A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.
Results 1 to 8 of 8

Thread: Scared and confused. Adrenal adenoma

  1. #1
    Newbie New User
    Join Date
    Oct 2019
    Posts
    5

    Scared and confused. Adrenal adenoma

    Two years ago an adrenal gland adenoma showed up on a ct scan.

    Two weeks ago I had an abdominal ct scan done and this is what the report said.

    left adrenal nodule is present which is most consistent with an adrenal adenoma based on Hounsfield units.

    Ok. One of the Drs. at my regular pcp consulted with another radiologist and a urologist and they are setting me up for another ct scan or MRI. I've been asking why and no one would tell me! Finally, almost 2 weeks later, his nurse calls and says a new test is needed because it's changed. I asked how she said she didn't know and Dr said if I have any more questions I have to schedule an appt. I'm worried sick.

  2. #2
    Newbie New User
    Join Date
    Oct 2019
    Posts
    6
    I've been down this road before (with my lung and now my blood). All you can do is believe that they have your best interests in mind. If I was in your shoes I'd schedule the appointment as soon as possible. I'd also educate myself as much as possible prior to the appointment so you can ask all the questions you need to at that time.

    One thing to take away from this is that your doctor consulted with others because of a concern. In my opinion this means that your pcp is a thinker and knows when to ask for help. If I was to guess I'd guess that they want imaging with contrast vs the prior imaging. As much as it sucks it's a process you must go through.

    Wishing you the best,
    Bruce

  3. #3
    Super Moderator Top User po18guy's Avatar
    Join Date
    Feb 2012
    Posts
    10,448
    Sorry to hear this. Change does not necessarily = cancer. From the web:

