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Thread: What do do from here with Prostate Cancer?

  1. #11
    Top User garyi's Avatar
    Join Date
    Apr 2017
    Posts
    1,473
    Yale might be OK, but Johns Hopkins in Baltimore, Brigham & Woman's (yes, Harvard affiliated) in Boston, or Memorial Sloane Kettering in NYC, all have world class prostate cancer centers.

    Good luck!
    72...LUTS for the past 7 years
    TURP 2/16,
    G3+4 discovered
    3T MRI 5/16
    MRI fusion guided biopsy 6/16
    14 cores; four G 3+3, one G3+4,
    CIPRO antibiotic = C. Diff infection 7/16
    Cured with Vanco for 14 days
    Second 3T MRI 1/17
    Worsened bulging of posterior capsule
    Oncotype DX GPS 3/17, LFP risk 63%, Likelihood of Low
    Grade Disease 81%, Likelihood of Organ Confined 80%
    RALP 7/13/17 Dr. Gonzaglo @ Univ of Miami
    G3+4 Confirmed, Organ confined
    pT2 pNO pMn/a Grade Group 2
    PSA 0.32 to .54 over 3 months
    DCFPyl PET & ercMRI Scans - 11/17
    A one inch tumor still in prostate bed = failed surgery
    All met scans clear
    SRT, 2ADT, IMGT 70.2 Gys @1.8 per, completed 5/18
    Radiation Procitis, and Ulcerative Colitis flaired after 20 years
    PSA <.006 9/18, .054 11/18, .070 12/18, .067 2/19, .078 5/19, .074 7/19, .081 9/19, .116 11/19
    We'll see....what is not known dwarfs what is thought to be fact

  2. #12
    Experienced User
    Join Date
    Nov 2017
    Posts
    99
    Quote Originally Posted by David53 View Post
    Thanks so much. Maybe it's time to find a cancer center. I'll try Yale since I live in CT. Thanks again.
    Hi David,
    I am also in Connecticut, and after losing faith with my local hospital, I elected to transfer my care to Dana Farber in Boston. Sloan Kettering would also be a good choice. While I am sure that Yale has a great department, Sloan and Dana Farber, are the best of the best.
    Eric

  3. #13
    Regular User
    Join Date
    Oct 2017
    Posts
    14
    Thanks Enock I need to investigate Yale a little more. I have been to Dana Farber and it was a good experience, but I thought Yale may be comparable and easy for insurance and travel. Thanks so much for getting back to me!

  4. #14
    Independently of changing treatment centers, you want to explore options of having blood ckecks sent to a better lab.

 

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