A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.
Page 1 of 2 12 LastLast
Results 1 to 10 of 17

Thread: Worried about Husband

  1. #1
    Newbie New User
    Join Date
    Aug 2019
    Posts
    6

    Worried about Husband

    Hi, I'm new here but I don't know where else to turn.

    A month and a half ago my husband got really sick with what we thought was the stomach flu. When it came back three weeks later, only worse, he finally went to the doctor. He was sent for an ultrasound which found a cyst on his pancreas. An mri was scheduled for 2 days later. We have not heard from the doctor, but have gotten the radiologist report. It don't think it sounds good and so am very upset about not hearing from the doctor yet.

    What should I expect from the doctor? He's just a gp, but I want my husband sent to a specialist, like a week ago! Why is it taking so long?

    Sorry for the rant. I'm just so scared, worried, and not sleeping well.
    Last edited by LovestoRead; 08-18-2019 at 03:16 PM. Reason: Spelling

  2. #2
    Moderator Top User
    Join Date
    Mar 2010
    Posts
    1,342
    Hi sorry to see you feeling the need to post, I had a blood cancer so cannot comment on the likelihood of your husbands situation other that to advise, pick up the phone and call the doctor, explain your worries and see what they say, sometimes you have to help the process along. That way you will know if its serious or not and if that referral is required. Sitting waiting will only fuel the angst you feel, so be pro active.

    Hope you get the answers you need and your worst fears are not realised.

    John
    NHL DLBC aggressive stage 4B advanced
    diagnosed april 09
    after 8 rchop and a couple of delays, in remission
    some long term side effects to manage post treatment
    some blips and investigations on the journey but now
    22nd oct 2014 discharged no more hospital visits


    we are all on a roller coaster ride, riding blind never knowing where the highs and lows are.

  3. #3
    Newbie New User
    Join Date
    Feb 2019
    Posts
    7
    It seems like if it was a negative report and they suspect something it wouldn’t take 2+ weeks to get back to you. Definitely follow up and even the office staff can read the report to you over the phone.

  4. #4
    Super Moderator Top User ddessert's Avatar
    Join Date
    Oct 2013
    Posts
    2,532
    Blog Entries
    7
    They should next schedule an appointment for an endoscopic ultrasound (EUS) for a Fine-Needle Aspiration (FNA). This will be with a GI surgeon with special training for this procedure. They will try to get a sample of the site to do testing on it to see if it is cancer, what kind of cancer it is, and its possible subtypes, all of which is important for treatment.

    If you are in the USA, call PanCan.org at (877) 272-6226 and ask for specialists in your area. Use one or more of these names with your GP to ask for an immediate referral.

    Sometimes the office staff in these places are messed up. We’ve resorted to going to their office in person to speak with a nurse or the doctor (without an appointment) to get things moving. If you do this, remember that you need these people to be on your side to get things done in the future, so be tactful.
    BRCA2 3398del5
    Dec 2010 - back/abd pain
    May 2011 - Unresectable stage III, 2.5cm tumor
    Jun-Aug 2011 - Gem/Cis, 9 rounds
    Oct-Nov 2011 - IMRT+Xeloda
    Oct 2011-Sep 2012 - shrinking tumor
    Feb 2012 - National Familial Pancreatic Study
    Aug 2012 - Downgraded to stage IIA, PGP
    Sep 2012 - Whipple, T3N0M0, 0.5cm tumor, 0/16 lymph nodes
    Dec 2012 - Quebec PanCan Study
    Sep 2012-May 2019 - NED
    Mar 2013-present - NCT01088789
    Jun 2019- NCT03805919
    @pancanology

  5. #5
    Quote Originally Posted by LovestoRead View Post
    Hi, I'm new here but I don't know where else to turn.

    A month and a half ago my husband got really sick with what we thought was the stomach flu. When it came back three weeks later, only worse, he finally went to the doctor. He was sent for an ultrasound which found a cyst on his pancreas. An mri was scheduled for 2 days later. We have not heard from the doctor, but have gotten the radiologist report. It don't think it sounds good and so am very upset about not hearing from the doctor yet.

    What should I expect from the doctor? He's just a gp, but I want my husband sent to a specialist, like a week ago! Why is it taking so long?

    Sorry for the rant. I'm just so scared, worried, and not sleeping well.


    The problem here is with the doctor getting back to you to tell you how the test went. You are just assuming it "didn't sound good", but the doctor may have a different opinion and he's the trained professional.

    What you should expect from the doctor is for him to get back to you promptly when you are concerned.

    Maybe the results are on the doctor's patient portal, so he thinks you all already got the information?
    Nov 2013 PSA 4.2 Biopsy Jan 2014- 1 core positive, 20% Gleason 6, doctor highly reco'ed robotic RP - 2nd opinion at UPMC April 2014, put on active surveillance. 2nd biopsy Feb 2015, results negative. PSA test Feb 2016, 3.5. 3rd Biopsy Feb 2016. 3 positive cores less than 5%, Gleason 6. Octotype DX done April 2016, GPS Score of 24--rated "Low risk". PSA test 8/2016, 3.2. PSA test 1/2018 2.2 (after 7 months of proscar) PSA test 7/2018 2.3, PSA test 7/2019 2.0


    DOB 1956, in Pittsburgh, USA

  6. #6
    Newbie New User
    Join Date
    Aug 2019
    Posts
    6
    Thank you all so much for the replies. I am planning on calling the doctor this afternoon if we have still not heard anything, and will try to be patient and nice. I will also take your suggestion and contact PanCan right away. This is a little touchy because my husband does not want to get bad news, so no news is good news to him. However, when the radiologist report says "highly suspicious of malignancy," it seems rather urgent to me.

    Again, I really appreciate the support. I wish you all the best.