    "An adenoma is a benign tumor of epithelial tissue with glandular origin, glandular characteristics, or both. Adenomas can grow from many glandular organs, including the adrenal glands, pituitary gland, thyroid, prostate, and others. Some adenomas grow from epithelial tissue in nonglandular areas but express glandular tissue structure (as can happen in familial polyposis coli). Although adenomas are benign, they should be treated as pre-cancerous. Over time adenomas may transform to become malignant, at which point they are called adenocarcinomas. Most adenomas do not transform. However, even though benign, they have the potential to cause serious health complications by compressing other structures (mass effect) and by producing large amounts of hormones in an unregulated, non-feedback-dependent manner (causing paraneoplastic syndromes). Some adenomas are too small to be seen macroscopically but can still cause clinical symptoms."
    05/08-07/08 Tumor appears behind left ear. Followed by serial medical incompetence on the parts of PCP, veteran oncologist and pathologist (misdiagnosis via non-diagnosis). Providential guidance to proper care at an NCI designated comprehensive cancer center.
    07/08 Age 56 DX 1) Peripheral T-Cell Lymphoma-Not Otherwise Specified. Stage IV-B, >50 ("innumerable") tumors, bone marrow involvement.
    08/08-12/08 Four cycles CHOEP14 + four cycles GND (Cyclofosfamide, Doxorubicin, Vincristine, Etoposide, Prednisone & Gemcitabine, Navelbine, Doxil)
    02/09 2) Relapse.
    03/09-06/13 Clinical trial of Romidepsin > long-term study. NED for 64 twenty-eight day cycles, dose tapered.
    07/13 3) Relapse, 4) Suspected Mutation.
    08/13-02/14 Romidepsin increased, stopped for lack of response. Watch & Wait.
    09/14 Relapse/Progression. Visible cervical nodes appear within 4 days of being checked clear.
    10/06/14 One cycle Belinostat. Discontinued to enter second clinical trial.
    10/25/14 Clinical trial of Alisertib/Failed - Progression.
    01/12/15 Belinostat resumed/Failed - Progression. 02/23/15
    02/24/15 Pralatrexate/Failed - Progression. 04/17/15
    04/15 Genomic profiling reveals mutation into PTCL-NOS + AngioImmunoblastic T-Cell Lymphoma. Stage IV-B a second time. Two dozen tumors + small intestine (Ileum) involvement.
    04/22/15 TEC (Bendamustine, Etoposide, Carboplatin). Full response in two cycles. PET/CT both clear. Third cycle followed.
    06/15-07/15 Transplant preparation (X-rays, spinal taps, BMB, blood test, MUGA scan, lung function, CMV screening, C-Diff testing etc. etc. etc.) Intrathecal Methotrexate during spinal tap.
    BMB reveals 5) 26% blast cells of 20q Deletion Myelodysplastic Syndrome MDS), a bone marrow cancer and precursor to Acute Myeloid Leukemia.
    07/11-12/15 Cyclofosfamide + Fludarabine conditioning regimen.
    07/16/15 Total Body Irradiation.
    07/17/15 Moderate intensity Haploidentical Allogeneic Stem Cell Transplant receiving my son's peripheral blood stem cells.
    07/21-22/15 Triple dose Cyclofosfamide + Mesna, followed by immunosuppressants Tacrolimus and Mycophenolate Mofetil.
    07/23-08/03/15 Marrow producing zero blood cells. Fever. Hospitalized two weeks.
    08/04/15 Engraftment occurs, and blood cells are measurable - released from hospital.
    08/13/15 Day 26 - Marrow is 100% donor cells. Platelets climbing steadily, red cells follow.
    09/21/15 Acute skin Graft versus Host Disease arrives.
    DEXA scan reveals Osteoporosis.
    09/26/-11/03/15 Prednisone to control skin GvHD.
    11/2015 Acute GvHD re-classified to Chronic Graft versus Host Disease.
    05/2016 Tacrolimus stopped. Prednisone from 30-90mg daily tried. Sirolimus begun. Narrow-band UV-B therapy started, but discontinued for lack of response. One treatment of P-UVAreceived, but halted due to medication reaction.
    09/16/16 Three skin punch biopsies.
    11/04/16 GvHD clinical trial of Ofatumumab (Arzerra) + Prednisone + Methylprednisolone begun.
    12/16 Type II Diabetes, Hypertension - both treatment-related.
    05/17 Extracorporeal Photopheresis (ECP) begun in attempt to control chronic Graft-versus-Host-Disease (cGvHD. 8 year old Power Port removed and replaced with Vortex (Smart) Port for ECP.
    05/2017 Chronic anemia (low hematocrit). Chronic kidney disease. Cataracts from radiation and steroids.
    06/17 Trying various antibiotics in a search for tolerable prophylaxis.
    08/17 Bone marrow biopsy reveals the presence of 2% cells with 20q Deletion Myelodysplastic Syndrome, considered to be Minimum Residual Disease.
    12/17 Bone marrow biopsy reveals no abnormalities in the marrow - MDS eradicated. The steroid taper continues.
    01/18 Consented for Kadmon clinical trial.
    03/18 Began 400mg daily of KD025, a rho-Associated Coiled-coil Kinase 2 Inhibitor (ROCK2).
    09/18 Due to refractory GvHD, Extracorporeal Photopheresis halted after 15 months ue to lack of additional benefit.
    10/18 I was withdrawn from the Kadmon KD025 clinical trial due to increasing fatigue/lack of benefit.
    11/18 Began therapy with Ruxolitinib (Jakafi), a JAK 1&2 inhibitor class drug. Started at half-dose due to concerns with drug interactions.

    To date: 1 cancer, relapse, second relapse/mutation into 2 cancers, then 3 cancers simultaneously, 20 chemotherapy/GVHD drugs in 11 regimens (4 of them at least twice), 5 salvage regimens, 4 clinical trials, 5 post-transplant immuno-suppressant/modulatory drugs, the equivalent of 1,000 years of background radiation from 40+ CT series scans and about 24 PET scans.
    Both lymphoid and myeloid malignancies lend a certain symmetry to the hematological journey.

    Believing in the redemptive value of suffering makes all the difference.

  4. #4
    Newbie New User
    Join Date
    Oct 2019
    Posts
    5
    I asked them to seek another opinion because the one from the ER mentioned my pancreas. They said it was normal and consistent with mine from 2 years ago.
    I've read so much online and it sounds like benign ones can grow and change so I'm trying to take some comfort in that.
    My other issue is that my husband got laid off so we have no insurance and no money for the Dr. This Dr. knows this and refused to talk to me. I just think that's wrong, very wrong. I also don't understand the one from,2 weeks ago sounds like they pretty much labeled it benign and it was compared from the 2017 one. How can they see something so diffetent?




    QUOTE=BruceH;389854]I've been down this road before (with my lung and now my blood). All you can do is believe that they have your best interests in mind. If I was in your shoes I'd schedule the appointment as soon as possible. I'd also educate myself as much as possible prior to the appointment so you can ask all the questions you need to at that time.

    One thing to take away from this is that your doctor consulted with others because of a concern. In my opinion this means that your pcp is a thinker and knows when to ask for help. If I was to guess I'd guess that they want imaging with contrast vs the prior imaging. As much as it sucks it's a process you must go through.

    Wishing you the best,
    Bruce[/QUOTE]
    Last edited by Pookiepoo64; 10-19-2019 at 09:30 AM. Reason: Typo

  5. #5
    Newbie New User
    Join Date
    Oct 2019
    Posts
    5
    I asked them to seek another opinion because the one from the ER mentioned my pancreas. They said it was normal and consistent with mine from 2 years ago.
    I've read so much online and it sounds like benign ones can grow and change so I'm trying to take some comfort in that.
    My other issue is that my husband got laid off so we have no insurance and no money for the Dr. This Dr. knows this and refused to talk to me. I just think that's wrong, very wrong.




    QUOTE=BruceH;389854]I've been down this road before (with my lung and now my blood). All you can do is believe that they have your best interests in mind. If I was in your shoes I'd schedule the appointment as soon as possible. I'd also educate myself as much as possible prior to the appointment so you can ask all the questions you need to at that time.

    One thing to take away from this is that your doctor consulted with others because of a concern. In my opinion this means that your pcp is a thinker and knows when to ask for help. If I was to guess I'd guess that they want imaging with contrast vs the prior imaging. As much as it sucks it's a process you must go through.

    Wishing you the best,
    Bruce[/QUOTE]

  6. #6
    Newbie New User
    Join Date
    Oct 2019
    Posts
    5
    I compiled a complete list of every mri and ct scan from the last two years. They all mention,it in a very different way. I'm trying to make this a good thing. Here it is:

    10/03/19

    left

    adrenal nodule is present which is most consistent with an adrenal adenoma based on

    Hounsfield units.

    July 2017

    Small left adrenal nodule,

    indeterminate but statistically likely an adrenal adenoma.

    8/2017 MRI

    Adrenal glands show some stable nodular

    thickening.

    There is some signal loss in the areas of adrenal

    nodularity suggesting adenomas.

    8/20/2017

    There is a small left adrenal gland nodule not

    significantly changed.

  7. #7
    Super Moderator Top User po18guy's Avatar
    Join Date
    Feb 2012
    Posts
    10,448
    1. You do not have cancer until a pathology report (based on a biopsy sample) says that you have cancer.

    This is how remain sane during the diagnostic procedure.
    05/08-07/08 Tumor appears behind left ear. Followed by serial medical incompetence on the parts of PCP, veteran oncologist and pathologist (misdiagnosis via non-diagnosis). Providential guidance to proper care at an NCI designated comprehensive cancer center.
    07/08 Age 56 DX 1) Peripheral T-Cell Lymphoma-Not Otherwise Specified. Stage IV-B, >50 ("innumerable") tumors, bone marrow involvement.
    08/08-12/08 Four cycles CHOEP14 + four cycles GND (Cyclofosfamide, Doxorubicin, Vincristine, Etoposide, Prednisone & Gemcitabine, Navelbine, Doxil)
    02/09 2) Relapse.
    03/09-06/13 Clinical trial of Romidepsin > long-term study. NED for 64 twenty-eight day cycles, dose tapered.
    07/13 3) Relapse, 4) Suspected Mutation.
    08/13-02/14 Romidepsin increased, stopped for lack of response. Watch & Wait.
    09/14 Relapse/Progression. Visible cervical nodes appear within 4 days of being checked clear.
    10/06/14 One cycle Belinostat. Discontinued to enter second clinical trial.
    10/25/14 Clinical trial of Alisertib/Failed - Progression.
    01/12/15 Belinostat resumed/Failed - Progression. 02/23/15
    02/24/15 Pralatrexate/Failed - Progression. 04/17/15
    04/15 Genomic profiling reveals mutation into PTCL-NOS + AngioImmunoblastic T-Cell Lymphoma. Stage IV-B a second time. Two dozen tumors + small intestine (Ileum) involvement.
    04/22/15 TEC (Bendamustine, Etoposide, Carboplatin). Full response in two cycles. PET/CT both clear. Third cycle followed.
    06/15-07/15 Transplant preparation (X-rays, spinal taps, BMB, blood test, MUGA scan, lung function, CMV screening, C-Diff testing etc. etc. etc.) Intrathecal Methotrexate during spinal tap.
    BMB reveals 5) 26% blast cells of 20q Deletion Myelodysplastic Syndrome MDS), a bone marrow cancer and precursor to Acute Myeloid Leukemia.
    07/11-12/15 Cyclofosfamide + Fludarabine conditioning regimen.
    07/16/15 Total Body Irradiation.
    07/17/15 Moderate intensity Haploidentical Allogeneic Stem Cell Transplant receiving my son's peripheral blood stem cells.
    07/21-22/15 Triple dose Cyclofosfamide + Mesna, followed by immunosuppressants Tacrolimus and Mycophenolate Mofetil.
    07/23-08/03/15 Marrow producing zero blood cells. Fever. Hospitalized two weeks.
    08/04/15 Engraftment occurs, and blood cells are measurable - released from hospital.
    08/13/15 Day 26 - Marrow is 100% donor cells. Platelets climbing steadily, red cells follow.
    09/21/15 Acute skin Graft versus Host Disease arrives.
    DEXA scan reveals Osteoporosis.
    09/26/-11/03/15 Prednisone to control skin GvHD.
    11/2015 Acute GvHD re-classified to Chronic Graft versus Host Disease.
    05/2016 Tacrolimus stopped. Prednisone from 30-90mg daily tried. Sirolimus begun. Narrow-band UV-B therapy started, but discontinued for lack of response. One treatment of P-UVAreceived, but halted due to medication reaction.
    09/16/16 Three skin punch biopsies.
    11/04/16 GvHD clinical trial of Ofatumumab (Arzerra) + Prednisone + Methylprednisolone begun.
    12/16 Type II Diabetes, Hypertension - both treatment-related.
    05/17 Extracorporeal Photopheresis (ECP) begun in attempt to control chronic Graft-versus-Host-Disease (cGvHD. 8 year old Power Port removed and replaced with Vortex (Smart) Port for ECP.
    05/2017 Chronic anemia (low hematocrit). Chronic kidney disease. Cataracts from radiation and steroids.
    06/17 Trying various antibiotics in a search for tolerable prophylaxis.
    08/17 Bone marrow biopsy reveals the presence of 2% cells with 20q Deletion Myelodysplastic Syndrome, considered to be Minimum Residual Disease.
    12/17 Bone marrow biopsy reveals no abnormalities in the marrow - MDS eradicated. The steroid taper continues.
    01/18 Consented for Kadmon clinical trial.
    03/18 Began 400mg daily of KD025, a rho-Associated Coiled-coil Kinase 2 Inhibitor (ROCK2).
    09/18 Due to refractory GvHD, Extracorporeal Photopheresis halted after 15 months ue to lack of additional benefit.
    10/18 I was withdrawn from the Kadmon KD025 clinical trial due to increasing fatigue/lack of benefit.
    11/18 Began therapy with Ruxolitinib (Jakafi), a JAK 1&2 inhibitor class drug. Started at half-dose due to concerns with drug interactions.

    To date: 1 cancer, relapse, second relapse/mutation into 2 cancers, then 3 cancers simultaneously, 20 chemotherapy/GVHD drugs in 11 regimens (4 of them at least twice), 5 salvage regimens, 4 clinical trials, 5 post-transplant immuno-suppressant/modulatory drugs, the equivalent of 1,000 years of background radiation from 40+ CT series scans and about 24 PET scans.
    Both lymphoid and myeloid malignancies lend a certain symmetry to the hematological journey.

    Believing in the redemptive value of suffering makes all the difference.

  8. #8
    Newbie New User
    Join Date
    Oct 2019
    Posts
    5
    Yep. I know. I had tongue cancer at 39 and on that forum we always said it's not cancer until they say it is. It's just this time the cancer is deadly, that one wasn't.

 

Similar Threads

  1. Villous Adenoma found in my Anal Canal at the Verge and Mid-Rectum
    By BakoCurt in forum Colon Cancer and Rectal Cancer Forum
    Replies: 1
    Last Post: 05-18-2017, 06:47 AM
  2. 35 Year Old with Adenoma in Colon Tissue and Rectal Bleeding
    By bluebird in forum Worried About Possible Cancer
    Replies: 3
    Last Post: 12-31-2013, 08:48 PM
  3. Benign Pleomorphic Parotid Adenoma and tumour/ tumor submandibular gland - Insection?
    By eldub in forum Head and Neck Cancer/ Thyroid Cancer Forum
    Replies: 2
    Last Post: 02-20-2013, 12:42 PM
  4. Replies: 18
    Last Post: 07-01-2007, 01:31 AM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •