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Thread: Lanreotide Side Effects

  1. #1
    Newbie New User
    Join Date
    Sep 2019

    Lanreotide Side Effects

    I have PNET and have had to stop treatment a second time.
    Is there anyone who has or had severe side effects from a 60mg per 28 days Lanreotide injections and has had to stop treatment ?

  2. #2
    Super Moderator Top User ddessert's Avatar
    Join Date
    Oct 2013
    Blog Entries
    Pretty much everyone here has pancreatic adenocarcinoma (ductal or acinar). You will find a very active pNET group on the Inspire network.

    Good Luck!
    BRCA2 3398del5
    Dec 2010 - back/abd pain
    May 2011 - Unresectable stage III, 2.5cm tumor
    Jun-Aug 2011 - Gem/Cis, 9 rounds
    Oct-Nov 2011 - IMRT+Xeloda
    Oct 2011-Sep 2012 - shrinking tumor
    Feb 2012 - National Familial Pancreatic Study
    Aug 2012 - Downgraded to stage IIA, PGP
    Sep 2012 - Whipple, T3N0M0, 0.5cm tumor, 0/16 lymph nodes
    Dec 2012 - Quebec PanCan Study
    Sep 2012-May 2019 - NED
    Mar 2013-present - NCT01088789
    Jun 2019- NCT03805919

  3. #3
    Newbie New User
    Join Date
    Sep 2019
    Thank you for your suggestion.

  4. #4
    Newbie New User
    Join Date
    Sep 2019
    Hi ..*ddessert.

    I just wanted to thank you again for the link to "inspire network".

    Found PNET straight up.

    Ive tried every other cancer site on the net almost and PNET is not well known or understood by many so i find it frustrating having people without PNET telling "ME" things they have just quickly googled and use that as an answer to my problems.

    Looks like if there is a site for me your link may be the one for me.

    I hope all the best for you and your family.

    Kind Regards

  5. #5
    Good Luck OZDavid !


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