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Thread: Colon cancer scare

  1. #1
    Newbie New User
    Join Date
    Aug 2019

    Colon cancer scare

    Hello. This is going to be very long so please be prepared.

    It all started in July when I started to get abdominal pain for about 3 days. It was all over my abdomen and I could feel it shooting between the middle of my chest. I read about a girl who was not much older than me (sheís 25/26) and was diagnosed with advanced bowel cancer!! I am 23. I then started seeing blood & mucus in my stool and constipation. The blood has never really been that much. Iíve done a blood test which shows no sign of anemia, perfect liver function and kidney function! Itís been two months and Iím due a colonoscopy very soon and Iím so scared I feel like my life is just starting and itís going to be over before itís even started. This is so unfair. I know theyíre going to say we found a mass and itís cancerous. Iím hoping to God itís precancerous or something or colitis (which is what my grandad has). Iíve already had a health scare this year which turned out I didnít have. I just wish I could go back to 2018 where I was just enjoying life carefree. I wish I could just forget about this just for one day so I could truly enjoy myself. I know Iíd probably get cancer but not at 23!!! Iím so depressed and anxious.

  2. #2
    Administrator Top User lisa1962's Avatar
    Join Date
    Jan 2013
    Sorry your worries brought you here posting on a cancer forum. Now, we are not doctors but can say that thinking, or believing you have cancer is extreme at this time. Yes, can younger age people be diagnosed with colon cancer, yes but rare.

    Guessing you have Googled symptoms? Goggle is not a doctor, has no medical degree and can convince even the most level headed, logical person they are seriously ill.

    Have the colonoscopy and discuss your worry with your doctor. Symptoms do not equal cancer.

    Let the doctors do their job and until you have the test and results are provided, keep yourself busy and focus on other things.


  3. #3
    Super Moderator Top User po18guy's Avatar
    Join Date
    Feb 2012
    "Depressed and anxious" - I think this is what your true health issue is. Ask yourself: with over 68,000 known diseases and conditions, why must this be cancer? Especially since there are only about 125 types of cancer and given your age, which is in the low cancer rate but high anxiety demographic.

