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Thread: My story NHL

  1. #11
    Administrator Top User ChemoMan's Avatar
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    Hi Singledad

    In regard to your question yes there are. The risks are always weighed with the benefits and the decision to give radiation is not taken lightly. Have you had scans recently ? I note that your doctor has decided to super size your treatment, I think you really need to discuss this with him, but only if you want all the facts. You might decide just to go along with his recommendations and remain blissfully ignorant or you might want all the facts. If the latter is the case you might need to pressure the doctor to be up front and brutally honest.

    I have been a pretty blunt singledad but I figure that you are looking for some honest answers. Don't let any of this get you down, keep your ability to have a laugh and be confident of the fact that as far as NHL goes modern medicine can deal with anything that your body confronts it with. Good luck Bro and don't fret you have a lot of living to do yet
    Age 62
    Diffuse Large B cell Lymphoma
    Stage 2a Bulky presentation
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011

    NED AND DECLARED CURED on the 2/01/2013

    No more scheduled visits to the Prof
    http://cancerforums.net/viewtopic.php?t=9620

    Still alive in 2019 !

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

  2. #12
    Administrator Top User ChemoMan's Avatar
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    Hi Don

    I have seen some of the controversy with baseball but we don't get the full picture here. Steroids no doubt. I can understand its use for pitchers as it dramatically shortens treatment time for muscle injury but it is easily abused. Fortunately in our summer game the use of steroids is counterproductive as the bowler is usually bowling for very long periods in the game and steroids are not much use in increasing endurance. That being said there were a few Pakistani bowlers that got banned a few years back for steroid abuse and of course they were fast bowlers who only bowled the batsman 30 odd deliveries before taking a break.

    Take a look at this a wait for Thommo's comments at the end...a classic

    http://www.youtube.com/watch?v=GjkBNxKZOE8

    There this one as well with no audio that has a clip of Thommo getting English ( or pommie bastard as we call em) batter Jeff Randall in the face at 1:30...the ball is made of wood wrapped in twine and covered in leather so it hurts like hell...the aussie fans went nuts after this and were screaming for more blood......Cricket is War !!

    http://www.youtube.com/watch?v=6Fw7NasR-4o

    A good fast bowler will pop the ball in short causing it to rise sharply with a view to hitting the batsman in the area of the chest and head....then follow it up next delivery with one the crushes your toes...... In cricket getting hurt is a legitimate part of the game. Mind you on a slow pitch dropping the ball in short can get you hit over the fence for a 6 !

    Re beer, Coopers draught is good but the sparkling ale is exceptional, but only if you like full bodied big beers with robust flavour. I really try not to drink too much of it as it gets me legless in no time
    Age 62
    Diffuse Large B cell Lymphoma
    Stage 2a Bulky presentation
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011

    NED AND DECLARED CURED on the 2/01/2013

    No more scheduled visits to the Prof
    http://cancerforums.net/viewtopic.php?t=9620

    Still alive in 2019 !

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

  3. #13
    Thought you might get a kick out of this.

    They always have problems finding my deep squirmy veins so I wear my fav warm fleece sweat shirt I picked up at Cape Canaveral to stay warm

    Hadn't realized what was on the front when some chuckles erupted from the other patients......straight from NASA to the heart of a cancer clinic.....

    FAILURE IS NOT AN OPTION
    Age 63 DHL Stage 2/3 CHOP+R x 6 >2/26/09 Complete 6/9 2009
    Diary here http://cancerforums.net/viewtopic.php?t=12003
    Officially in remission July 9th 2009 3 rounds of Intrathecal July 29th
    Radiation as a prophylactic measure. 1st Radiation Sept 9 completed Oct 1. 2009
    Cancer free 2012 and having fun http://www.gtamotorcycle.com/vbforum...-second-season 3 more appts to cure declared Sept 2013 - cancer free. Lots of travel photos here https://picasaweb.google.com/home April 2014 cance free and last appointment.

  4. #14
    Administrator Top User ChemoMan's Avatar
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    That's the way
    Age 62
    Diffuse Large B cell Lymphoma
    Stage 2a Bulky presentation
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011

    NED AND DECLARED CURED on the 2/01/2013

    No more scheduled visits to the Prof
    http://cancerforums.net/viewtopic.php?t=9620

    Still alive in 2019 !

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

  5. #15
    You bikers will appreciate this

    12 ( 54F ) down from 17 (60F ) when I left for my night ride. What a treat for the senses, full moon, no wind - enough moisture in the air that all the blossoms and flowers were carried. 4 hours late night trip through the back roads and memory lane - most enjoyable.

    Toured all through the windys in the Niagara escarpment through Waterdown then down behind the farmhouse where I used to live into Burlington - fast run along the QEW to Montfords which was still open at 3 and crowded - mint tea helped with my chemo tummy and pigged out on a falalfal sandwich.

    Coasted home on fumes and to top it off nicely - the hot tub told me just how hypothermic I had gotten.

    Still a little chilled but should sleep soundly

    The cherry blossoms overhead smelled wonderful. Birds are up already....that will be night to treasure for a long while.
    Rarely get all the factors in place - especially the full moon and no wind and 17 in May at midnight.

    The tree must have blossomed even more as the smell of the blossoms sitting in the hot tub was incredible.

    gave me a big lift after headachy earlier.
    Age 63 DHL Stage 2/3 CHOP+R x 6 >2/26/09 Complete 6/9 2009
    Diary here http://cancerforums.net/viewtopic.php?t=12003
    Officially in remission July 9th 2009 3 rounds of Intrathecal July 29th
    Radiation as a prophylactic measure. 1st Radiation Sept 9 completed Oct 1. 2009
    Cancer free 2012 and having fun http://www.gtamotorcycle.com/vbforum...-second-season 3 more appts to cure declared Sept 2013 - cancer free. Lots of travel photos here https://picasaweb.google.com/home April 2014 cance free and last appointment.

  6. #16
    Senior User
    Join Date
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    Posts
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    Ride Safe!!!

    God Bless...Don
    Don B
    Dec 07 Dx Follicular NHL, Grade I (Indolent)
    Stage IIIA - No Symptoms
    Watch and Wait - 6 Month Checks
    Jan 09 Scan shows Progression - no symptoms
    May 18, 09 - Started R-CVP
    After Third Round, CT scan showed some tumor shrinkage
    July 31,09 - Completed 6 Rounds R-CVP

  7. #17
    You've had spring for a while - we're just getting started.
    Age 63 DHL Stage 2/3 CHOP+R x 6 >2/26/09 Complete 6/9 2009
    Diary here http://cancerforums.net/viewtopic.php?t=12003
    Officially in remission July 9th 2009 3 rounds of Intrathecal July 29th
    Radiation as a prophylactic measure. 1st Radiation Sept 9 completed Oct 1. 2009
    Cancer free 2012 and having fun http://www.gtamotorcycle.com/vbforum...-second-season 3 more appts to cure declared Sept 2013 - cancer free. Lots of travel photos here https://picasaweb.google.com/home April 2014 cance free and last appointment.

  8. #18
    Senior User
    Join Date
    Mar 2009
    Posts
    189
    ChemoMan: Yes, the baseball players scandals involve the use of steroids. It is a shame. These are the folks that are the "image heros" for our kids and grandkids and reflect the values of society. I am of the mind that when a player signs a professional contract, they should agree that their behavior, on and off the "field", should be just that: professional. All too often we see bad behavior such as drug use, out of control tempers, fighting and other immoral behavior. Our hockey players are like that; every game has a few brawls, which in my opinion the participants should be terminated for good. The reason: Unprofessional Conduct. When I was growing up, I remember a big "stink" when Johnny Unitas, the hero quarterback for the Baltimore Colts, decided to let his hair grow out a bit (he wore a crew cut). Parents were upset because he set the example for the kids.

    Singledad: What kind of a bike do you have? Mine is a '06 Harley Super Glide. Because of my neck injury, I installed an "MT Voyager Kit", which are glorified training wheels. Last week I took them off as my strength has improved greatly. It was great to be on two wheels again; it is hard to ride with the outrigger wheels as you can't lean into the curves. I am glad to see you riding while undergoing R-CHOP at the same time...be careful!

    I am starting R-CVP on the 18th. After much consternation, I decided to save the heavy stuff for later when I really may need it. After going over those Pod Casts, I concluded that too much of that "stuff that starts with a d'" in CHOP could have long term effects and also leave no options if the Indolent NHL transforms to an aggressive form.

    Take care...keep in touch...Ride Safe...Don B
    Don B
    Dec 07 Dx Follicular NHL, Grade I (Indolent)
    Stage IIIA - No Symptoms
    Watch and Wait - 6 Month Checks
    Jan 09 Scan shows Progression - no symptoms
    May 18, 09 - Started R-CVP
    After Third Round, CT scan showed some tumor shrinkage
    July 31,09 - Completed 6 Rounds R-CVP

  9. #19
    Gave up my dual sport ( I've always ridden intermediates ) Kawi 650KLR
    http://www.motorcycledaily.com/15dec...akiklr650.html
    as my hands were getting sore shifting and clutching ( that's all gone thanks to the CHOP-R - )

    Switched to a Honda Silverwing and just love it. Took a bit to get used to as this review notes but it can carry 4 big bags of groceries under the seat, top out at 100 mpH plus and ride dry in the rain.

    http://onewheeldrive.net/index.php?o...588&Itemid=126

    Amazing vehicle and $10 for a fill up for a lot of riding - the 550 just sips gas.

    http://www.totalmotorcycle.com/photo...SilverWing.htm

    I'll rarely take the van anywhere for the next 6 months.

    No shifting or foot braking took some time to adjust to and the small wheels a bit as well.
    ABS are to die for as is the storage. Very nice stadium seating for rear passenger.

    If I was touring I'd likely opt for a 3rd party seat as I find after 3 hours it's a bit too stiff.
    The feet forward takes getting used to.

    I'm really looking forward to a PHEV version of it. Vectrix has one now
    http://www.vectrix.com/
    but I'll wait a couple years. Can't wait to ride at night on the back roads with an electric.

    I'm careful with my energy - I make sure my loops out have a short cut back and I have no time pressures so I can bail at any point and just hang out somewhere if my energy goes.

    My worst period is 4 pm to 7.30 pm - I just retire period. I can literally fall asleep at my desk.
    Good energy then from 8 pm to about 2 am. ( that was my normal pattern anyway ) - sleep for about 5 hours then 7 to 2 is fine......I LOVE napping and have done it regularly all my life.
    Age 63 DHL Stage 2/3 CHOP+R x 6 >2/26/09 Complete 6/9 2009
    Diary here http://cancerforums.net/viewtopic.php?t=12003
    Officially in remission July 9th 2009 3 rounds of Intrathecal July 29th
    Radiation as a prophylactic measure. 1st Radiation Sept 9 completed Oct 1. 2009
    Cancer free 2012 and having fun http://www.gtamotorcycle.com/vbforum...-second-season 3 more appts to cure declared Sept 2013 - cancer free. Lots of travel photos here https://picasaweb.google.com/home April 2014 cance free and last appointment.

  10. #20
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    Join Date
    Mar 2009
    Posts
    189
    Wow, those look like some nice "scooters". I know several people who own Gold Wings and they love them. I've always like the Harleys, but to each his own.
    Don B
    Dec 07 Dx Follicular NHL, Grade I (Indolent)
    Stage IIIA - No Symptoms
    Watch and Wait - 6 Month Checks
    Jan 09 Scan shows Progression - no symptoms
    May 18, 09 - Started R-CVP
    After Third Round, CT scan showed some tumor shrinkage
    July 31,09 - Completed 6 Rounds R-CVP

 

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