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Thread: Prostate Cancer in pelvic bone

  1. #11
    Quote Originally Posted by TracyD View Post
    I learned last night that they completed an MRI and bone scan prior to his RP but not a PET scan. The standard bone scan is apparently only 80% accurate though.
    It's probable that the bone scan will be replaced with other imaging in the not-too-distant future. It's current value lies in what it does reveal, imperfect as it is.

    TracyD, if you complete a signature file, it will provide your dad's history to those wanting to reply with and save you from having to repeat details as well. Instructions are in the Sticky Post "How to list my stats..." near the top of the main Forum page. Thereafter, adding new info to it is simple and quick.

    Djin
    69 yr at Dx, BPH x 20 yr, 9 (!) neg. Bx, PCA3-
    7-05-13 TURP for BPH (90→30 g) path neg., then 6-mo. checks
    6-06-17 Nodule on R + PSA rise on finasteride: 3.6→4.3
    6-28-17 Bx #10: 2/14 cores: G10 (5+5) 50% RB, G9 (4+5) 3% RLM
    Bone scan, CTs, X-rays: neg.
    8-7-17 Open RP, neg. frozen sections, Duke Regional
    SM EPE BNI LVI SVI LNI(16): negative, PNI+, nerves spared
    pT2c pN0 pMX acinar adenocarcinoma G9 (4+5) 5% of prostate (4.5x5x4 cm, 64 g)
    11-10-17 Decipher 0.37 Low Risk: 5-yr met risk 2.4%, 10-yr PCa-specific mortality 3.3%
    Dry; ED OK with sildenafil
    9-16-17 (5 wk) PSA <0.1
    LabCorp uPSA, Roche ECLIA:
    11-28-17 (3 m ) 0.010
    02-26-18 (6 m ) 0.009
    05-30-18 (9 m ) 0.007
    08-27-18 (1 yr.) 0.018 (?)
    09-26-18 (13 m) 0.013 (30-day check)
    11-26-18 (15 m) 0.012
    02-25-19 (18 m) 0.015
    05-22-19 (21 m) 0.015
    08-28-19 (2 yr. ) 0.016
    Avg. = 0.013

  2. #12
    Quote Originally Posted by TracyD View Post
    The thought was that they rent an apartment for the 2 months and come home weekends if he is up for it.
    That is an option, the treatments take about 2 hours of your day. What does he do the remaining 22 hours of the day? Is he also gong to change doctors? I am sure you have done research on survival for Stage IVb. While he has some quality life left is that the way he wants to spend it?
    Last edited by Duck2; 08-20-2019 at 09:09 PM.
    YOB 1957

    DX 12/18, GS 8, 4+4 6/12 cores, LL Apex 100%, LM Apex 60%, LL Mid 50%, LMM 40%, LL Base 5%, LM <5%, Right side negative.

    2/25/19 Robotic Laparoendoscopic Single Site Surgery outpatient Cleveland Clinic,

    3/6/19. Pathology - Grade Group 4 with Intraductal Carcinoma
    T3aNO, GS8, 21 mm unifocal tumor 10%. -7 Nodes, - SV, - Margins, - PNI,
    - bladder neck neg., +LVI, + EPE non focal apex/mid lateral 1mm max extension, Cribriform pattern present. Decipher .86 High Risk.

    PSA 3/27/19 .03. (29 days)
    4/25/19 <.03. (58 days)
    5/25/19 <.02. (88 days)
    9/10/2019. <.02. (198 days)

    ADT - 6/19 - 6/21
    ART - 78Gy 8/19 - 9/19

  3. #13
    Excellent point, Duck. I was having similar thoughts.

  4. #14
    Senior User
    Join Date
    Feb 2017
    Posts
    169
    First, it's wonderful that you're at your Dad's side as your family takes on this challenge. I speak from personal experience as my son has been at my side since day one of this journey.

    There are a LOT of options for treating your Dad, but they may not all be local.

    (I just posted this in another thread, but I'll repeat my suggestion...). Given the challenges, go for a consult at Mayo, Cleveland Clinic, MD Anderson, Johns Hopkins....you can set this up with a phone call. They'll tell you what they'll want to see -- biopsy, pathology report, etc. These folks have access to the most current information on all of the various kinds of therapy available. There may well be a clinical trial that he'd fit right into. For sure they will come up with some therapy options that your local folks may not be familiar with.

    If you look at my signature stuff you'll see that I live in NC but have been treated at Johns Hopkins because of a really nasty G9 pathology report. Hopkins put me into a clinical trial that was an exact match with my diagnosis. My local cancer center did the radiation therapy portion of the trial based on what Johns Hopkins recommended....and my RO and my Dr. at Hopkins coordinated this to save me from spending a couple of months in Baltimore.

    There are creative solutions....and I have a feeling that you are going to figure this out.

    Let us know how this goes.
    2010-PSA 3.59; 2011-PSA 3.58; 2012-PSA 5.28, 4.26; 2013-PSA 5.98, 7.37; 2014-PSA 5.90, 4.70; 2015-PSA 5.18, 7.35
    RALP 16 March 17, Wesley Long, Greensboro, NC
    Pathology: pT3a, pN1 Gleason 4+5=9 adenocarcinoma with + surgical margin at bladder neck; 3 of 16 lymph nodes positive; neg seminal vesicles, vasa deferens
    Referral to Dr. Ken Pienta, Clinical Dir Research, Brady Center, Johns Hopkins
    Enrolled in Clinical Trial IRB002120414 “Phase II Study of definitive therapy for oligometastatic prostate cancer post surgery"
    Completed: Docetaxel 12 Jun 17, 3 Jul 17, 24 Jul 17, 14 Aug 17, 15 Sep 17
    Lupron every 90 days for two years. Completed March 2019
    Bone/Body Scans - 15 Sep 17 - neg; 15 Mar 18 - neg; 14 Sep 18 - neg; 17 Mar 19 - neg
    EBRT: 69 Gy total (46 to fossa, 23 boost to suspect areas) 1st treatment 28 Sep 17, last 22 Nov 17
    PSA: 25 May 17=0.2; 5 Sep 17=0.1; 18 Dec 17=0.1; 6 Mar 18=0.1; 29 May 18=0.1; 5 Sep 18=0.1; 17 Dec 18=0.1; 12 Mar 19=0.1; 15 Jul=0.1

 

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