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Thread: PLEASE POST USERNAMES IN THIS FORUM - EDITED 27-12-2007

  1. #11
    We already deleted that member because on or our moderators also received that spam. The problem is that we cannot delete PMs the person has already posted. I recommend just deleting the message. Never open links from someone that you do not absolutely trust.
    Jim
    Long-term cancer survivor
    1992 Astrocytoma grade 2, left motor strip
    2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
    http://cancerforums.net/viewtopic.php?t=2405
    My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
    My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
    My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029

  2. #12
    An EvanMassey12 asked for money in a private message. I found this rather odd. Is it normal for people to ask for donations like this?

    Message:

    "Hey what's up? My 9 year old cousin has been diagnosed with brain cancer, and the family needs financial support bad. We have a website up where you can donate via Paypal or Credit Card (card info is not saved or recorded), and we also accept cash or checks via mail. Would you be interested in helping us out? Anything at all helps. Even $5 goes a long way to helping Ryan out. Let me know! You can contact me on here or at: -----------------Evan"
    Last edited by breannishome; 05-15-2012 at 06:48 PM. Reason: addition
    I'm 26 Female Caregiver to 71yo. Mom on PD dialysis
    Lung Cancer diagnosed 2/10/2012
    Squamous Cell Lung Carcinoma 3b (4.7cm) 3/14/2012
    Start low dose Chemo 3/21/12 every wk for 7 wks. & 2 hi dose 3wks
    Start Radiation 7 wks.
    Switch PDialysis to Hemo. 3times wk/4.5hrs. each
    Hospitalized 3 diff. weeks. double infection, hemorg,pneumonia,cong.heart failure.
    NED 6/21/12
    Switch Hemo. to PDialysis
    Entire lung recur 9/26/12
    Every other scan is opposite.
    She feels GREAT so that's what counts!

  3. #13
    Administrator Top User Didee's Avatar
    Join Date
    Jun 2010
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    11,461
    Ignore and delete the message
    Aussie, age 61
    1987 CIN 111. Cervix lasered, no further problems.

    Years of pain, bleeding, women's plumbing problems. TV ultrasound, tests, eventual hysterectomy 2007, fibroids in lining of Uterus.

    Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
    6 chop14 and Neulasta.
    Clean PET April/10, 18 rads 36gy mop up. All done May 2010
    Iffy scan Nov. 2011. Scan Feb 2012 .still in remission.Still NED Nov 2012.
    Discharged Nov 2014.

    May/2012. U/sound, thyroid scan, FNB. Benign adenoma.

    Relapse Apr 2016. AITL. Some chemos then on to allo transplant. Onc says long remission was good. Still very fixable.

    SCT Aug 2016

  4. #14
    Administrator Top User ChemoMan's Avatar
    Join Date
    Jun 2008
    Posts
    9,858
    Blog Entries
    2
    Hi
    Evanmassey has been banned
    Age 62
    Diffuse Large B cell Lymphoma
    Stage 2a Bulky presentation
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011

    NED AND DECLARED CURED on the 2/01/2013

    No more scheduled visits to the Prof
    http://cancerforums.net/viewtopic.php?t=9620

    Still alive in 2019 !

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

  5. #15
    Is this forum still active?

    olinazeng PMed me asking me to help spam an article "about our hospital" . He says, "Certainly,according to the number of links. i will pay high salaries with you.thankyou~~If you are interested in to business with us, pls to contact with me."

    Thank you, administrators, for deleting spam and spammers!
    Diagnosed with stage 2c papillary serous cystadenoma borderline malignancy of the ovary in 2009. Hysterectomy, omenectomy, appendectomy, debulking.
    - 2010 - laparoscopy showed inoperable recurrence, so started chemo.
    - Frontline chemo - carboplatin and cyclophosphamide, six cycles
    - Additional chemo regimens: Avastin - ten cycles; Weekly Topotecan - 4 cycles.
    - Spring 2012 developed pleural nodules. Topotecan plus Avastin - 1year.
    - April, 2014, had surgery to remove Aspergillus infection from right lung.
    - September, 2015, started on Megace because my tumors are PR positive. Stopped Megace after three months.
    - September, 2016, hospitalized for shortness of breath and back pain.
    - September, 2016, respiratory failure reversed with prednisone. Maintaining on 50 mg Prednisone per day and supplemental O2.
    - October, 2016 left hospital with no supplemental oxygen. Feeling great! Will start tapering off the prednisone Oct. 10.

  6. #16
    Administrator Top User Kermica's Avatar
    Join Date
    Jul 2009
    Posts
    6,589
    Yes, it is Serous2c. Olinazeng has been banned for solicitation and spamming.

    Thanks for bringing him to our attention! Good health,

    kermica
    When the world says, "Give up," Hope whispers, "Try it one more time."
    ~Author Unknown

    Age 67
    Follicular lymphoma diagnosed August 08, Stage 1
    2 cycles (20 treatments each) localized radiation to tumor sites. Remission confirmed July 09
    Restaged to Stage 3 May 2010
    Recurrence confirmed May 2010 - Watch and Wait commenced - multiple scans with minimal progression.
    Cutaneous Squamous Cell Carcinoma diagnosed September 2012. Mohs surgical excision 09/2012. Successful, clean edges all around.
    Significant progression detected in PET scan - December 2012
    Biopsy to check for transformation 1/18/2013 - negative for that but full of lymphoma, of course.
    July 2013 - Rescan due to progression shows one tumor (among many) very suspect for transformation, another biopsy 8/12/13.
    August 2013 - No evidence of transformation, 6 courses of B+R commence 8/29 due to "extensive, systemic disease".
    February 2014 - Diagnostic PET scan states: Negative PET scan. Previous noted hypermetabolic cervical, axillary, iliac and inguinal lymphadenopathy has resolved. Doctor confirms full remission.
    June 2014 - started 2 year maintenance Rituxan, 1 infusion every 3 months. Doctor confirms lump under right arm are "suspicious" for recurrent disease, deferring scans for now.
    February 2015 - Doc and I agreed to stop R maintenance as it is depressing my immune system too much.
    June 2015 - Confirm that the beast is back by physical exam, will scan in August after esophageal issues settle down so we can get a clear view.
    August 2015 - physical exam in error, PET/CT shows no evidence of disease. Remission continues well into second year!
    December 2015 - Cardiologist tells me I have plaque buildup growing at an alarming rate. Stent or bypass down the road but not yet...
    March 2016 - new tumor below the jaw so remission is over. Back to active surveillance until treatment is needed.
    June 2016 - C/T scan indicates presence of multiple lesions in iliac chain.
    August 2016 - PET/CT shows multiple areas of lymphoma as expected plus new areas of concern in bowel.
    January 2017 - C/T scan shows significant progression in cervical and inguinal lymph chains, largest tumor is impacting hearing, measures 2.1x4.6 cm. 4 to 8 cycles of R-CVP, 1x3weeks to commence 2/6/17.
    April 2017 - Mid treatment scan shows about 1/3 reduction in multiple tumors. Also shows abdominal aortic aneurysm with peripheral thrombus. Cardiologist changed meds, spoke of need for surgical repair down the road.
    September 2017 - finished 10 rounds of R-CP, V was stopped due to neuropathy in feet. No further treatment planned at this time, at least 10 tumors can be felt which seem to be growing again.
    December 2017 - Biopsy of external iliac node with SUV of 13.1 shows no transformation! However, the FL grade is now 3A instead of Gr 1-2. Will start indefinite protocol using Copanlisib, one of the new targeted therapies. I remain hopeful.
    March 2018 - Copanlisib failed, treatment stopped 3/28. New plan is to go to Dana Farber on 4/16 for case review and treatment recommendation.

    May 2018 - did not qualify for clinical trials at Dana Farber. Tumors need to get larger to be considered. On consultation w/Dr. Armand at DF and my onc, have decided to take a break from cancer treatments. Will have a biopsy of the mass in my sinus discovered in scan at DF and to get the aneurysm repaired as it has developed a potentially catastrophic penetrating ulcer. Surgery scheduled for 7/12.

    September 2018 - biopsy of mass in nose shows transformed DLBCL throughout. Assessing options for this negative development.

    October 2018 - started 6 to 8 cycles of R-CHOP. Goal is to get to full remission to open up other options.

    February/March 2019 - PET shows four hot spots following R-CHOP. referred to Dana Farber for stem cell transplant. Pre testing all good, accepted for Auto Transplant. Will begin inpatient process about April 1.

  7. #17
    Senior User
    Join Date
    Jul 2012
    Posts
    455
    Hi Administrators......Here is one for ya! Was in my Inbox today.


    FROM EDWARD
    FROM:EDWARD DUAK.
    COTE D IVOIRE,
    WEST AFRICA.
    Dear One,
    Permit me to inform you of my desire of going into long time relatioship and financial transaction for our mutual benefits.
    I am EDWARD and I inheritated an important sum from my late father who died in recent crisis in Cote d'Ivoire. I wish to request for your assistance in investing this sum in lucrative venture or manufacturing and real estate management in your country.
    I have FOUR million, five hundred thousand United State Dollars. USD($4.500,000)to invest in this transaction and I will require your assistance in receiving the fund in your account in your country. I will gladly give you some reasonable percent from the total sum for your assistance. Please it is important you contact me immediately for
    more clearification on the next step for smooth conclusion.
    Awaiting your immediate response and God bless you.
    Thanks for your understanding
    Yours Sincerely,
    Edward Duak.
    PLEASE REPLY TO:[email protected]
    Caregiver to mom, 64 Ovarian Cancer Remission since 1997.
    6/19/12 Annual blood work - CA125 came back elevated.
    6/21/12 CT abdomen, RUL 2.8cm spot, LLL 5mm spot, lt. adrenal gland mass 8.3cm, rt. adrenal gland mass 4.6 cm.,
    6/28/12 Brain MRI-Clear,
    6/29/12 Lung Biopsy=Stage 4 NSCLC.
    7/11, 8/3, 8/23, 9/13/12 Chemo (Carb/Alimta).
    CT Scan 10/4/12 1 of 4 tumors decreased. 20% Kidney function. Blood transfusion
    10/9/12. Mets to liver.
    12/11 chemo (carb/taxotere) continued thru March.
    March 27, 2013. Told no more chemo, cancer now in the brain, to call out Hospice. Set up hospice March 31, 2013. Mom passed April 12, 2013. She will always be in my heart, never forgotten and always loved. May we reunite soon....after only a temporary separation!

  8. #18
    Administrator Top User ChemoMan's Avatar
    Join Date
    Jun 2008
    Posts
    9,858
    Blog Entries
    2
    Quote Originally Posted by Ababb View Post
    Hi Administrators......Here is one for ya! Was in my Inbox today.


    FROM EDWARD
    FROM:EDWARD DUAK.
    COTE D IVOIRE,
    WEST AFRICA.
    Dear One,
    Permit me to inform you of my desire of going into long time relatioship and financial transaction for our mutual benefits.
    I am EDWARD and I inheritated an important sum from my late father who died in recent crisis in Cote d'Ivoire. I wish to request for your assistance in investing this sum in lucrative venture or manufacturing and real estate management in your country.
    I have FOUR million, five hundred thousand United State Dollars. USD($4.500,000)to invest in this transaction and I will require your assistance in receiving the fund in your account in your country. I will gladly give you some reasonable percent from the total sum for your assistance. Please it is important you contact me immediately for
    more clearification on the next step for smooth conclusion.
    Awaiting your immediate response and God bless you.
    Thanks for your understanding
    Yours Sincerely,
    Edward Duak.
    PLEASE REPLY TO:[email protected]
    Hi Adabb
    What was this persons username ?
    Age 62
    Diffuse Large B cell Lymphoma
    Stage 2a Bulky presentation
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011

    NED AND DECLARED CURED on the 2/01/2013

    No more scheduled visits to the Prof
    http://cancerforums.net/viewtopic.php?t=9620

    Still alive in 2019 !

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

  9. #19
    Administrator Top User Didee's Avatar
    Join Date
    Jun 2010
    Posts
    11,461
    I got rid of them last night. Banned.
    I can't get rid of the PMs though.
    Please just delete the Pm if you received them too..
    Aussie, age 61
    1987 CIN 111. Cervix lasered, no further problems.

    Years of pain, bleeding, women's plumbing problems. TV ultrasound, tests, eventual hysterectomy 2007, fibroids in lining of Uterus.

    Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
    6 chop14 and Neulasta.
    Clean PET April/10, 18 rads 36gy mop up. All done May 2010
    Iffy scan Nov. 2011. Scan Feb 2012 .still in remission.Still NED Nov 2012.
    Discharged Nov 2014.

    May/2012. U/sound, thyroid scan, FNB. Benign adenoma.

    Relapse Apr 2016. AITL. Some chemos then on to allo transplant. Onc says long remission was good. Still very fixable.

    SCT Aug 2016

  10. #20
    Nobody ever offers me their inheritance.
    Diagnosed with stage 2c papillary serous cystadenoma borderline malignancy of the ovary in 2009. Hysterectomy, omenectomy, appendectomy, debulking.
    - 2010 - laparoscopy showed inoperable recurrence, so started chemo.
    - Frontline chemo - carboplatin and cyclophosphamide, six cycles
    - Additional chemo regimens: Avastin - ten cycles; Weekly Topotecan - 4 cycles.
    - Spring 2012 developed pleural nodules. Topotecan plus Avastin - 1year.
    - April, 2014, had surgery to remove Aspergillus infection from right lung.
    - September, 2015, started on Megace because my tumors are PR positive. Stopped Megace after three months.
    - September, 2016, hospitalized for shortness of breath and back pain.
    - September, 2016, respiratory failure reversed with prednisone. Maintaining on 50 mg Prednisone per day and supplemental O2.
    - October, 2016 left hospital with no supplemental oxygen. Feeling great! Will start tapering off the prednisone Oct. 10.

 

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