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Thread: Just finished Proton Therapy

  1. #1
    Senior User
    Join Date
    Apr 2013
    Posts
    115

    Just finished Proton Therapy

    Seven weeks and 30 Rad treatments are behind me and Chemo will begin in about a month for a year. UGH
    RACL

  2. #2
    How do you feel? I hope it went fairly well for you. I have a friend on the chemo and she says itís kind of rough. I hope itís smoother for you.

  3. #3
    Senior User
    Join Date
    Apr 2013
    Posts
    115
    I am just soooo tired and nauseated. I hope for a little improvement before I have to start chemo. I took chemo for a year in 2012 when first diagnosed and I feel like I lost a year because I felt so bad. Beginning July 15 I took 27 treatments of proton and three treatments of photon because the proton beam went down for a week. It was so disappointing but I had a great team working with me.

  4. #4
    Iím so sorry. Iíve heard itís pretty rough going through the radiation. The break hopefully will get you feeling a little better before chemo starts again. It is so unfortunate that the chemo for us is a year and we have to feel bad for so long. I hope you have lots of support and love.

  5. #5
    Super Moderator Top User
    Join Date
    May 2011
    Posts
    870
    just curious what they told you about pros and cons of proton vs photon radiation?

    Good luck!
    Nikos

    Glioblastoma IV, frontal lobe - Dx March 2011. Treated with standard Stupp protocol
    Recurrence August 2016 (at 5 years PFS). Surgery August 2016, rechallenge with TMZ with immunotheraphy (nivolumab)

 

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