2013 - CT-PET scan reveals no active tumors, but shows necrotic tissue at site of original tumor
    early Sept 2013 - partial neck dissection to remove necrotic tissue. Assay shows no cancer present.
    Spring 2014 - No signs of cancer
    Spring 2015 - NED
    Spring 2016 - NED
    Spring 2017 - NED
    Spring 2018 - NED
    Spring 2019 - NED

  3. #3
    AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaa
    Last edited by anonymous00000000; 08-15-2019 at 06:40 PM.

  4. #4
    Super Moderator Top User po18guy's Avatar
    Join Date
    Feb 2012
    Posts
    10,404
    Four words:

    1. Public
    2. Health
    3. Clinics
    4. Free
    05/08-07/08 Tumor appears behind left ear. Followed by serial medical incompetence on the parts of PCP, veteran oncologist and pathologist (misdiagnosis via non-diagnosis). Providential guidance to proper care at an NCI designated comprehensive cancer center.
    07/08 Age 56 DX 1) Peripheral T-Cell Lymphoma-Not Otherwise Specified. Stage IV-B, >50 ("innumerable") tumors, bone marrow involvement.
    08/08-12/08 Four cycles CHOEP14 + four cycles GND (Cyclofosfamide, Doxorubicin, Vincristine, Etoposide, Prednisone & Gemcitabine, Navelbine, Doxil)
    02/09 2) Relapse.
    03/09-06/13 Clinical trial of Romidepsin > long-term study. NED for 64 twenty-eight day cycles, dose tapered.
    07/13 3) Relapse, 4) Suspected Mutation.
    08/13-02/14 Romidepsin increased, stopped for lack of response. Watch & Wait.
    09/14 Relapse/Progression. Visible cervical nodes appear within 4 days of being checked clear.
    10/06/14 One cycle Belinostat. Discontinued to enter second clinical trial.
    10/25/14 Clinical trial of Alisertib/Failed - Progression.
    01/12/15 Belinostat resumed/Failed - Progression. 02/23/15
    02/24/15 Pralatrexate/Failed - Progression. 04/17/15
    04/15 Genomic profiling reveals mutation into PTCL-NOS + AngioImmunoblastic T-Cell Lymphoma. Stage IV-B a second time. Two dozen tumors + small intestine (Ileum) involvement.
    04/22/15 TEC (Bendamustine, Etoposide, Carboplatin). Full response in two cycles. PET/CT both clear. Third cycle followed.
    06/15-07/15 Transplant preparation (X-rays, spinal taps, BMB, blood test, MUGA scan, lung function, CMV screening, C-Diff testing etc. etc. etc.) Intrathecal Methotrexate during spinal tap.
    BMB reveals 5) 26% blast cells of 20q Deletion Myelodysplastic Syndrome MDS), a bone marrow cancer and precursor to Acute Myeloid Leukemia.
    07/11-12/15 Cyclofosfamide + Fludarabine conditioning regimen.
    07/16/15 Total Body Irradiation.
    07/17/15 Moderate intensity Haploidentical Allogeneic Stem Cell Transplant receiving my son's peripheral blood stem cells.
    07/21-22/15 Triple dose Cyclofosfamide + Mesna, followed by immunosuppressants Tacrolimus and Mycophenolate Mofetil.
    07/23-08/03/15 Marrow producing zero blood cells. Fever. Hospitalized two weeks.
    08/04/15 Engraftment occurs, and blood cells are measurable - released from hospital.
    08/13/15 Day 26 - Marrow is 100% donor cells. Platelets climbing steadily, red cells follow.
    09/21/15 Acute skin Graft versus Host Disease arrives.
    DEXA scan reveals Osteoporosis.
    09/26/-11/03/15 Prednisone to control skin GvHD.
    11/2015 Acute GvHD re-classified to Chronic Graft versus Host Disease.
    05/2016 Tacrolimus stopped. Prednisone from 30-90mg daily tried. Sirolimus begun. Narrow-band UV-B therapy started, but discontinued for lack of response. One treatment of P-UVAreceived, but halted due to medication reaction.
    09/16/16 Three skin punch biopsies.
    11/04/16 GvHD clinical trial of Ofatumumab (Arzerra) + Prednisone + Methylprednisolone begun.
    12/16 Type II Diabetes, Hypertension - both treatment-related.
    05/17 Extracorporeal Photopheresis (ECP) begun in attempt to control chronic Graft-versus-Host-Disease (cGvHD. 8 year old Power Port removed and replaced with Vortex (Smart) Port for ECP.
    05/2017 Chronic anemia (low hematocrit). Chronic kidney disease. Cataracts from radiation and steroids.
    06/17 Trying various antibiotics in a search for tolerable prophylaxis.
    08/17 Bone marrow biopsy reveals the presence of 2% cells with 20q Deletion Myelodysplastic Syndrome, considered to be Minimum Residual Disease.
    12/17 Bone marrow biopsy reveals no abnormalities in the marrow - MDS eradicated. The steroid taper continues.
    01/18 Consented for Kadmon clinical trial.
    03/18 Began 400mg daily of KD025, a rho-Associated Coiled-coil Kinase 2 Inhibitor (ROCK2).
    09/18 Due to refractory GvHD, Extracorporeal Photopheresis halted after 15 months ue to lack of additional benefit.
    10/18 I was withdrawn from the Kadmon KD025 clinical trial due to increasing fatigue/lack of benefit.
    11/18 Began therapy with Ruxolitinib (Jakafi), a JAK 1&2 inhibitor class drug. Started at half-dose due to concerns with drug interactions.