    Cancer? You know, anxiety can cause over 100 actual symptoms - many of them mimicking cancer. Scroll down the page and see if you do not recognize your symptoms there. Have the colonoscopy, but do not be surprised when it comes back clean. It is also an excellent idea to speak with doctor about your stress and anxiety. No way it can ever help you. Stamp it out! Live in peace.
    05/08-07/08 Tumor appears behind left ear. Followed by serial medical incompetence on the parts of PCP, veteran oncologist and pathologist (misdiagnosis via non-diagnosis). Providential guidance to proper care at an NCI designated comprehensive cancer center.
    07/08 Age 56 DX 1) Peripheral T-Cell Lymphoma-Not Otherwise Specified. Stage IV-B, >50 ("innumerable") tumors, bone marrow involvement.
    08/08-12/08 Four cycles CHOEP14 + four cycles GND (Cyclofosfamide, Doxorubicin, Vincristine, Etoposide, Prednisone & Gemcitabine, Navelbine, Doxil)
    02/09 2) Relapse.
    03/09-06/13 Clinical trial of Romidepsin > long-term study. NED for 64 twenty-eight day cycles, dose tapered.
    07/13 3) Relapse, 4) Suspected Mutation.
    08/13-02/14 Romidepsin increased, stopped for lack of response. Watch & Wait.
    09/14 Relapse/Progression. Visible cervical nodes appear within 4 days of being checked clear.
    10/06/14 One cycle Belinostat. Discontinued to enter second clinical trial.
    10/25/14 Clinical trial of Alisertib/Failed - Progression.
    01/12/15 Belinostat resumed/Failed - Progression. 02/23/15
    02/24/15 Pralatrexate/Failed - Progression. 04/17/15
    04/15 Genomic profiling reveals mutation into PTCL-NOS + AngioImmunoblastic T-Cell Lymphoma. Stage IV-B a second time. Two dozen tumors + small intestine (Ileum) involvement.
    04/22/15 TEC (Bendamustine, Etoposide, Carboplatin). Full response in two cycles. PET/CT both clear. Third cycle followed.
    06/15-07/15 Transplant preparation (X-rays, spinal taps, BMB, blood test, MUGA scan, lung function, CMV screening, C-Diff testing etc. etc. etc.) Intrathecal Methotrexate during spinal tap.
    BMB reveals 5) 26% blast cells of 20q Deletion Myelodysplastic Syndrome MDS), a bone marrow cancer and precursor to Acute Myeloid Leukemia.
    07/11-12/15 Cyclofosfamide + Fludarabine conditioning regimen.
    07/16/15 Total Body Irradiation.
    07/17/15 Moderate intensity Haploidentical Allogeneic Stem Cell Transplant receiving my son's peripheral blood stem cells.
    07/21-22/15 Triple dose Cyclofosfamide + Mesna, followed by immunosuppressants Tacrolimus and Mycophenolate Mofetil.
    07/23-08/03/15 Marrow producing zero blood cells. Fever. Hospitalized two weeks.
    08/04/15 Engraftment occurs, and blood cells are measurable - released from hospital.
    08/13/15 Day 26 - Marrow is 100% donor cells. Platelets climbing steadily, red cells follow.
    09/21/15 Acute skin Graft versus Host Disease arrives.
    DEXA scan reveals Osteoporosis.
    09/26/-11/03/15 Prednisone to control skin GvHD.
    11/2015 Acute GvHD re-classified to Chronic Graft versus Host Disease.
    05/2016 Tacrolimus stopped. Prednisone from 30-90mg daily tried. Sirolimus begun. Narrow-band UV-B therapy started, but discontinued for lack of response. One treatment of P-UVAreceived, but halted due to medication reaction.
    09/16/16 Three skin punch biopsies.
    11/04/16 GvHD clinical trial of Ofatumumab (Arzerra) + Prednisone + Methylprednisolone begun.
    12/16 Type II Diabetes, Hypertension - both treatment-related.
    05/17 Extracorporeal Photopheresis (ECP) begun in attempt to control chronic Graft-versus-Host-Disease (cGvHD. 8 year old Power Port removed and replaced with Vortex (Smart) Port for ECP.
    05/2017 Chronic anemia (low hematocrit). Chronic kidney disease. Cataracts from radiation and steroids.
    06/17 Trying various antibiotics in a search for tolerable prophylaxis.
    08/17 Bone marrow biopsy reveals the presence of 2% cells with 20q Deletion Myelodysplastic Syndrome, considered to be Minimum Residual Disease.
    12/17 Bone marrow biopsy reveals no abnormalities in the marrow - MDS eradicated. The steroid taper continues.
    01/18 Consented for Kadmon clinical trial.
    03/18 Began 400mg daily of KD025, a rho-Associated Coiled-coil Kinase 2 Inhibitor (ROCK2).
    09/18 Due to refractory GvHD, Extracorporeal Photopheresis halted after 15 months ue to lack of additional benefit.
    10/18 I was withdrawn from the Kadmon KD025 clinical trial due to increasing fatigue/lack of benefit.
    11/18 Began therapy with Ruxolitinib (Jakafi), a JAK 1&2 inhibitor class drug. Started at half-dose due to concerns with drug interactions.

    To date: 1 cancer, relapse, second relapse/mutation into 2 cancers, then 3 cancers simultaneously, 20 chemotherapy/GVHD drugs in 11 regimens (4 of them at least twice), 5 salvage regimens, 4 clinical trials, 5 post-transplant immuno-suppressant/modulatory drugs, the equivalent of 1,000 years of background radiation from 40+ CT series scans and about 24 PET scans.
    Both lymphoid and myeloid malignancies lend a certain symmetry to the hematological journey.

    Believing in the redemptive value of suffering makes all the difference.


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