  7. #7
    Newbie New User
    Join Date
    Aug 2019
    Posts
    6
    Just an update.

    I called the dr and they had not received the mri report. They got it and called back saying they were scheduling a biopsy asap. Possible cancer and another that could be an IPMN.

    I also contacted PanCan.

    I'm upset, but somewhat relieved that things are now moving forward.

  8. #8
    Moderator Top User
    Join Date
    Mar 2010
    Posts
    1,342
    Your feelings are totally understandable and good that your call prompted some action, as I said earlier sometimes you have to be pro active so make sure you keep the "wheels well oiled" and chase when ever you feel it's needed.

    also make sure you look after yourself as things develop

    take care
    John
    NHL DLBC aggressive stage 4B advanced
    diagnosed april 09
    after 8 rchop and a couple of delays, in remission
    some long term side effects to manage post treatment
    some blips and investigations on the journey but now
    22nd oct 2014 discharged no more hospital visits


    we are all on a roller coaster ride, riding blind never knowing where the highs and lows are.

  9. #9
    Moderator Top User IndyLou's Avatar
    Join Date
    Jan 2014
    Posts
    515
    What should I expect from the doctor? He's just a gp, but I want my husband sent to a specialist, like a week ago! Why is it taking so long?
    Hello. I'm sorry that you're having to face some medical challenges. You should certainly be referred to a specialist, but you should know that they'll have to do the biopsy and possibly some other diagnostic tests before a diagnosis can be given.

    I suggest taking a notebook to any future doctor appointments, and take notes for any explanations given. You might also use that notebook to jot down any questions you have for the doctors. Several things that you should always ask following any diagnostic test, is 1) what might this test reveal; i.e., why are we doing it? 2) when do you expect the results to be available? 3) when will we have a follow-up with the doctor to discuss results? and 4) when will we be notified?

    I wish the best for your husband.

    For now, no diagnosis of cancer has been given, only that it's a possibility.
    Age 54 Male
    early Feb, 2013 - Noticed almond-sized lump in shaving area, right side of neck. No other "classic" cancer symptoms
    late Feb, 2013 - Visited PCP for check-up, PCP advised as lymphoma. Did blood work, orders for CT-scan, referred to ENT
    3/7/13 - CT-scan inconclusive, endoscopy negative
    3/9/13 - FNA of neck mass
    3/14/13 - Received dx of squamous-cell carcinoma, unknown primary
    3/25/13 - CT-PET scan reveals no other active tumors
    3/26/13 - work/up for IMRT
    4/1/13 - W1, D1 of weekly cetuximab
    4/8/13 - W1, D1 of IMRT
    5/20/13 - complete 8 week regimen of weekly cetuximab
    5/24/13 - Complete 35-day regimen of daily IMRT
    mid-July 2013 - CT-PET scan reveals no active tumors, but shows necrotic tissue at site of original tumor
    early Sept 2013 - partial neck dissection to remove necrotic tissue. Assay shows no cancer present.
    Spring 2014 - No signs of cancer
    Spring 2015 - NED
    Spring 2016 - NED
    Spring 2017 - NED
    Spring 2018 - NED
    Spring 2019 - NED

  10. #10
    Super Moderator Top User ddessert's Avatar
    Join Date
    Oct 2013
    Posts
    2,532
    Blog Entries
    7
    Quote Originally Posted by LovestoRead View Post
    Just an update.

    I called the dr and they had not received the mri report. They got it and called back saying they were scheduling a biopsy asap. Possible cancer and another that could be an IPMN.

    I also contacted PanCan.

    I'm upset, but somewhat relieved that things are now moving forward.
    Yes, I guess a messed up office.

    When the biopsy is scheduled, ask if there is a way to get enough material for genetic/molecular testing at the same time. This information can be really informative as to treatment steps (if cancer) and perhaps easily obtained during this procedure instead of wait/delay/expense for another one.

    Also, if he is in any pain, it's possible that they can perform a plexus nerve block while they're there. My father got one of these at his recommendation of the EUS GI surgeon and his pain was eliminated.
    BRCA2 3398del5
    Dec 2010 - back/abd pain
    May 2011 - Unresectable stage III, 2.5cm tumor
    Jun-Aug 2011 - Gem/Cis, 9 rounds
    Oct-Nov 2011 - IMRT+Xeloda
    Oct 2011-Sep 2012 - shrinking tumor
    Feb 2012 - National Familial Pancreatic Study
    Aug 2012 - Downgraded to stage IIA, PGP
    Sep 2012 - Whipple, T3N0M0, 0.5cm tumor, 0/16 lymph nodes
    Dec 2012 - Quebec PanCan Study
    Sep 2012-May 2019 - NED
    Mar 2013-present - NCT01088789
    Jun 2019- NCT03805919
    @pancanology

 

Similar Threads

  1. A very worried wife, husband had Lymph node biopsy today.
    By Chipstick in forum Lymphoma - Hodgkin's and Non-Hodgkin's Lymphoma Forum
    Replies: 4
    Last Post: 05-15-2013, 11:27 AM
  2. Worried sick for my husband
    By sosad in forum Prostate Cancer Forum
    Replies: 14
    Last Post: 03-29-2013, 11:31 PM
  3. worried husband quit taking all medications
    By jimbosgirl in forum Brain Tumors Forum
    Replies: 4
    Last Post: 02-23-2012, 10:44 PM
  4. worried for husband
    By OHgirl in forum Colon Cancer and Rectal Cancer Forum
    Replies: 4
    Last Post: 10-14-2010, 09:38 PM
  5. New, Worried About My Husband
    By Blair in forum Lung Cancer Forum
    Replies: 4
    Last Post: 07-27-2007, 09:56 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •