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Thread: Pre-surgery tips and packing ideas?

  1. #1

    Pre-surgery tips and packing ideas?

    Hi folks,

    Work is absolutely crazy right now so I need to get a head start on my packing and purchasing of supplies and do it a little at a time as I can. I remember a thread where someone asked but for the life of me I cannot find it.

    Can someone point me to the thread or add tips/tricks/etc here?

    Thanks in advance.
    2006: 1.6 PSA age 36
    2007: 1.3 PSA age 37
    2012: 2.2 PSA age 42
    2013: 2.6 PSA age 43
    2014: 2.8 PSA age 44
    2015: 3.1 PSA age 45
    2016: 3.5 PSA age 46
    2017: ? N/A
    3/18– 4.1 PSA at 48 YO. u/s measured 46 ml prostate
    3/18–free PSA 10%
    3/18–TRUS all 12 cores negative
    9/18– 4.5 PSA
    9/18– negative pca3
    12/18- 4K at 17%
    12/18- 3t MRI, 5mm pirads 3-4 and a pirads 1-2
    2/19- Fusion TRUS biopsy. G6 (3+3) 20% of a single core. Two cores pre-cancerous. AS for now
    4/19-PSA at 7.21 (biopsy effect)
    6/19-PSA back down to 4.8
    9/19-TRUS-- Right mid - prostatic adenocarcinoma G6 (3+3) grade group 1 involving 25% (4mm) of one core
    Right lateral - prostatic adenocarcinoma G6 (3+3) grade group 1 involving 90% (6mm) of one core
    Right lateral apex - prostatic adenocarcinoma G6 (3+3) grade group 1 involving 40% (8mm) of one core. Right base - Atypical small acinar proliferation.
    12/9- Da Vinci RP

  2. #2
    I don’t know about a list, but I would order samples of the various incontinence products and order what you like. I would purchase a couple Reusable incontinence pads for your bed.

    Having a tube of cortisone 10 to lube the catheter tube to stop irritation is a must.
    YOB 1957

    DX 12/18, GS 8, 4+4 6/12 cores, LL Apex 100%, LM Apex 60%, LL Mid 50%, LMM 40%, LL Base 5%, LM <5%, Right side negative.

    3/6/19. Pathology - Grade Group 4 Intraductal Carcinoma
    T3aNO, 1 mm EPE, GS8, 21 mm uni-focal tumor involved 10% of prostate.

    7 Nodes, SV, SM, PNI, and BNI were negative.

    LVI and Cribriform pattern present.

    Decipher .86 High Risk.

    Post Surgery PSA
    3/25/19 .03. (<1 month)
    4/25/19 <.03. (2 months)
    5/25/19 <.02. (3 months)
    9/10/2019. <.02. (6 months)
    11/27/2019. <.02. T<3. (9 months)

    3 Part Modality Treatment

    2/25/19 Robotic Laparoendoscopic Single Site Surgery outpatient Cleveland Clinic,

    ADT - started 6/19, end date 6/21.

    ART - Completed 9/26/19. (78 Gy, yes, I glow in the dark)

  3. #3
    Regular User
    Join Date
    Aug 2019
    Posts
    16
    Chapstick or something for your lips because they will be quite dry after the surgery. Also, it's kind of funny but I found myself several times during the night being just "out of reach" of a cup or whatever was on the table/tray. Moving that extra inch was challenging at times. A ruler or something to nudge stuff a little closer would have been handy.

    Button down shirt, snug underwear, loose-fitting pants as well.
    Age 52, No symptoms, healthy, GrF had PCa at age 78
    First PSA test ever 5/2019: 7.037 (referred to urologist)
    Normal DRE
    PSA 7/2019: 5.152, Free 8%
    PSA 8/2019: 4.652, Free 7%
    Biopsy 8/16/19
    Dx PCa 8/30/19
    16 cores taken/ 5 positive for PCa
    L Apex and L Mid: (G 3+3=6) involving 2 cores, 10% of ea / Grade Group 1
    L Lat Apex: (G 3+3=6) involving 20% of 1 core/ Grade Group 1
    L Lat Mid: (G 3+3=6) involving 60% of 1 core/ Grade Group 1
    L Medial Mid: (Gleason 3+3=6) involving 70% of 1 core/ Grade Group 1

    DaVinci RP 10/10/19 Nerve Sparing
    Post RALP Path:
    G 3 + 4 = 7 (was 3 + 3 = 6 on biopsy)
    Grade Group 2
    % of prostate involved by tumor: 6%
    EPE, BNI, SVI, Lymph invasion, Margin positivity in area of EPE: All of these were not identified
    Margin involved by invasive carcinoma: Limited (<3mm), Focality: Unifocal, Location: L Mid Posterior
    PNI: Present
    Pathological Staging: T2 N0 MX

  4. #4
    Senior User
    Join Date
    Nov 2016
    Posts
    321
    Heres a link from 2017.

