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Thread: Another novel treatment by a Doc upon himself (famous Doc)

  1. #1

    Another novel treatment by a Doc upon himself (famous Doc)

    Dr. Fred Lee whom pioneered the invention of cryo freezing therapy for PCa patients, here in Michigan years ago. Is also a PCa patient himself and been one for many years, I found it very-very interesting that his protocol choice is not using LHRH (Lupron or zoladex etc.) or casodex etc.
    So what does a well informed PCa specialist trust for his own treatment on PCa?????
    He might be off of this currently, but he has done this intermittently using an estrogenic effect drug called Emcyt and with very good results. This drug does have some heavier duty side effects compared to other estrogenics like DES (man made compound estrogen capsules) or estradiol skin patches that work well and are very low cost. DES is the lowest cost drug. The benefits of using these estrogenic drugs is: cost, can work even against hrpca (refractive PCa) so when the big name drugs fail this can still work, also these do not deplete bone density or give you memory loss (as does Lupron, zoladex and other LHRH drugs). It can be safe to use DES 1-mg (only with blood thinner like coumadin) or estradiol patches (with aspirin or coumadin), it is riskier to use emcyt to some degree for possible side effects...it seems.
    I can atest to DES 1-mg as outperforming the ADT3 drugs in my own case, I have the psa history monthly and have seen the results over now being 7 yr survivor of PCa, whom had very high stats and parameters that were more omnious. Cost of DES per year $130 delivered by mail with an Rx. It out performed the ADT3 I did get which costs $13000 per year approx.(insurance covered that). Also the estrogenic drugs will cancel the side effect of Lupron or casodex even when they are still in your body, upon taking DES my hot flashes, sweats, fatigue gone within days (AMAZING to see after doing ADT3 for 2 yrs.- what a drag that is).
    Now if someone brings up the DES thing from the past 40 yrs. ago, that some patients died on it (yes some did from blood clots), but they were given too much of it (5-mg)and without blood thinner...also 30-50 yrs. ago this was 'the drug for PCa' was highly effective. Journal of Urology article from 2003 Nov. says that 1-mg is safe to use and does outperform other standard drugs of the LHRH and casodex types. There are patients in USA and especially outside the USA using these various estrogenic drugs with good results and low costs.
    No money to be made on these drugs which is obvious. Patients should look at results and abstracts etc., before making a judgement on these and other PCa drugs. If you are failing the PCa war you look for things with results, nothing is perfect of course, if you can buy time you might be interested in such things.

    PCa- the more you know and find out, the more it is the Twlight Zone and Jungle

    Dx-2002 total urinary blockage, bPsa 46.6 12 of 12 biopsies 80-90% cancerous, Gleasons found 7,8,9's about equally on both sides, ADT3(5-6 months prior)+radiations external: neutron & photon+ADT1-3 for 2 yrs.; quit went to DES 1-mg (1.5 yrs.); quit drugs for 2 yrs. stabil psa till Nov. 2008, resumed DES (psa down from 1.4 Nov. to .61 Dec.)

  2. #2
    Bob,

    Very interesting post. Exactly where did you get the information on what Dr. Lee is using?
    History: age 53 It took 3 biopsies (34 cores) to find 2 cores 4+4 Gleason 8
    Lap RP at MSKCC Apr 2004, age 54 All neg margins, nodes & structures. (T2a).
    Post RP PSA: <.1 until Feb, 08 (46 mos) PSA 0.1 - I then got sensitive tests -> 2008: Feb 0.06,
    May-08 0.09 - Jun-08 0.10, - Aug-08 0.10, - Nov-08 0.15
    SRT Dec-2008 ---Post SRT PSA 2009, Feb-09 0.10, May-09 0.09, Aug-09 0.06, Dec-09 .04, - 2010 Mar-09 0.04, 2011 .02, 2012 .02,
    STARTED UP Feb 2014-0.06, Jul-2015 0.10, Oct-2015 0.10, Feb-2016 0.15, Jun-2016 0.17, Dec-2016 0.25, Jan-2019 0.74, Jun -2019 0.72
    Aug 2018 Auximin scan - nothing
    Had an inflatable penile implant 2018 for ED. Best decision ever https://www.peyroniesforum.net/index...oard,56.0.html

  3. #3
    That would be fair question to ask, two sources on that:

    My Onco doc whom is a friend of his and leader in PCa support group, revealed this information to us all in a meeting, they have worked together before as PCa doctors and have referred patients to each other etc. , both are Michigan residents in Rochester Hills area.

    Also Dr. Lee has mentioned this in public at some PCa conferences that he was also a speaker at.

    Other people have confirmed this whom went to such conferences.

    If that helps you.

  4. #4
    So if he performed Cryo on you at his recommendation and you failed treatment, how do you think you would feel to know he did not opt for that treatment himself?
    History: age 53 It took 3 biopsies (34 cores) to find 2 cores 4+4 Gleason 8
    Lap RP at MSKCC Apr 2004, age 54 All neg margins, nodes & structures. (T2a).
    Post RP PSA: <.1 until Feb, 08 (46 mos) PSA 0.1 - I then got sensitive tests -> 2008: Feb 0.06,
    May-08 0.09 - Jun-08 0.10, - Aug-08 0.10, - Nov-08 0.15
    SRT Dec-2008 ---Post SRT PSA 2009, Feb-09 0.10, May-09 0.09, Aug-09 0.06, Dec-09 .04, - 2010 Mar-09 0.04, 2011 .02, 2012 .02,
    STARTED UP Feb 2014-0.06, Jul-2015 0.10, Oct-2015 0.10, Feb-2016 0.15, Jun-2016 0.17, Dec-2016 0.25, Jan-2019 0.74, Jun -2019 0.72
    Aug 2018 Auximin scan - nothing
    Had an inflatable penile implant 2018 for ED. Best decision ever https://www.peyroniesforum.net/index...oard,56.0.html

  5. #5
    Don't know how to answer your question, perhaps it is good to see a doc whom realizes there are many ways to treat PCa, besides his own specialty or training. This same doc sees many patients such as advance PCa cases, they get hormone therapies and such, not cryo sold to them. I would say he is not all that biased from what I have learned about him.

    You don't know much about him so do not make a quick judgement would be fair. As for some other docs not telling you totally up front truth....it happens, bias and agenda exist in case some one it totally naive or lack of total knowledge on PCa, that perhaps they should be knowing. I could give examples, too.

    Money is part of the mix in PCa, just try getting the same treatment and considerations as though whom have no insurance, I suggest there is a difference, could be wrong too.

    Alot of people get their feelings hurt within treatments that were either not necessary, over sold, under treated....you name it...it is far from perfection out there on any type of medical treatment. Also their are fabulous stories and good medical advice and treatments. How do you know what you are getting.....that is the question, you personally need answers too. I am interested in people knowing all possible options and frank straight information, no sugar coated 'trust me' approach.

 

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