    To date: 1 cancer, relapse, second relapse/mutation into 2 cancers, then 3 cancers simultaneously, 20 chemotherapy/GVHD drugs in 11 regimens (4 of them at least twice), 5 salvage regimens, 4 clinical trials, 5 post-transplant immuno-suppressant/modulatory drugs, the equivalent of 1,000 years of background radiation from 40+ CT series scans and about 24 PET scans.
    Both lymphoid and myeloid malignancies lend a certain symmetry to the hematological journey.

    Believing in the redemptive value of suffering makes all the difference.

  5. #5
    AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa AaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaaAaaaaaaaaa Aaaaaaaaaa
    Last edited by anonymous00000000; 08-15-2019 at 06:40 PM.

  6. #6
    Moderator Top User IndyLou's Avatar
    Join Date
    Jan 2014
    Posts
    510
    I guess my next question is: if I do go to get a check up at a clinic and they refer me to a specialist (for the lump. remember this is an IF) at that point, I'm sure I'll need to have insurance?
    I think you're getting a little bit ahead of yourself, but you can always try to negotiate with your medical provider; you may or may not be able to afford an out-of-pocket cost. If the cost of health insurance is something you don't think you'll be able to afford any time soon, you should probably look into Medicaid. Many doctors' offices or hospitals have financial counselors that can give you options for paying for healthcare.

    One final word of caution: we advise on this forum, to avoid "Dr. Google," especially while you are currently in the exploratory stage of trying to figure out what's going on with your health. Dr. Google is wrong about working out as a means to slow, stop or prevent cancer. Cancer doesn't work like that. Dr. Google also can't take your entire medical history into account when you do a search, and if you put some single symptom into a search engine, you'll be able to find a lot of unrelated diseases and illnesses.
    Age 54 Male
    early Feb, 2013 - Noticed almond-sized lump in shaving area, right side of neck. No other "classic" cancer symptoms
    late Feb, 2013 - Visited PCP for check-up, PCP advised as lymphoma. Did blood work, orders for CT-scan, referred to ENT
    3/7/13 - CT-scan inconclusive, endoscopy negative
    3/9/13 - FNA of neck mass
    3/14/13 - Received dx of squamous-cell carcinoma, unknown primary
    3/25/13 - CT-PET scan reveals no other active tumors
    3/26/13 - work/up for IMRT
    4/1/13 - W1, D1 of weekly cetuximab
    4/8/13 - W1, D1 of IMRT
    5/20/13 - complete 8 week regimen of weekly cetuximab
    5/24/13 - Complete 35-day regimen of daily IMRT
    mid-July 2013 - CT-PET scan reveals no active tumors, but shows necrotic tissue at site of original tumor
    early Sept 2013 - partial neck dissection to remove necrotic tissue. Assay shows no cancer present.
    Spring 2014 - No signs of cancer
    Spring 2015 - NED
    Spring 2016 - NED
    Spring 2017 - NED
    Spring 2018 - NED
    Spring 2019 - NED