    Also make sure to click on Links within that post.

    https://www.cancerforums.net/threads...ctomy+supplies
    Age at Dx 57
    PCa History: Father, Uncles, Grandfathers

    Oct 2016 Biopsy 12 core: Adenocarcinoma, Gleason 4+3=7 Grade Group 3) w/PNI
    Left Lateral Base: Suspicious
    Left Lateral Mid: PIN
    Left Base: 4+3=7 (60% pattern 4) Core involvement 30% (5mm)
    Right Base: Suspicious
    Right Apex: 3+3=6 Core involvement 60% (7mm) discontinous
    Right Lateral Mid: 3+3=6 Core involvement 10% (1mm)
    Right Lateral Apex: 3+3=6 Core involvement 10% (1mm)

    Jan 2017 DaVinci - Dr. Grant Taylor - Pathology = pT2c or pT3a; Gleason 4+3=7; Weight: 42g

    Jun 2019 AMS800 installed - Dr. David Rapp - Jul 2019 activated

    ED: Light to moderate

    (Note: All PSA tests prior to Jun19 were done by LabCore)
    PSA_TESTS

    Apr 2016=5.1
    Jul 2016=4.7
    Aug 2016=5.13

    ----Surgery----

    Mar17<0.01
    Jul17<0.01
    Oct17<0.01
    Jan18<0.01
    May18<0.01
    Nov18<0.01
    Jan19<0.01
    Jun19<0.02

  5. #5
    Senior User
    Join Date
    Nov 2016
    Posts
    321
    The list is also a sticky above titles what I need to know about da Vinci surgery
    Age at Dx 57
    PCa History: Father, Uncles, Grandfathers

    Oct 2016 Biopsy 12 core: Adenocarcinoma, Gleason 4+3=7 Grade Group 3) w/PNI
    Left Lateral Base: Suspicious
    Left Lateral Mid: PIN
    Left Base: 4+3=7 (60% pattern 4) Core involvement 30% (5mm)
    Right Base: Suspicious
    Right Apex: 3+3=6 Core involvement 60% (7mm) discontinous
    Right Lateral Mid: 3+3=6 Core involvement 10% (1mm)
    Right Lateral Apex: 3+3=6 Core involvement 10% (1mm)

    Jan 2017 DaVinci - Dr. Grant Taylor - Pathology = pT2c or pT3a; Gleason 4+3=7; Weight: 42g

    Jun 2019 AMS800 installed - Dr. David Rapp - Jul 2019 activated

    ED: Light to moderate

    (Note: All PSA tests prior to Jun19 were done by LabCore)
    PSA_TESTS

    Apr 2016=5.1
    Jul 2016=4.7
    Aug 2016=5.13

    ----Surgery----

    Mar17<0.01
    Jul17<0.01
    Oct17<0.01
    Jan18<0.01
    May18<0.01
    Nov18<0.01
    Jan19<0.01
    Jun19<0.02

  6. #6
    Quote Originally Posted by MRJ View Post
    The list is also a sticky above titles what I need to know about da Vinci surgery
    I looked expecting it to be there and nada. I swear I don't see it. Strange.

  7. #7
    Quote Originally Posted by IceStationZebra View Post
    I looked expecting it to be there and nada. I swear I don't see it. Strange.
    It's there. Right now it's the 7th Sticky Post down from the top, but that may change. It also says ""started by ddayglo" on the left, under the thread title.

  8. #8
    Quote Originally Posted by DjinTonic View Post
    It's there. Right now it's the 7th Sticky Post down from the top, but that may change. It also says ""started by ddayglo" on the left, under the thread title.
    Yeah I see the davinci thread. I thought the packing thread was it's own sticky.

    Like I said work is crazy and I'm exceptionally tired. 😁

  9. #9
    Quote Originally Posted by IceStationZebra View Post
    Yeah I see the davinci thread. I thought the packing thread was it's own sticky.

    Like I said work is crazy and I'm exceptionally tired. ��
    Forum Brothers have offered tips on RP topics in addition to what to pack. Real estate on the fist Forum page is limited. You may find other things to buy, have at hand, and do/not do when you get back.

  10. #10
    Get a bucket to carry the catheter bag around with you, and also to lay the bag in when you are sleeping.
    If you don’t have a recliner, rent one for. A week. Have it positioned in front if the tv before you go to surgery, and plan to watch lots of movies. I rented a recliner that not only reclines but helps push you forward to assist with standing up.

    Have some Gasx on hand in case you need it for the gas pains some guys get from the air the pump into your belly
    Diagnosed at age 64 (in November, 2014), PSA 4.3
    Nov 2014 BX 3 of 12 cores positive original pathology G8. Johns Hopkins second opinion, G6
    Surgery with Dr Ash Tewari Jan 6, 2015
    Post surgical pathology, stage T2c, bilateral disease, upstaged to G7(3+4)
    5% of Prostate involved in Tumor. Organ confined, Margins, SV, lymph nodes (9) all negative, PNI positive
    PSA <.02 until (uh-oh), 2/17 .02. Then 5/17-.033, 8/17-.033, 11/17-.046, 4/18-.060, 6/18-.068, 7/18- .082, 8/18-. 078.
    Decipher score low risk, .37
    ADT/Firmagon started August 2018. SRT SEPT 2018. Finished SRT November 2018, Finished ADT Feb 2019
    T=7, PSA <.05, 5/19 T=48 PSA <.05, 10/19 T=97 PSA=<.05

 

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