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Thread: Time is getting close

  1. #11
    Experienced User
    Join Date
    Apr 2019
    Posts
    79
    djust,

    I hope that you have an uneventful surgery and are quickly into recovery mode. We will all be here for you, and remember that there is much more support available if needed. Make a commitment to do the rehab work. What my pelvic floor PT just told me applies nicely to you, "All things are working in your favor! Go YOU!!!"

    You got this!
    - Mark
    6/18 New PCP asks "When was your last PSA level checked?" --> 11.5 so off to URO
    9/18 PSA 12.4, TRUS biopsy 10/18 yields 2 of 12 positive: LA GS6 <5%, RA GS7(3+4) 5% and the 4 is cribriform approaching 50%
    Clinical staging T1c, Decipher biopsy 0.94, 58 years old at DX
    12/18 RARP, pathology GS7(4+3) with cribriform, tumors in 10-15% of gland
    -SVI, -LVI, +EPE, +PNI, +BNI, +SM multifocal >=3mm pattern 4
    pT3a,pNx (lymph nodes inaccessible due to large mesh placement from 15 year ago bilateral hernia repair
    4/19 second opinion of pathology GS8, primary tumor composed of >95% cribriform (4+4), <1% pattern 5 and very minor focus comedo-necrosis, intraductal and postive margin at bladder resection
    still at pT3a,pNx and started six months of ADT 4/19, ART completed 9/13/19
    PSA <0.1 on 1/19, 4/19, 7/19, 10/19

  2. #12
    Regular User
    Join Date
    Aug 2019
    Posts
    16
    You'll be fine and do great. It'll all be over before you know it. Put your walking shoes on after as that helps much. All of this is a short-term inconvenience for an optimistically better long-term future.
    Age 52, No symptoms, healthy, GrF had PCa at age 78
    First PSA test ever 5/2019: 7.037 (referred to urologist)
    Normal DRE
    PSA 7/2019: 5.152, Free 8%
    PSA 8/2019: 4.652, Free 7%
    Biopsy 8/16/19
    Dx PCa 8/30/19
    16 cores taken/ 5 positive for PCa
    L Apex and L Mid: (G 3+3=6) involving 2 cores, 10% of ea / Grade Group 1
    L Lat Apex: (G 3+3=6) involving 20% of 1 core/ Grade Group 1
    L Lat Mid: (G 3+3=6) involving 60% of 1 core/ Grade Group 1
    L Medial Mid: (Gleason 3+3=6) involving 70% of 1 core/ Grade Group 1

    DaVinci RP 10/10/19 Nerve Sparing
    Post RALP Path:
    G 3 + 4 = 7 (was 3 + 3 = 6 on biopsy)
    Grade Group 2
    % of prostate involved by tumor: 6%
    EPE, BNI, SVI, Lymph invasion, Margin positivity in area of EPE: All of these were not identified
    Margin involved by invasive carcinoma: Limited (<3mm), Focality: Unifocal, Location: L Mid Posterior
    PNI: Present
    Pathological Staging: T2 N0 MX

  3. #13
    Top User garyi's Avatar
    Join Date
    Apr 2017
    Posts
    1,465
    You're well prepared and better informed. Hoping all goes smoothly, GTO
    72...LUTS for the past 7 years
    TURP 2/16,
    G3+4 discovered
    3T MRI 5/16
    MRI fusion guided biopsy 6/16
    14 cores; four G 3+3, one G3+4,
    CIPRO antibiotic = C. Diff infection 7/16
    Cured with Vanco for 14 days
    Second 3T MRI 1/17
    Worsened bulging of posterior capsule
    Oncotype DX GPS 3/17, LFP risk 63%, Likelihood of Low
    Grade Disease 81%, Likelihood of Organ Confined 80%
    RALP 7/13/17 Dr. Gonzaglo @ Univ of Miami
    G3+4 Confirmed, Organ confined
    pT2 pNO pMn/a Grade Group 2
    PSA 0.32 to .54 over 3 months
    DCFPyl PET & ercMRI Scans - 11/17
    A one inch tumor still in prostate bed = failed surgery
    All met scans clear
    SRT, 2ADT, IMGT 70.2 Gys @1.8 per, completed 5/18
    Radiation Procitis, and Ulcerative Colitis flaired after 20 years
    PSA <.006 9/18, .054 11/18, .070 12/18, .067 2/19, .078 5/19, .074 7/19, .081 9/19, .116 11/19
    We'll see....what is not known dwarfs what is thought to be fact

  4. #14
    I truly hope your surgery/hospital/recovery experience is as uneventful and easy as was mine.

    I have enjoyed more than 15-major surgeries/procedures over the years (lots of weird and dangerous activities!) and have never had a bad experience.

    One-week post RALP, while out walking with my wife in the incredible S Florida August heat, all I could think was "this was so easy!"

    I pray the same for you!

    Prepare yourself ahead of time to be PATIENT with the gas/bloating and catheter/incontinence. Those things will resolve in their own time and not much you do will change that so be ready to be patient!
    DOB: July 1947
    PSA: 2.0/2004 4.0/2010 5.8/2010 4.5/2012 5.6/2013 Normal DRE
    5/18 PSA: 9.2
    6/18 PSA: 10.2 & 8.4% Free
    6/28 3T mpMRI PIRADS 3
    18 cc gland=PSD 0.57 ng/cc
    0.32 cc lesion in apical PZ with subtle T2 signal hypointensity
    mild restricted diffusion of contrast into lesion prostate unremarkable intact capsule
    7/18 4KScore 34% Probability Gleason =>7

    8/03/18 Bx: Adenocarcinoma 6 of 13 cores ONLY L lobe
    T1c / Grade II / unfavorable intermediate
    extent of G3-G4 tissue far greater than indicated by MRI
    G6 (3+3) 70% LL Base 50% L Lateral Mid 20% L Base
    G7 (3 +4) 100% LL Apex 20% L Mid 60% L Apex
    8/15/18 Clear CT scan and Bone Scan
    RALP 8/23/18 pT3a, G7 (3+4), 20% involvement, SM+ (Focal 2mm G6), EPE(Focal G6)+, PNI+, LNI-, SVI-, LVI-
    7g Tumor 20x size in MRI & biopsy report & in BOTH lobes not just L as biopsy reported

    PSA
    10/3/18 0.021
    01/4/19 0.018
    04/03/19 0.022
    06/26/19 0.028
    10/1/19 0.035

    Decipher RP = 0.47 Average Risk

  5. #15
    Senior User
    Join Date
    Feb 2019
    Posts
    295
    djust ... you will do just fine sir ! Keep up the positive thoughts and hold the strength, soon this will all be behind you and a distant memory.
    Age DX 63 dob 1955
    8/11/16 CT scan (blood/sand in urine). Prostate norm w/cent calcification.
    11/6/18 GP freq urine/retro ejact. PSA 7.1 (RX Proscar/Flomax)
    12/18 PSA 4.1 14.8% Free Proscar? MRI Lesion 1.6cm. Lymph nodes sim to 2016 CT, prostate norm size. Stage 3. PIRADS 4
    1/19 Biopsy 2/5/19 DX
    2/19 Bone/CT scans: No evid met chest/abd/pelvis
    3/2019 RALP Cath out/post-op path rpt week later:
    G9 (4+5) (65-70% + 15-20%)
    Dominant tumor: 4.3 cm apex to base, bilat.
    LNI+ (4 of 12 on R, largest 4mm, 1 of 8 on L, 9 mm)
    EPE+ (right lat., post. and L lat. aspects apex to base and at ant. mid aspect)
    Intaraductal component+, BNI-, SVI+, LVI+
    SM+ (carcinoma unifocally extends to ant. mid margin area of EPE (2mm)
    Prostate fat: neg. pT3b pN1
    5/2019 Casodex 2-weeks. uPSA 0.11
    5/24 uPSA 0.11 Lupron injection
    6/19 uPSA .02
    8/7 began 39 sessions RT 70.2 Gy (last session 10/1)
    8/23 uPSA .01 Lupron injection
    9/27 uPSA <0.01
    10/22 uPSA <0.01

  6. #16
    Senior User
    Join Date
    Feb 2019
    Posts
    295
    How are you doing sir ... ? Have been thinking about you.
    Age DX 63 dob 1955
    8/11/16 CT scan (blood/sand in urine). Prostate norm w/cent calcification.
    11/6/18 GP freq urine/retro ejact. PSA 7.1 (RX Proscar/Flomax)
    12/18 PSA 4.1 14.8% Free Proscar? MRI Lesion 1.6cm. Lymph nodes sim to 2016 CT, prostate norm size. Stage 3. PIRADS 4
    1/19 Biopsy 2/5/19 DX
    2/19 Bone/CT scans: No evid met chest/abd/pelvis
    3/2019 RALP Cath out/post-op path rpt week later:
    G9 (4+5) (65-70% + 15-20%)
    Dominant tumor: 4.3 cm apex to base, bilat.
    LNI+ (4 of 12 on R, largest 4mm, 1 of 8 on L, 9 mm)
    EPE+ (right lat., post. and L lat. aspects apex to base and at ant. mid aspect)
    Intaraductal component+, BNI-, SVI+, LVI+
    SM+ (carcinoma unifocally extends to ant. mid margin area of EPE (2mm)
    Prostate fat: neg. pT3b pN1
    5/2019 Casodex 2-weeks. uPSA 0.11
    5/24 uPSA 0.11 Lupron injection
    6/19 uPSA .02
    8/7 began 39 sessions RT 70.2 Gy (last session 10/1)
    8/23 uPSA .01 Lupron injection
    9/27 uPSA <0.01
    10/22 uPSA <0.01

 

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