  7. #7
    Super Moderator Top User po18guy's Avatar
    Join Date
    Feb 2012
    Posts
    10,404
    Honestly, I sense anxiety in all of this.
    05/08-07/08 Tumor appears behind left ear. Followed by serial medical incompetence on the parts of PCP, veteran oncologist and pathologist (misdiagnosis via non-diagnosis). Providential guidance to proper care at an NCI designated comprehensive cancer center.
    07/08 Age 56 DX 1) Peripheral T-Cell Lymphoma-Not Otherwise Specified. Stage IV-B, >50 ("innumerable") tumors, bone marrow involvement.
    08/08-12/08 Four cycles CHOEP14 + four cycles GND (Cyclofosfamide, Doxorubicin, Vincristine, Etoposide, Prednisone & Gemcitabine, Navelbine, Doxil)
    02/09 2) Relapse.
    03/09-06/13 Clinical trial of Romidepsin > long-term study. NED for 64 twenty-eight day cycles, dose tapered.
    07/13 3) Relapse, 4) Suspected Mutation.
    08/13-02/14 Romidepsin increased, stopped for lack of response. Watch & Wait.
    09/14 Relapse/Progression. Visible cervical nodes appear within 4 days of being checked clear.
    10/06/14 One cycle Belinostat. Discontinued to enter second clinical trial.
    10/25/14 Clinical trial of Alisertib/Failed - Progression.
    01/12/15 Belinostat resumed/Failed - Progression. 02/23/15
    02/24/15 Pralatrexate/Failed - Progression. 04/17/15
    04/15 Genomic profiling reveals mutation into PTCL-NOS + AngioImmunoblastic T-Cell Lymphoma. Stage IV-B a second time. Two dozen tumors + small intestine (Ileum) involvement.
    04/22/15 TEC (Bendamustine, Etoposide, Carboplatin). Full response in two cycles. PET/CT both clear. Third cycle followed.
    06/15-07/15 Transplant preparation (X-rays, spinal taps, BMB, blood test, MUGA scan, lung function, CMV screening, C-Diff testing etc. etc. etc.) Intrathecal Methotrexate during spinal tap.
    BMB reveals 5) 26% blast cells of 20q Deletion Myelodysplastic Syndrome MDS), a bone marrow cancer and precursor to Acute Myeloid Leukemia.
    07/11-12/15 Cyclofosfamide + Fludarabine conditioning regimen.
    07/16/15 Total Body Irradiation.
    07/17/15 Moderate intensity Haploidentical Allogeneic Stem Cell Transplant receiving my son's peripheral blood stem cells.
    07/21-22/15 Triple dose Cyclofosfamide + Mesna, followed by immunosuppressants Tacrolimus and Mycophenolate Mofetil.
    07/23-08/03/15 Marrow producing zero blood cells. Fever. Hospitalized two weeks.
    08/04/15 Engraftment occurs, and blood cells are measurable - released from hospital.
    08/13/15 Day 26 - Marrow is 100% donor cells. Platelets climbing steadily, red cells follow.
    09/21/15 Acute skin Graft versus Host Disease arrives.
    DEXA scan reveals Osteoporosis.
    09/26/-11/03/15 Prednisone to control skin GvHD.
    11/2015 Acute GvHD re-classified to Chronic Graft versus Host Disease.
    05/2016 Tacrolimus stopped. Prednisone from 30-90mg daily tried. Sirolimus begun. Narrow-band UV-B therapy started, but discontinued for lack of response. One treatment of P-UVAreceived, but halted due to medication reaction.
    09/16/16 Three skin punch biopsies.
    11/04/16 GvHD clinical trial of Ofatumumab (Arzerra) + Prednisone + Methylprednisolone begun.
    12/16 Type II Diabetes, Hypertension - both treatment-related.
    05/17 Extracorporeal Photopheresis (ECP) begun in attempt to control chronic Graft-versus-Host-Disease (cGvHD. 8 year old Power Port removed and replaced with Vortex (Smart) Port for ECP.
    05/2017 Chronic anemia (low hematocrit). Chronic kidney disease. Cataracts from radiation and steroids.
    06/17 Trying various antibiotics in a search for tolerable prophylaxis.
    08/17 Bone marrow biopsy reveals the presence of 2% cells with 20q Deletion Myelodysplastic Syndrome, considered to be Minimum Residual Disease.
    12/17 Bone marrow biopsy reveals no abnormalities in the marrow - MDS eradicated. The steroid taper continues.
    01/18 Consented for Kadmon clinical trial.
    03/18 Began 400mg daily of KD025, a rho-Associated Coiled-coil Kinase 2 Inhibitor (ROCK2).
    09/18 Due to refractory GvHD, Extracorporeal Photopheresis halted after 15 months ue to lack of additional benefit.
    10/18 I was withdrawn from the Kadmon KD025 clinical trial due to increasing fatigue/lack of benefit.
    11/18 Began therapy with Ruxolitinib (Jakafi), a JAK 1&2 inhibitor class drug. Started at half-dose due to concerns with drug interactions.

    To date: 1 cancer, relapse, second relapse/mutation into 2 cancers, then 3 cancers simultaneously, 20 chemotherapy/GVHD drugs in 11 regimens (4 of them at least twice), 5 salvage regimens, 4 clinical trials, 5 post-transplant immuno-suppressant/modulatory drugs, the equivalent of 1,000 years of background radiation from 40+ CT series scans and about 24 PET scans.
    Both lymphoid and myeloid malignancies lend a certain symmetry to the hematological journey.

    Believing in the redemptive value of suffering makes all the difference.

 

Similar Threads

  1. Tips on Getting Through Chemo and Radiation for Head and Neck Cancer
    By Bskolnick in forum Head and Neck Cancer/ Thyroid Cancer Forum
    Replies: 6
    Last Post: 11-09-2015, 05:52 PM
  2. Head and neck cancer
    By mimixtwo in forum Head and Neck Cancer/ Thyroid Cancer Forum
    Replies: 13
    Last Post: 10-07-2008, 09:07 PM
  3. Replies: 0
    Last Post: 05-15-2005, 12:55 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •